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  1. Saz94

    Case Report: Acute oxalate nephropathy due to high vitamin C doses and exocrine pancreatic insufficiency, 2019, Fijen and Weijmer

    How much Vitamin C does she advice? 2-4 grams, if my memory serves correctly? And how much was the patient in this case study taking?
  2. Saz94

    Identification of actin network proteins, talin-1 and filamin-A, in circulating extracellular vesicles as blood biomarkers...ME/CFS 2019, Eguchi et al

    @Jonathan Edwards what are your thoughts on this?
  3. Saz94

    Identification of actin network proteins, talin-1 and filamin-A, in circulating extracellular vesicles as blood biomarkers...ME/CFS 2019, Eguchi et al

    Well, it might be.
  4. Saz94

    Very quick survey on anti inflammatories

    Bump
  5. Saz94

    Very quick survey on anti inflammatories

    Thank you :)
  6. Saz94

    Correction: CFS/ME is different in children compared to in adults: a study of UK and Dutch clinical cohorts. 2019

    "Adults had been ill for longer than children" :emoji_joy::emoji_joy: no shit. I wonder why that is? [Sarcasm]
  7. Saz94

    The science of craniocervical instability and other spinal issues and their possible connection with ME/CFS - discussion thread

    Part of the Lightning Process is literally training people to say and believe that they're better, no matter how they actually feel. So I'm not sure that that works as an analogy.
  8. Saz94

    NICE Guidance on Thyroid Disease - Final Guidance

    Ugh ffs
  9. Saz94

    Still to open How to make patients who aren't engaged in the patient community aware of studies recruiting?

    For the GWAS you will need to make it clear that scientists aren't going to "steal your genes"... a lot of people are very scared of giving their genetic material to research and what might be done with it. (This is totally based on misconceptions, of course.)
  10. Saz94

    The science of craniocervical instability and other spinal issues and their possible connection with ME/CFS - discussion thread

    Yeah fair enough I totally get that, it's just that the criticism feels rather constant and people seem to only engage with certain parts of what Jen/Deb/Hip have posted (although I see that JE is now replying to multiple points). But nevertheless I take your point. I didnt mean to sound mean...
  11. Saz94

    The science of craniocervical instability and other spinal issues and their possible connection with ME/CFS - discussion thread

    All those citations that Jen, Debored and Hip posted
  12. Saz94

    Developing a biopsychosocial model and self-management treatment for fatigue in paediatric multiple sclerosis (CFS included a bit), 2019, Carroll

    What's that smell?
  13. Saz94

    The unifying diagnostic construct of bodily distress syndrome (BDS) was confirmed in the general population, 2019, Fink et al

    This. Is. Not. How. Factor. Analysis. Is. Meant. To. Be. Used.
  14. Saz94

    The science of craniocervical instability and other spinal issues and their possible connection with ME/CFS - discussion thread

    I must have missed that one amongst all the other posts.
  15. Saz94

    The science of craniocervical instability and other spinal issues and their possible connection with ME/CFS - discussion thread

    Still nobody has substantively engaged with any of the science posted by Jen and Debored and Hip...... Come on guys. You can't complain about lack of science and then ignore when you are shown the science.
  16. Saz94

    Very quick survey on anti inflammatories

    Yes. Sorry I don't have energy to elaborate at the moment.
  17. Saz94

    Very quick survey on anti inflammatories

    Yes, very much so.
  18. Saz94

    Daily Telegraph: Why do we tell women they're mad, when they're really ill? Nov 18 2019

    A doctor wrote in my medical records that I talk too much!
  19. Saz94

    Very quick survey on anti inflammatories

    I'd be v grateful if as many people as possible could answer this very quick survey that I made. Btw this is a different question to the poll that I posted on a similar topic recently...
  20. Saz94

    PEM for those who are, or were, mild sufferers, how would you describe it?

    SAME. For ages I thought my symptoms were just "physical symptoms of depression" (because lots of depressed people describe feeling tired and unable to move). Then I recovered from depression and my symptoms were still there and in fact getting worse.
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