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#GoFundMEScience ? #MEscienceWorks?

Oh that would be so awesome, we could all do it, that would be so funny. :D @dave30th there probably isnt but is there a way to make that happen? oooo:) thats a good'un

hang on... is this a negative outcome GET study published in the Lancet? What am i missing?

Looks good, I am in too much of a state at the moment to read it though. Also i bet she'd be interested to hear about CBT/GET for ME (unless of course she's already been 'got at' by the BPSers like Ben Goldacre) perhaps someone might have the energy to read the book & then send her a link to...

Wow... that is... well.... disturbing Eww The article reads like an Amway rally without the saccharin & ra-ra. The more i discover about the SMC the more disturbing it becomes.

Wow that is an excellent lecture @dave30th as always Truly excellent. Thank you

Exactly @TiredSam !! This is what i have been saying for years :banghead: Do they think we are all utterly stupid? even a person with a severe intellectual disability can tell that a bicycle and a horse are not the same thing. I can tell the difference between the experience of... anxiety...

The 'do the same every day' thing has little to do with an appropriate response to deconditioning. As @unicorn7 & @Keela Too said, thats not how genuine fitness training is done. It strikes me that it's all part of their operant conditioning based approach - so it's designed to train us out of...

It's a privilege to contribute, I really hope the target is not only reached but smashed. At the moment i think it's the most productive thing we can spend our money on in terms of donations

Best video i've ever seen about ME. First time i've seen my own experience represented so accurately (the lady with the glasses could have been me, so much so that i cried). And oh my goodness @dave30th i just started crying again when i saw you tearing up. Sendin love across the miles to one...

This thread is so depressing. Valuable, but depressing

Kristin Neff has this whole 'self compassion' thing going on... a book etc, which i've found helpful. And i like the lack of music in her tracks. I really like the 'soften soothe allow' one when i'm upset about something. That dog Eddie was priceless & such a key character. I havent seen the...

LOL oh that did make me laugh i had such a mental picture of it. It reminds me of my old cat, she used to come & just stare at me when i was lying on the floor, her face really close to mine & sometimes she'd drool which was so gross so close to my face :rolleyes: It also made me think of...

Interesting but not surprising stuff in the last few posts re the Guardian & the Estabilshment. @Luther Blissett when i said i was worried not to have had anything from the Guradian yet, i meant that i'd be relieved if all they did was stay silent. Based on previous behaviour, I was nervous...

Ugh. He is just so charming, affable, funny (if you don't know him), he comes over as very approachable & likeable. I'm sure if i didn't know what i do about him & his work because i have ME, I would absolutely think he was credible, kind, reasonable. I can see totally how journos & others take...

"The reanalysis is misleading and designed to yield the desired result." :laugh::rofl::rofl::laugh::rofl::rofl::laugh: oh what a wit! what a card! how clever you are Mr Sharpe to make such a joke! What sir? i beg your pardon? you weren't joking? nay sir, you must have been joking.... to...

Perhaps the BPS brigade are getting fed up with patients, advocates & other non-supportive scientists like yourself understanding their work seemingly better than they do themselves & critiquing it in a 'vexatious' manner. So they decided to make it incomprehensible to anyone but those in the...

Yes i see what you mean @Revel , I think some of the piece can certainly be read in that way. I read it more like evolve = change and or adapt. I think 'evolve' is a bit of a buzzword these days to mean change/grow/become better (like you say). And that kind of thing often makes me want to puke...

Thanks @Trish :) I trust the group's wisdom on this completely

@Revel I cant imagine how hard it must be to have never known a time in your life of being well. But in the context of the sentences before & after that one, I interpreted her to mean that herself with ME was so staggeringly different than the herself that she'd thus far known, that it was...