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Fake BS. Managed discussion putting their own words into the participants' mouths by restricting the topics to what interests them. No patient cares about the biopsychosocial model of illness anymore than people care about the programming language used in the software applications they use. It...

So: socioeconomic, biological, biological, biological and biological. Gotcha. Sure seems like medical assessment of "anxiety" and "depression" have little to do with either. No surprise, since that's their intent. But sure, focus on anxiety and depression. It's easy and no one can check as it's...

I highlighted the same part. He doesn't even believe those words, has literally spent much of his career fighting us over this. Hollow man with empty words, playing unelected politician.

Honestly, I think the concern here is a bit unwarranted. The downside of being a discriminated patient community is that no one cares what we say, or even happens to us. The upside, when stuff like that happens, is the same. No one cares about this stuff and it's already roughly the current...

A funny thing about this is that "scientists shouldn't share opinions" is an opinion. It's a valid opinion, one that is entirely dependent on execution, context and accuracy, but it is just an opinion. One that can take form in ideology, as a set of opinions. The idea that facts and evidence...

Yup, here. Internal tremors for years, at times it was pretty intense. Was really interesting to see this with LC, confirmed so many things I suspected. For chest pain I only got an echocardiogram. I wonder if a better test would have shown something. Lots of myo- and pericarditis only seen...

The first paragraph suggests this is probably the course created through Bateman Horne Center and published in the Mayo proceedings journal.

I can report, coincidentally, having switched from drinking room temperature water to cold water over the last few weeks. Zero noticeable change. Other than it's very soothing for the throat, which is nice. My throat is constantly clogged up so it can get irritated and stuffy. It's nice for...

If anyone wondered whether our BPS overlords are behind it, of course they are behind it. Very telling that they are not citing their own work on ME, despite it being the bulk of their career. I don't see how identical work with MS is any more valid, but it sure helps with the narrative of how...

As much as this is... interesting to hear, it's admission of having failed to do their job properly for decades. Which we know, even said so. But that something this massive can be said as an afterthought, with zero expectation that it has any importance, says everything about why everything...

I was curious about the ethical challenges and oh boy does it make it clear how ethically challenged these people are: It's well-documented, in the FND/conversion disorder literature itself, that patients reject those diagnoses. This has always been the main reason they were withheld, because...

The whole system is to blame, so individual blame probably doesn't mean much here. Medical blame is for medical acts in a clinical setting, this is at a higher level, of making decisions that essentially force bad outcomes in clinical settings, but individual practitioners are complying with...

The only way I see this happening is with patients funding it. No institution would ever approve such a study, it's too confrontational, no one wants to risk exposing the lie. And it would need institutional support, working through clinical networks and directly engaging with patients and...

They just can't help themselves putting their own interpretation as the only valid reasons: "initiating recovery". Upper floor clinics with elevator access are considered more accessible by patients with limited mobility than those who ask patients to simply crawl up on their ass to show they...

Very, very strong "beatings will continue until morale improves" energy. To continuously advise the problem as the solution to the problem. Like mindlessly trying the same key thousands of times, just in case it works the next time. And as always: it's brand new, never been tried before. Every...

As best as I can see, fault is almost always over compliance, harm doesn't actually factor into consideration. It's physicians who deviate from what they're told to do who get blamed, unrelated to the nature of what they're promoting. If complying is harmful, it can't be faulted. If not...

All of which is common out there in the real world. People are whiny and petty all over. The big question is how all of this is normal in medicine? Encouraged, even. Promoted, praised, rewarded, funded, beloved. Petty charlatans exist everywhere, only in politics, business and medicine are they...

The ME omerta continues, zero mention. They actually list PEM first, without a single mention of ME. Amazing. Orwell was so wrong about having to rewrite the official record. As if people actually care what it says.

Although that's nice and everything, it can't explain the relapsing-remitting pattern or PEM. So it can't have a significant impact on fatigue, as fatigue could not wildly change without matching changes in those regions if it's a significant cause. It certainly doesn't explain how some can...

One of the main ideas behind psychosomatic ideology is to test as little as possible, to end testing as early as possible, in fact to avoid testing at all. So yeah, it's a feature. By definition many diagnoses will be missed. For the same reasons allowing industries to self-regulate compliance...