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  1. rvallee

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    It's been almost 2 years, exactly how long do people "wait for a picture" here. There's zero urgency and the efforts deployed so far are mostly pathetic. The WHO is doing the same thing as the NIH: all talk no action. They are fully paralyzed because of the conflict ending the psychologization...
  2. rvallee

    BPS attempts at psychologizing Long Covid

    Ah well, the tweet got deleted. From a mental health nurse, showing a slide of a recent Trudie Chalder talk about mental health in LC. Tagged #mentalhealth and #cbt of course. So Chalder is still going around "teaching" people about her pseudoscience. Since it's still in my bookmarks: Can't...
  3. rvallee

    Qualitative study of the acceptability and feasibility of acceptance and commitment therapy for adolescents with [CFS], 2021, Crawley et al

    Better do this 28x more times just to be sure, how can we really know if something commonly used is feasible? After all, this exact study has only been done many dozens of times so far. What we really need to find out, though, is whether it is feasible for participants to drink a glass of water...
  4. rvallee

    Independent advisory group for the full update of the Cochrane review on exercise therapy and ME/CFS (2020), led by Hilda Bastian

    Ah, the use of a passive voice when trying to minimize responsibility in a decision. However this is problematic as the decision to retain the amended review from 2019 was... not to retain it. Then there were threats and attacks and that decision changed, although the most weaselly way possible...
  5. rvallee

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    Looks like the theme of the day. When you affect the money-making machine alarms start to go off. Long COVID patients and doctors detail the growing 'mass disabling event' in America https://finance.yahoo.com/news/long-covid-patients-doctors-america-172004184.html “We’ve had [pandemics]...
  6. rvallee

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    Can't read, paywalled. Edit: apparently this is featured above the fold, i.e. on the top half of the front page on the printed edition. It's the main story on the site right now.
  7. rvallee

    Assessment of fatigue among working people: a comparison of six questionnaires, 2003, De Vries et al

    But there's nothing objective to compare them to. It's like comparing "official" weights without having a gold standard, it's irrelevant if they are consistent with one another. They're not compared to anything in real life. In the end it's basically just personal preferences which is "most...
  8. rvallee

    Hyperbaric oxygen therapy for the treatment of long COVID: early evaluation of a highly promising intervention, 2021, Robbins et al

    It turns our that using as a metric of academic success the number and reach of published papers is a terrible idea. Academia is basically half-clickbait by now because of this, publishing papers to get funding to publish more papers to get more fun...
  9. rvallee

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    As I feared, it looks like the combination of "more infectious but less deadly" will be used to spur yet another round of "maybe herd immunity will work this time". Basically the worst case scenario where far more people are ill but health care systems are completely unaware of it because there...
  10. rvallee

    UK NICE 2021 ME/CFS Guideline, published 29th October - post-publication discussion

    I'm lost on this. We tried everything and have no other options, we have no real threats like the AIDS movement did with the blood supply, probably the only reason things eventually moved. Bodies were piling up and people still didn't care. It's indirect threats that did it, we don't have that...
  11. rvallee

    UK NICE 2021 ME/CFS Guideline, published 29th October - post-publication discussion

    It's an irrational position to begin with, it did not arise out of evidence. So rational arguments and evidence won't matter here. Seeing the complete failure of medicine dealing with Long Covid, how even this isn't enough to get through, I think it's important that we accept this and try a...
  12. rvallee

    Testing a newly developed activity pacing framework for chronic pain/fatigue: a feasibility study, Antcliffe et al 2021

    Can't we just give all the funding that goes to this junk directly to patient groups or something? These people are completely confused about everything and just wasting everyone's time with their crap. And it's not improving with time. If they can't understand that pacing is not a treatment and...
  13. rvallee

    Requests for information/papers/sources/documentation

    Anyone happen to remember this one?
  14. rvallee

    Exercise plasma boosts memory and dampens brain inflammation via clusterin, 2021, Zurien De Miguel et al

    And yet people who work physical labor all their lives tend to do far worse health-wise as they get older because injuries and repetitive strains add up, because things are far more complicated than this and no research of this type can account for all confounding factors. And because physical...
  15. rvallee

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    This is especially awful considering how they keep saying that LC research should help us so it's OK to not bother doing anything more specific to us. The NIH are clearly explicitly refusing to follow the evidence, would rather not find what they will. It's so disrespectful to all of us, and...
  16. rvallee

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    Where Are the Workers? Millions Are Sick With ‘Long Covid.’ https://www.barrons.com/articles/labor-shortage-workers-millions-sick-long-covid-51638923422 Dr. Schluger offers some hope for those afflicted with long Covid, and thus for the labor force. It may take a year or more, but symptoms...
  17. rvallee

    Independent advisory group for the full update of the Cochrane review on exercise therapy and ME/CFS (2020), led by Hilda Bastian

    Given the (shocking yet unsurprising) revelations of blatant attempts to corrupt the process at NICE, I think it necessary for Cochrane to address how they will prevent this, with the assumption that no response means that it is happening and they are OK with it, given what we know of how...
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