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  1. rvallee

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    When you don't know that "chronic fatigue" is actually serious and shouldn't ever have been dismissed. Alternatively it could be dismissed again so the cycle repeats again and again... Hard to think of a charitable interpretation of that quote. And if this is an official reason... ready the...
  2. rvallee

    Virtual Reality-Based Therapy Reduces the Disabling Impact of Fibromyalgia Syndrome in Women..., 2021, Cortés-Pérez et al

    The "therapies" appear to be a mish-mash of many different things with no other relation than being delivered using VR. What should it matter how a bunch of disparate stuff is delivered if they're all different? It's nonsense to say that VR therapy is a therapy anymore than it differs doing it...
  3. rvallee

    An Observational Study Comparing Fibromyalgia and Chronic Low Back Pain in Somatosensory Sensitivity, Motor Function & Balance, 2021, Mingorance et al

    Uh, citation? Wat? This thing where medicine treats symptoms in isolation, detached from their context, has become a tragic farce blocking most of the progress that could have been done already. Complete nonsense. Context matters, damnit.
  4. rvallee

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    All of which will be familiar...
  5. rvallee

    Smartphone-based exercise intervention for chronic pain: PainReApp randomized clinical trial protocol, 2021, Moral-Munoz et al

    Totally consistent. It's the latest craze and also no one's buying it. How does it make it sense for something to be effective yet people stop using it? It doesn't. At all. It's essentially an appeal to authority: authorities are using it, therefore it must be good, otherwise they wouldn't be...
  6. rvallee

    Independent advisory group for the full update of the Cochrane review on exercise therapy and ME/CFS (2020), led by Hilda Bastian

    Underselling it. It's amazing. Thank you, Caroline! Love to use Garner's words trashing Cochrane against him. Not so much as a gotcha but to get Cochrane to at least acknowledge his unprofessional behavior and how it reflects poorly on them.
  7. rvallee

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    It appears that the lead researcher on one of the $470M NIH initiative is a psychiatrist, which I guess means they have little intention of actually solving this. The NIH does seem willing to waste a billion dollars. Mount Sinai Named a Lead Site for Enrollment in Nationwide Study on the...
  8. rvallee

    BPS attempts at psychologizing Long Covid

    The most amazing thing here is that the public health messaging from the start, and still is, has been that Covid is mostly harmless to those below 60, in part because of this belief system. So much emphasis on mild illness, in addition to asymptomatic cases being rather common. As a result, the...
  9. rvallee

    Post-infectious disease syndrome, 1988, Bannister

    Uh, hmmm, yeah... Yes, it rained, yes, there is water on the ground, but who knows if the 2 are connected? Could be astral projection, I guess? Maybe spontaneous liquefication. Who knows? Could even be ghosts! You hear hoofs? Think howling monkeys, of course. This thing where not having the...
  10. rvallee

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    They really need to talk with patients. Not to. With. This is awful. Complete caricature of what it's like to be ill. Diagnoses are "validating" because they are the ticket to everything happening in health care. It's not an abstract, it's a requirement without which nothing happens. That...
  11. rvallee

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    I really don't like where this is going. This is basically the nightmare scenario disguised as a blessing, because 99.9% of health care services would not see it as a problem: a variant that is highly contagious, causes less acute illness of the "needs hospitalization" kind, but is even worse at...
  12. rvallee

    Microbiome–host systems interactions: protective effects of propionate upon the blood–brain barrier, 2018, Hoyles et al

    I don't understand the weird obsession with the "gut-brain axis". Every organ in the body is directly connected to the brain, literally everything has to. Never hear about the liver-brain axis. Or any other combination. The interaction between the brain/nervous system and the immune system...
  13. rvallee

    News from Aotearoa/New Zealand and the Pacific Islands

    Prepare. Pre, meaning: before. Nope, not it. 2 years into this is definitely not before, it's far after.
  14. rvallee

    United Kingdom: Newcastle-upon-tyne Hospital Trust

    And another one for the file of so-called lessons learned from the AIDS crisis. We may be vindicated with time, but we will have been just as hated, if not more because it has lasted far longer. And that anger was explicitly and disgustingly used against us, just like it was. Zero lessons...
  15. rvallee

    Ed Yong: Health-Care Workers With Long COVID Are Being Dismissed

    It's pretty clear that medical information is communicated top-down. The top hasn't communicated this because they are in denial. Medicine is seriously lacking in leadership, there just isn't any.
  16. rvallee

    BPS attempts at psychologizing Long Covid

    He says things his medical peers want to hear. Same as Sharpe and Wessely or Stone. Nothing special, certainly not a luminary. These people are in the marketing business and there's plenty of demand for it, they don't even have to make any effort at it and there's basically infinite money...
  17. rvallee

    News from France

    There is a legislative debate today in the French parliament for a LC resolution, 2nd debate. It appears to have unanimously passed: I don't know much about French politics, legislative resolutions are typically non-binding so I have no idea how much bite this has. I assume none at all...
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