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    Who said: don't bother testing patients?

    The pattern of presenting symptoms also has consequences for the recognition of illness and subsequent referral patterns. Patients suffering from depression with primarily somatic features are more likely to be referred to physicians whereas those with mainly traditional psychological features...
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    The actual views of "ME activists" are...

    I'm not sure there is much risk of anyone's views appearing in print. There is however a very real risk that sentences selected at random from what is written might appear with a poster's name associated with it.
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    #MEAction: A response to Dr Mark Porter’s article about ME in The Times

    Dreadful state of affair when members of the general public are fed a story about chronic fatigue and fail to understand that it was never about chronic fatigue syndrome. How can doctor/journalists be protected from such ignorance?
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    The i newspaper: CFS how online abuse is halting research

    Jeremy Laurance, Health Editor, The Independent, said: “It is not your contacts that impress - or not only - but your ability to get responses out of them in short order. Brilliant." acmedsci.ac.uk/file-download/37090-551d028c91645.pdf This was a May 2013 publicity puff for the SMC. Not sure...
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    The i newspaper: CFS how online abuse is halting research

    Don't worry about it. I find that things never look the same twice.
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    The i newspaper: CFS how online abuse is halting research

    That was in an early amendment published by Reuters which included the original correction about Columbia University, so it is not specific to the I article.
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    #MEAction: A response to Dr Mark Porter’s article about ME in The Times

    The stock answer to that is probably that the title is written by a sub-editor. We shall see.
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    The i newspaper: CFS how online abuse is halting research

    Interesting. So far as I can see the original article was amended to include a reference to @dave30th 's article being hosted by a Columbia University website. Reference to this seems to have disappeared. One would not want to give any impression of wider support. Where@s that Reuters' Handbook...
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    The i newspaper: CFS how online abuse is halting research

    Is it usual for the I to pick up stories two weeks late and a week after anyone else? Presumably this is a straight syndication, but it would be interesting to see whether it has incorporated amendments to the initial version. The i isn't on the usual list of SMC suspects, is it? Makes one...
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    Hole Ousia - it's Boom time! - Michael Sharpe

    The cynical part of me cannot help wondering whether Sherpa's "new-found" preference for cancer research might not have more to do with relative levels of funding than abuse and intimidation by ME patients.
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    Trial By Error: The CDC’s Pathetic Response to Reuters

    And why not criticise a model that includes statements such as : Furthermore there is some evidence to support the suggestion that patients who attribute incapacity and failure to physical disease rather than to their own shortcomings are able to maintain a more positive self view. Sharpe...
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    ME charities' response to the Reuters article

    That was always why simply trying to counter with the science was never going to be sufficient. The science has never mattered to them. But there is no need to hurry over a powerful response. One can see potential benefits in delaying it, so that when the Cochrane developments become known...
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    Sunday Times readers comments: "The ‘invisible illness’: what it feels like to live with chronic fatigue syndrome or ME"

    One might reasonably have expected that to run an NHS service in any condition it would be a sine qua non to have a clinical interest in the subject. The uses of the word "interest" are clearly various and uncertain, and the ways of the NHS even more so.
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    Sunday Times readers comments: "The ‘invisible illness’: what it feels like to live with chronic fatigue syndrome or ME"

    It is surprising that Hertfordshire's clinical lead for CFS/ME does not list it as one of his clinical interests. www.spirehealthcare.com/consultant-profiles/dr-colin-johnston-c2383859/
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    Sunday Times readers comments: "The ‘invisible illness’: what it feels like to live with chronic fatigue syndrome or ME"

    I guess that that is to be interpreted in the same way as "courageous" in Yes Minister.
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    Study evaluating NICE, Oxford, and Fukuda prevalence

    I have never before heard her referred to as the missing link.
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    Special Report - Online activists are silencing us, scientists say Reuters March 2019

    Perhaps the retreat to treating quiescent and appreciative cancer patients, rather than cantankerous and contumacious ME patients, has been a long established trope within the BPS world and the intended retirement is only loosely associated with alleged intimidation. This was Wessely in the...
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    Brian Hughes - If you spend 20 years gaslighting your patients, perhaps you should think twice before accusing *them* of trolling *you*

    Just had a quick look through the national archives DWP file. It looks to be in the minutes of a meeting dated 30 March 1992 beginning at page 139. Sorry I can't help with copying that.
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    Cognitive and behavioural responses to symptoms in adolescents with CFS: A case-control study nested within a cohort, 2019, Loades et al

    I am sure this was recognised by others in 1989 which makes me wonder just how much communication they had with doctors outside their own little cult before describing their new condition. I am sure that that is in part what led to the belief that if, this is what they were seeing in patients...
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    Cognitive and behavioural responses to symptoms in adolescents with CFS: A case-control study nested within a cohort, 2019, Loades et al

    Surely it's membership of the MEA that is the determining factor, and probably not many of the children are members.
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