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  1. TiredSam

    Lightning Process - discussion thread

    I think this has just been tried with carrots and donuts. Didn't end well.
  2. TiredSam

    Sick of the Sick Role: Narratives of What “Recovery” Means to People With CFS/ME, 2020, White et al

    The first sentence is Peter White's summary of his lifetime's contribution to scientific knowledge. Excuse me for not reading any further. How many decades has he been at it? And still little is known (by him) and it is poorly understood (by him). Perhaps it's time to pass the baton and find...
  3. TiredSam

    Blog: Placebos Can Fool Your Mind, but Not Your Body by James Coyne

    Do you take the paracetamol with a glass of water? How do you know whether it's the paracetamol or the additional dose of water which does the job? When I get a ME headache I can take ibuprofen, paracetamol, and everything else available over the counter, or even the very strong stuff my wife...
  4. TiredSam

    Restless legs syndrome

    I get this for a few weeks in the summer, usually when it's very warm at night. It stops me sleeping. I'll try a spoonful of marmalade next time, if I remember.
  5. TiredSam

    Patient Perspectives on Self-Management Technologies for Chronic Fatigue Syndrome (2019) Tabby Davies, Simon Jones, Ryan Kelly

    My heart rate monitor has never left me feeling frustrated and ashamed. In fact it never occurred to me to have any feelings about it whatsoever. It's a tool, a machine, a thing. As long as it serves a purpose I use it, and if it stops being useful I'll discard it, leaving it feeling rejected...
  6. TiredSam

    Characterization of Post–exertional Malaise in Patients With Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (2020) Stussman, Nath et al.

    Very relieved to hear that a study involving Brian Walitt and small sample size who are "queried" on their retrospective memories ends up producing pretty much what I'd expect it would. Saves me having to re-evaluate my heuristics.
  7. TiredSam

    Duties of a doctor

    I can't see "First do no harm".
  8. TiredSam

    BPS attempts at psychologizing Long Covid

    I was unaware of this recent transformation. PTSD is a horrible thing, but if it's now being widened, one consequence is that those suffering from old-style PTSD will be taken less seriously and their suffering will be more easily dismissed.
  9. TiredSam

    NICE ME/CFS draft guideline - publication dates and delays 2020

    She seems to be suffering from some kind of anxiety. I'm not one to speculate wildly, but if I were, I might be encouraged that she seems worried that the psychological input so far has not been enough to reach whatever result she thinks should be reached.
  10. TiredSam

    How do you cope with spreading yourself thin? :-(

    Yep. I was always very performance and acheivement oriented, ambitious, striving, hard working etc etc, and also tried to make a difference doing voluntary work. One of the big changes with having ME was accepting that sometimes stuff just doesn't get done. And then accepting that nearly all the...
  11. TiredSam

    Cognitive Behavioural Therapy for chronic fatigue and CFS: outcomes from a specialist clinic in the UK (2020) Adamson, Wessely, Chalder

    They didn't target it very well if between a third and a half of participants avoided filling in follow-up questionnaires.
  12. TiredSam

    Cognitive Behavioural Therapy for chronic fatigue and CFS: outcomes from a specialist clinic in the UK (2020) Adamson, Wessely, Chalder

    I think you can get round things by saying "This disclaimer is for arse-covering purposes only".
  13. TiredSam

    The use of the labels ME, CFS, ME/CFS

    @Diane O'Leary I have read your arguments and I'm afraid I remain unconvinced. I don't have the energy to respond to every small point, just a few: There is already a distinct name for the BPS approach - completely abusive bollocks. It should not be dignified with any other name, no matter how...
  14. TiredSam

    CBT for CFS Therapist Manual PAEDIATRIC CFS TEAM, ROYAL UNITED HOSPITAL, BATH, UK Loades, M.E. & Starbuck, J. | 2020

    I was too busy being a smartypants to notice the joke. There's probably a life lesson in there somewhere.
  15. TiredSam

    CBT for CFS Therapist Manual PAEDIATRIC CFS TEAM, ROYAL UNITED HOSPITAL, BATH, UK Loades, M.E. & Starbuck, J. | 2020

    I do so hate to be a smartypants, but you leave me no option: https://en.wikipedia.org/wiki/Pentagram
  16. TiredSam

    The use of the labels ME, CFS, ME/CFS

    My diagnosis from the Charite in Berlin is: Diagnoses: Chronic Fatigue Syndrome (CFS) (G93.3) That's the best you'll get in Germany. A diagnosis of ME is simply not an option. It's not something the health service offers.
  17. TiredSam

    Using structural and functional MRI as a neuroimaging technique to investigate CFS/ME. Almutairi et al. 2020

    Perhaps she's adding another string to her bow, or another pie to her fingers.
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