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    Normal muscle strength and fatiguability in patients with effort syndromes, 1988, Stokes at al

    I realise that this is hardly news but thought it worth a reread as Chalder and Butler in a 1989 MEA newsletter considered it one of the two papers that should be read for an understanding of their approach. The other was the better known 1988 study by Straus. Normal muscle strength and...
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    Who was it that said being in support groups leads to poor outcome?

    How like them to introduce the term without any definition. I suppose they think it speaks for itself. The little question of what constitutes "post", "exertional" and "malaise" remains answered. Anyone who has ever exerted themselves and now finds themselves suffering malaise might be deemed...
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    Richard Horton on Covid-19

    This makes peer review sound rather like auditing accounts. Take the money for doing the job and express astonishment when some whistleblower points out what you were paid to find. Though as in the recent German case the whistleblower may not receive the attention warranted by circumstances...
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    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    Perhaps they should try lobbying the Prime Minister. Looking at him one suspects that there is something we are not being told. There is a familiar look to him.
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    Chapter on Chronic Fatigue, Sharpe, in Science and Practice of Cognitive Behaviour Therapy

    My curiosity about Gelder was aroused, in innocent, ignorant days, seemingly long gone, when I wondered what could possibly have motivated someone with no obvious interest in ME to have provided financial support for the conference establishing the Oxford criteria. The picture has become clearer.
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    Who was it that said being in support groups leads to poor outcome?

    This is precisely the point. Ramsay always talked of relapse and remission, whilst saying that symptoms could be exacerbated by exercise. I think that this was regarded by the psychoquacks as reinforcing the dysfunctional cognitions and maladaptive behaviours. They did not like the language as...
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    Chapter on Chronic Fatigue, Sharpe, in Science and Practice of Cognitive Behaviour Therapy

    Oh yes. Sharpe and Hawton were part of the Gelder gang. The above book including the Sharpe chapter and the Salkovskis chapter has a foreward by Aaron t Beck. It starts This Festschrift is a fitting tribute to the enormous contribution that Michael Gelder has made to psychiatric research and...
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    Prevalence and Treatment of Chronic Fatigue Syndrome/ME and Co-morbid Severe Health Anxiety, 2019, Daniels et al

    I suppose we should be grateful to these ubermensch for explaining to us our frailties. When my stomach is stronger I must try to reread the chapter by Salkovskis and Bass on Hypochondriasis in the Science and Practice of Cognitive Behaviour Therapy. It looks to cover the same ground. You'll...
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    Blog: Hilda Bastian, "Science Heroes and Disillusion"

    I'm a little troubled by the "There is always harm in fighting" statement" It's true. But there may be greater harm in not fighting.
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    Who was it that said being in support groups leads to poor outcome?

    I think this is my final offering on the subject MEA Newsletter Winter 1989 A Letter from our President- Dr Melvin Ramsey SO WHAT IS MY ADVICE TO THE TRUE ME PATIENT Rest Rest is a basic essential for all cases of ME. By resting I do not mean spending months in bed, although bed rest...
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    Who was it that said being in support groups leads to poor outcome?

    Afraid not. I don't think the omission is vital. Anything it did say was corrected before Goldberg's comment. Would that he, Wessely and others had corrected their errors equally speedily-if indeed there were errors on the part of the charities.
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    Who was it that said being in support groups leads to poor outcome?

    I missed one MEA The management of patients with myalgic encephalomyelitis by Charles Shepherd June 1988 General Advice The key advice to patients is that they must "listen to what their body is telling them" and act accordingly. In practical terms this means never exceeding their physical or...
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    Who was it that said being in support groups leads to poor outcome?

    I thought it might be worth producing some evidence to refute the claim that "Furthermore, the patients' illness behaviour is likely to be perpetuated by adhering strictly to the advice given by the powerful self-help group ,the ME Society, which advocates total rest". TO Woods DP Goldberg...
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    Who is Simon Wessely?

    SW is someone of whom it might be said that it is not always easy to know what he is saying from what he says. Much digging around the periphery is always required. It is almost never clear whether all the words and citations are there to reveal his opinions or to conceal them. We all know his...
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    EXPLORER study: Exploring treatments for younger children with CFS/ME - Amberly Brigden, Esther Crawley

    Is that a clinical review of the patients, or a managerial review of the staff?
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    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    I once followed up that quote and it seemed to have been directed at J Gordon Parish. Those familiar with Osler's Web will recall that Parish was also treated with disdain at the Holme's conference discussing the criteria for CFS. He did not deserve this treatment. EDIT added omitted word
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    Who is Simon Wessely?

    If he (or she) were a true CFS/ME researcher he/she should feel able to shrug off the criticism as due to dysfunctional cognitions and maladaptive behaviour.
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    United Kingdom: ME/CFS in The Times (including Sean O'Neill)

    I have recently unearthed some of the advice given by the MEA and ME Action Campaign in the early late 1980's/early 1990's. The only significant difference between Pacing and GET seems to be that Pacing involved giving the sufferer the confidence to listen to their own body and stop when it told...
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    Graded exercise therapy doesn’t restore the ability to work in ME/CFS. Rethinking of a Cochrane review, 2020, Vink & Vink-Niese

    Winarick, who may or may not be a scientifically valid construct, appears to be concerned with matters of form rather than substance. People diagnosed with CFS, whatever the validity of the scientific construct, do not have the capacity to work restored by CBT.
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    The Times: Chronic fatigue syndrome: ME families accused of child abuse

    That would appear to be merely an expression of the limitations of his/her experience and all the more reason to rely upon the professional opinions provided rather than his/her own inadequate opinion.
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