Search results

try these they're tiny too small for me really link also there is a very specific way to insert an earplug to stop them working themselves outwards... Apologies if you already know this but i'd been using them for yrs before i learned this trick! You squeeze & roll it between your fingers...

And that really concerns me, since this is exactly what we are fighting against with NICE/NHS/BPS fan club. It seems counter productive for PwME to be doing the same, but just with 'evidence' that they/we favour. Not to mention hypocritical.

No comments on this study @Jonathan Edwards? I'd be interested in your thoughts as well as other people's, particularly as it's rather beyond me & i don't want to waste my energy learning about 'Hypoacetylation and Purine Metabolism' if it looks like it could be a blind alley.

That sounds great @PhysiosforME I would love to be able to just give it a try, but once some physio labels you as unwilling to do the necessary work or worse, it can be really hard to shake that label & being reliant on benefits & no doctor who really knows me well at all, its a risk i cant...

I was going to ask the same thing @Wonko .... would you mind sending the answer to me too please :) if it's not a hassle :)

@PhysiosforME absolutely brilliant that you're doing this & a very warm welcome to S4ME. I hope in time you might be able to put together some info for other interested physios to look at? - not necessarily treatment guidelines or anything if you didnt feel comfortable with that, but just...

I have had the intermittent tinnitus lasting for seconds, since prior to developing ME. The continuous type didnt start until the day i tried sertraline - when it came on a few hrs after taking the first tablet. That may be pure coincidence of course. yrs after stopping them it's still there...

Sorry to be thick, but what is 'Social Prescribing'? I scanned the article in the OP but I'm very foggy, i couldn't grasp most of it & it didnt appear to explain what it actually is anywhere. uh, i'm too ill for this, will come back another time when my brain functioning better

@Dolphin I have observed what you say in your post to be correct. In addition... Oh how very well put! Male, female & everything in between & neither.... just get us all the hell out of our cells!

thanks Trish. wow :) that looks great. I hope they have a good study design with god selection criteria Eta - lol 'good' selection criteria!

crikey i didnt even know this pair from nottingham existed! :) great that they were there. The 'effects of inactivity' part worries me a bit though?

Ah ok thanks for that Chris. I wish i could let Jo know that what was said in parliament was actually .... (my bolding - highlighting the doubt expressed) if only for her own sake when in discussion with her friend. Anyone who feels up to it & wants to, pls do let her know, or i guess even...

Just wanting to query the facts in this post from MEA fb 'visitor's posts - i wasnt aware of LP being mentioned in parliament since the January debate... does anyone know anything about the veracity of this? I'd like to support Jo & point out that regardless of whether it was "reported in...

@hellytheelephant I find Neals yard basil & geranium the nicest brands i not had their rosemary - i used to use 'essentially oils' brand & their rosemary was divine, but they went bust so no longer available. I not too keen on amphora aromatics' rosemary, but tisserand is ok. I like bergamot too :)

Yes! I use rosemary, basil & Geranium often. Love em. Geranium & basil make a lovely combination imo. If i've got to concentrate on anything or be at my best cognitively I dilute with almond oil & massage in all over myself (well arms legs mainly) And use in burner too sometimes. If i cant get...

Yes i hear what you are saying @Barry, thats pretty much my approach to pacing too although i swing between mod end of severe & sever. So i approach pacing as a thing to do which helps me manage things & hopefully prevent overall deterioration including prioritising energy spend on those things...

thank you so much for sharing all that, i am learning a lot yes. I mean i understand that one wants more formalised evidence, for all kinds of reasons, not least because because the pure survey-type of evidence tends to get dismissed as 'the patients dont know what they are on about or whats...

There is a post today on MEA facebook - https://www.facebook.com/pg/meassociation/posts/?ref=page_internal one of the personal quotes accompanied by pics, that they've been running recently - for awareness week i think? There is a photo of the lady on her stair lift with the accompanying text...

and of course the obligatory photo of a healthy young woman siting in bed looking a bit sad :banghead:

Ah ok. The proper use of terms is so important & as a layman i find that a bit confusing sometimes. So we want something concrete to base advice on that is driven by formal observational evidence rather than ideas about cause. Its confusing because i'm just learning that the only reliable...