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  1. rvallee

    A 4-day mindfulness-based cognitive behavioural intervention program for CFS/ME. An open study, with one-year follow-up, 2018, Stubhaug et al

    So his study using CFS/ME in the title is not about ME, or CFS, it's about coping with stress. We have actually crossed beyond satire and into whatever comes after. Orwell was completely wrong about having to fix past records. You have dudes here who can bullshit in real-time in ways that...
  2. rvallee

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    Rather good video on Long Covid. However it remains in the format of personal vignettes, there's basically zero journalism effort giving it context, it shows the impact on 3 people and some comments from physicians (who seem to be slowly getting it) but it simply gives no information about how...
  3. rvallee

    Jo Daniels (on CBT, ME/CFS and Long Covid)

    Weird how whenever the precise combination of factors BPS ideologues mindlessly drone on about being the cause of all those psychological ills manifesting as physical illness are met, they tone down the sales pitch. Those are the precise features of "life events" and stress, even actual...
  4. rvallee

    Functional neurological disorder: Engaging patients in treatment, 2021, O'Neal, Dworetzky and Baslet

    I'd go one step further and say that the number of providers skilled in the treatment of FND is 0 and will remain at 0 no matter what is done, unless we completely redefine the definition of skills in a way that would recognize that astrologers are skilled at... something. No amount of training...
  5. rvallee

    Chronic Fatigue Syndrome and Occupational Status: A Retrospective Longitudinal Study, 2021, Chalder et al

    I was looking at that and it's laughable: So it almost means nothing. Being the UK, someone being on a 0-hour contract would qualify as being employed even if they only work 1 hour per month, as would a student that is unable to attend classes, unless they dropped out. And of course someone...
  6. rvallee

    Preprint: Characteristics of Patients Referred to a Cardiovascular Disease Clinic for Post-Acute Sequelae of SARS-CoV-2 Infection, 2021, Wang et al

    It's a bit better than average but it's really important that they clue in that it's exertion intolerance, not exercise. It's not about going for a 5km jog and being more winded than usual after. There's still a serious lack of depth of understanding. It's mentioned as an or but that's not good...
  7. rvallee

    Testing a newly developed activity pacing framework for chronic pain/fatigue: a feasibility study, Antcliffe et al 2021

    That's why one major component is pushing the apps and virtual programs. Which completely removes the individualisation, and shows that "training" the therapists is essentially useless, a pamphlet is equivalent (to zero). But they argue for both anyway, and everything in-between. Even though the...
  8. rvallee

    Shame in the treatment of patients with psychogenic nonepileptic seizures: The elephant in the room, 2021, Myers et al

    Medicine: shames patients, making them explicitly feel worse for being ill by explicitly blaming them for it and all its consequences. Also medicine: wow they sure seem to feel a lot of shame, I wonder where that comes from, best study this 589 times over the next century or so.
  9. rvallee

    BPS attempts at psychologizing Long Covid

    There is nothing in the LC guidelines that forbids recommending LP. But that response. Damn, how low has medicine sunk? And how much lower will it?
  10. rvallee

    BPS attempts at psychologizing Long Covid

    What Could Explain Long COVID? The connection between mind and body could help us understand the ailment. https://www.psychologytoday.com/us/blog/the-new-normal/202112/what-could-explain-long-covid No point quoting anything, it's the same old tripemill of sophistry and Freud-of-the-gaps...
  11. rvallee

    Nationwide epidemiological characteristics of chronic fatigue syndrome in South Korea, Lim et al. 2021

    I trust health record data on ME diagnoses like I trust closed-for-months gas station sushi. Or anything about chronic health problems in general. At one point it will be necessary for medicine to decide how to deal with decades of garbage-in health records, how massively misleading they are...
  12. rvallee

    Functional neurological disorder: Engaging patients in treatment, 2021, O'Neal, Dworetzky and Baslet

    They'll keep pretending to ask and they'll continue to pretend the patients aren't clear that the problem with this is that it's quackery and that they have no idea what they're talking about. It could go on and on for decades. It already has and nothing has changed in a full century. That's...
  13. rvallee

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    In the file of "misguided good intentions". Promotion of non-evidence-based therapeutics within patient-led Long COVID support groups https://www.nature.com/articles/s41591-021-01589-y Long COVID support groups play an essential role in advocacy, patient support and research development...
  14. rvallee

    The role of evidence-based guidelines in the diagnosis and treatment of functional neurological disorder, 2021, Tolchin, Baslet, Carson, Perez, Stone

    So they skipped the pretense for once and instead of studying themselves indirectly, now they are studying themselves directly. Holy narcissism Batman. What is this absolute nonsense? They are literally studying themselves to praise their own work and give it meaning removed from its context...
  15. rvallee

    Neurological, Psychological, and Cognitive Manifestations of Long-COVID, 2021, Cascella & De Blasio

    This reads like a paper by someone who had to publish a paper, any paper, as part of some quota, and threw this together in an evening. Pretty much literally more all over the place than what I usually see on the long haulers sub-Reddit. The model of churning out vast quantities of papers with...
  16. rvallee

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    The NIH has published a funding announcement for more of the $1.15B initiative. It's tracked at https://recovercovid.org/funding. Notice of Special Interest (NOSI): Availability of Administrative Supplements for Research on Pathobiological Mechanisms of Post-Acute Sequelae of SARS-CoV-2...
  17. rvallee

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    GP could not ‘lift phone to make a call’ due to Covid illness https://www.independent.ie/irish-news/health/gp-could-not-lift-phone-to-make-a-call-due-to-covid-illness-41124661.html “Finally went back to work at the end of August, and in September, the fifth day back, I could not get out of bed...
  18. rvallee

    Qualitative study of the acceptability and feasibility of acceptance and commitment therapy for adolescents with [CFS], 2021, Crawley et al

    I usually defer to the famous Watergate quote, it fully applies: "the truth is, these guys are not very bright guys and things got out of hand". So far it works 100% of the time. I don't think memorizing textbooks fully qualifies as intelligence, though it can mimic it convincingly. It takes...
  19. rvallee

    Cochrane UK Consumer Champions: another step towards better patient and public involvement

    Ah, yes, Cochrane, so great at consumer involvement. Very great at making sure it never actually happens, at keeping it strictly performative. I think of Cochrane and consumer involvement, or patient engament, the same way I think of Exxon and things that are good for the environment.
  20. rvallee

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    This is mostly about a letter written by some NHS doctors saying they were failed, the health care system did not protect them from Long Covid. It doesn't place the proper context that this was all avoidable and predicted, health care managers acting surprised by this has long run out of...
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