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Initial response from Dr Myhill, posted in the Dr Myhill protocol Facebook group. Shared with permission.

Yes but cognitively it sounds like she had a huge worsening as a result of the dental work? I am severe. Is dental work usually that dangerous for PWME? Is there anything that can be done to make it safer? I know that some PWME react badly to certain dental anaesthetics so a different one has...

@Tom Kindlon this scares me a lot. How can dental work cause such a drastic increase in ME severity? I guess I should just pray I never need dental work?

I know that. Sorry if I caused offence. I was just trying to express my emotions.

Woohoo, let's celebrate having severe ME. [Sarcasm]

To be fair, I don't see how this woman's death from a brain haemorrhage can be Capita's fault.

@Jonathan Edwards ?

Struggling to understand the science on cholesterol. It seems to be controversial. Both sides seem to be saying that the other side is using flawed research. So. Is there scientific evidence that high LDL increases the risk of heart disease? And is there scientific evidence that high LDL...

However carefully you report something, there will always be people who misrepresent what you have said. My point is that Jen isn't to blame for what Ivan Watson wrote about CCI, because that was Ivan's opinion and actually not consistent with what she has been saying anyway.

Yes

Ivan Watson (the first commenter in that screenshot) has been sharing his personal theories about ME in ME facebook groups since well before this CCI thing came out. Before that, he was telling everyone that ME is caused by candida. And various other things. Jen has always been very clear that...

This is a great example of "garbage in, garbage out", as my old statistics teacher would say. They've taken 3 different conditions, and run a factor analysis on reported "symptoms". In my opinion this does not show anything useful. It's just a bit of playing with a statistics program. You...

That's a ludicrously poor measure. I'd imagine that waking still tired at least once weekly would be reported by the majority of teenagers, university students, and people working long hours.

I think this thread is rather relevant here. https://s4me.info/threads/a-thought-experiment-how-to-create-a-syndrome.10594/

That is SUCH a good point!

What approach is going to be taken by the upcoming GWAS for ME? 23andme data is not guaranteed to be accurate... and it doesn't cover a lot of genes.

Y'know, that's pretty similar to things that Simon Wessely has said about ME...

Yeah, a similar (and crappy) article could easily be written about the ME/CFS community.

This 'disability pride' & identity sort of stuff is common amongst disabled and chronically ill people in my generation (I was born in the 90s). The reason behind it is they want to push back against the idea that disabled/sick bodies are worth less than able/healthy bodies. They don't want to...

Do you mean a p value? If not, what is a q value??