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Apologies if i'm being dense @Jonathan Edwards? But I'm not sure what you mean by this, could you pls clarify/expand/give examples?

thats interesting, because for me thats exactly the same 'voice' agreed. Which is why, imo the CBT for ME al la Chalder, is so utterly crazy-making & abusive, convincing people that their reality is self destructive when it is in fact self protective..

I agree that well meaning but manipulatory psychotherapy by therapists with an agenda, poor self awareness & poor ethics can be very dangerous, but i think thats the case in any field of therapy. 'inner voice' in some ways is an unfortunate term because it sounds a bit 'woowoo', but I think...

well none of that comes as a surprise to us does it. In a perverse way it's somewhat of a relief to me (in this moment) that its going on all over, rather than just in the BPS CFS world.

They seem to not know the difference between FND & ME, they list them all as the same thing & yet repeatedly use the word 'and' when describing them - ie "FND and ME". so, do they believe they are the same thing, or different. I agree with @adambeyoncelowe it looks like astroturfing. Or...

Regarding the article in the OP... unless the control group is made up of people who have another disease, i dont care which, but any chronic disease (pref neuro/autoimmune), then the results of studies into adverse life events & their correlation/association with any disease/condition are...

sorry that post was off topic... just to say i look forward to what David has to say about it all & what comes out of his Aussie trip too :thumbup:

hahaha @Forbin thats brilliant I havent heard that for years :laugh: The first verse is so apt :sneaky: "the madness takes it's toll"...."not for very much longer".... "i've got to keep control" For the benefit of RHPS uninitiated

I'm concerned about this too

interesting related article here about pain beginning differently at a cellular level in men & women - research only made happen due to NIH's new policy described in original article (in the OP)...

Thats actually a really good brief, succinct overview of the situation, and gratifying to think we can do a massive class action suit in the yrs to come. But @TiredSam & @Andy...if someone does contact him, i think it'd also be a good idea to make him aware that the NICE guideline was not...

well.... I dont know what to think really, but one thing i feel sure of & that is that EC would not be leaving a position of status & influence if it werent to go to a position of higher status & influence, so i'm actually rather troubled by what she will do next. Worrying for the children of...

You are so right Luther.

Especially overweight women and those who dont conform to society's narrow view of what is deemed sexually attractive:rolleyes::mad:. What i find so troubling about all this, is that generally compassionate people, those who believe I'm really ill & not in anyway malingering, will still say to...

perhaps wearing enough/different fabrics so you dont need the wheatbag? - so that during the night the conditions are the same as when you go to sleep? Just thinking that the bag will obviously cool through the night so that you are still left with cooler environment after a few hrs. What i was...

So when you go to bed cold do you put extra clothing/covers on to compensate? If you do, then that would suggest that no matter how warm your pyjamas are or how thick the covers, you will still wake up cold? yeesh thats a bummer!

i actually have the opposite problem, but i'm mentioning it because i wonder if you could use the opposite solution to the one i found.... all my life i have been chilly before bed (unless the weather was very hot) & prefer my bedroom on the cool side so as not to feel 'hot n stuffy' which i...

yes I'm afriad that knowing what i do about the SMC & about such 'meta analyses' (eg cochrane) I am skeptical to say the least. I mean i dont know if they work or not, but i dont trust this one little bit. I'll be happy to be proven wrong, but just the reports in the press that so many more...

Yes i noticed the talk of 'recovery' too, it makes me very cross. These are not unintelligent people, they can be expected to know full well what the word recovery means, and using it to mean 'management' or learning to live with it, it just disingenuous. Telling people they cant cure them but...

On reflection overnight I edited my OP this morning to add the following 'Just to be clear - I am not in any way attacking Prof Helen Payne personally, I do not know her & therefore cannot comment. It is her attitude and approach that i find so objectionable.'