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It's genuinely as if medicine is discovering the concept of illness, for which it has no useful box, only full health, hospitalization or death. Amazing. I'll never understand the casual dismissiveness of regular illness. It only seems to make sense in light of a belief in medicine that regular...

Sadly predictable, there's almost always a personal connection. Now I hope that Javid has the courage to stand up to what's about to happen, for his niece(?)'s sake. Because he will see spitting rage and foaming at the mouth from influential doctors who will spew pseudoscience at him like it's...

Circular work: work that exists only to produce more work in the future. Always developing new programmes, never actually delivering anything. Even as all the new funding they get is based on their past work, which they can themselves pretend did not happen, unless it's to get more funding. As...

Not entirely convinced of the full validity of a full resolution: Coincidentally? This doesn't sound that coincidental: Anyway I was looking for what treatment they used and: IVIG.

Obviously that's nonsense, and so is the idea that cortisol level = stress, but here she is saying that low level cortisol means stress. So low presence of "stress" hormone (a metabolic precursor that does many things) means stress, even though obviously a high level must also mean that. OK. I...

In biopsychosocialand, effect is cause.

They can't be bothered to notice that cognitive problems are erratic, and so cannot possibly be related to brain connections? They think that people can be trained out of something that can switch on and off in a matter of minutes? Can be improved or worsened by a vaccine or a mild infection...

It's awful how they admit there is basically no evidence for it, other than misusing an invalid code for a number of years, and they conclude that... they must build the evidence to promote its growth. They have completely lost sight of what healthcare is about. They only focus on managing...

Anyone not yet blocked by Sharpe, Wessely and the rest want to clue them in on what actually matters in ME? Tag them in on this? Maybe Greenhalgh and a few more? Putrino has been at this for 2 years and understands this better than all of them combined. And didn't even start that strong, had...

Post copied from the Long covid in the media and social media thread Anyone not yet blocked by Sharpe, Wessely and the rest want to clue them in on what actually matters in ME? Tag them in on this? Maybe Greenhalgh and a few more? Putrino has been at this for 2 years and understands this better...

On the issue of atopy, it hasn't been formally researched a lot, but this must be explained. This was from a survey where Gez asked long haulers about some basic history and got this result: Of course a previous course of PVFS is a larger risk factor, but would need a more representative...

I genuinely have no idea what "fear of recovery" can even possibly mean, it's so incoherent and foolish. I see delusional nonsense all the time on the Internet, I love following the ins and outs of propaganda and Internet disinformation. This garbage fits right in with the rest of the dumpster...

Pretty odd to name us in the same context as the AIDS movement, when the history of ME basically shows us what the outcome would have been if HIV denial had dominated. Had it happened a few decades earlier, it could have happened this way. If even massive research efforts couldn't find the virus...

What's amazing about this basic statement is that every profession respects it. That's what being a professional is all about. In software development, it's the equivalent of "it works on my machine". Only junior developers make that mistake, because they either grow out of it quickly or get...

Ah, but this is totally normal and accepted in mental health research. I get they didn't get the memo that this can be done with approval and even more frank admission that it was to achieve a better outcome. Cheating is normal, you can even get it approved. Of course those concerns only appear...

Interesting. First I've seen outside of Gez's survey that as far as I can tell was the first to show this. Although the opening with 1984 for ME does not inspire confidence in the paper overall. I guess it's the UK-centric that does it here. Well, so does this: It is the.... 5th, I think...

It's good to see NICE being proactive and open. They don't have to comment on this and posted several. I guess seeing the power dynamic was illuminating to some. Kudos. And good timing to have both on the same day and amplify one another. Seems like there may have been secret meetings happening...

This could have significant legal repercussions. I still see from time to time people forced into CBT & GET or otherwise they lose their insurance or disability benefits. Even though there is no basis for either treatment to be useful, let alone curative. And while true that we can be supported...

Honestly it's not great. Way too many questions about emotional states, I don't understand the point of this entire section. The questions are too superficial and have too many possible interpretations, not practical enough. I don't consider that questionnaire useful. Disappointing.