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People suffering from a discriminated chronic disease resulting in horrible quality of life: please help us, this is not living, we need help, we are in constant pain and sickness, live in poverty and isolation, mostly because in addition to getting no help, we are maligned and disrespected by...

Well if only this STD thing were significant this may matter. I wonder who decided that it should matter enough to test. I imagine it's something to do with CSS or something like that. This supply-side medicine thing is really dysfunctional at the best of times. Zero to do with what's needed...

But I thought health activists were bad. That's what they keep saying about us. How odd. This basically describes the BPS model. I'm sure these people love the BPS model, which does exactly this. How odd, that ideas are not consistent. But we keep hearing that this is bad. We are in fact...

It's sold as a "mind-body intervention" and the tagline is literally "Train your brain away from pain", but OK. Woo for everyone, then! Frankly pretty much appears to be the same stuff as LP, it's also a commercial product hidden behind a paywall. As explained in the first paper: So something...

It turns out that letting a new virus rip through the population without a care for consequences? Not a smart idea. Who could have known? It also says a lot about the impact of socioeconomic status in regards to health, how it directly ties to health outcomes, that being poor may pretty much be...

Arguing that LC "looks a lot" like "cultural illness" is like marvelling at the fact that the celestial spheres really looked a lot like when you observe the solar system and wow what a coincidence! Which is of course precisely why and how the celestial spheres were invented: to match the...

It's amazing that we have known for years just how much immunology is going on in the gut, and still most digestion problems got psychologized, continuing to reject the full implications of the germ theory of disease. This will make people cringe with hindsight but right now it seems that the...

Oh, forgot: @dave30th, the empire is expanding.

$10.3M awarded for this junk study. This is scandalous. There have been dozens, if not hundreds, of those trials already. Adding another BS pseudoscientific comparison changes nothing at all, it's exactly equivalent to swapping homeopathic treatment, water vs. water. I don't even know how it...

The what now? Buddy, we're not the ones having trouble identifying things. Or having trouble with identity, I think the people harping about mind-body duality and the relationship BETWEEN the mind and the body are far more troubled in their identity than we have ever been. I doubt this is what...

Very likely a stupid question but: could RBCs be so deformed they pretty clot themselves? As in the source of those micro-clots? Basically when they are squished through capillaries they clump together because they are so squishy, and maybe catch other things too. Probably not but it's nice to...

OK this is very interesting, the new German minister of health has been quite vocal for a while about ME and generally in a good way. Recognizes the massive overlap with Long Covid and how dire things are. This could be a major change. IIRC he shared the petition that was sent a few weeks ago...

It looks like this complicated issue is even more complicated than what it seems. It's already hard to have the % who deteriorate acknowledged, different outcomes to the same cause are just a full order of magnitude more difficult to figure out and it's already too difficult.

Here explicitly advised: Cardiopulmonary Tests Urged for Lasting Fatigue, Dyspnea After COVID-19 https://www.tctmd.com/news/cardiopulmonary-tests-urged-lasting-fatigue-dyspnea-after-covid-19 But for now, guidelines for managing the chronic phase of COVID-19 should include use of CPET, Mancini...

I've seen a few mentions lately that some health insurers and clinics are requiring CPET as a standard assessment for LC, based on its relevance in ME. Nevermind that the logistics of this are absolutely out of whack with reality. At best what this would do is create a logjam of cases that just...

"Stress". I'm sorry but this is not stress in any sense that relates to how it's commonly used. Also it's a common trope that everyone reacts differently to stress so how could there even be a common response? Dogmatic assertions can arbitrarily turn off and on again depending on how convenient...

German politician talking about having ME and LC.

It's a good thing that LC has brought dysautonomia and POTS off the blacklist but it's still almost entirely discussed as an elevated heart rate on standing/sitting up and nothing else. There is just no depth, no useful knowledge, in addition to this simple number. You have to cross that 30 (?)...

I'm not even sure if a single one of the asserted facts has any basis in reality, they are all speculative or lacking any supporting evidence other than other people doing the same thing. One could possibly have some truth to it, but it still would be speculative and premature to claim, in...

Problem is, professional bodies is who will enforce those obligations. So who forces professional bodies to enforce their own obligations? And will they? If the colleges basically just say "nuh uh, we are right, the dirty 'activists' are wrong". Which they are.