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What would those be? There is nothing known about the biology of symptoms, all there is is association: this symptom is associated with this diagnosis or disease process. That's not an explanation. It's completely arbitrary, especially since it depends on perception of the disease, so that...

A holiday from what? From being disabled? From a dystopian nightmare that destroyed my life and all quality to it?

This tells us everything we need to know about how useless "fatigue scores" are. It's like using a broken thermometer and expecting to do chemistry research with it anyway. Makes zero sense for a group of professionals to pretend that fuzzy maths applied on guesstimates about a concept made...

Full title: Unexplained post-acute infection syndromes Authors: Jan Choutka, Viraj Jansari, Mady Hornig & Akiko Iwasaki Published: Nature, 18 May 2022 Abstract SARS-CoV-2 is not unique in its ability to cause post-acute sequelae; certain acute infections have long been associated with an...

Many Long Covid clinics are just as awful as the "fatigue" clinics. They're truly making their parents proud, achieve the same level of being offensively wrong.

Basically a way to turn the symptoms list patients bring into a format that will be accepted, rather than glanced then ignored? Interesting. Could be very useful. Obviously one of the main obstacles to achieving any progress is that over 90% of the illness is simply ignored, information thrown...

Ah, well, nevertheless. It sure would have been nice to have those by now. But I guess pretending those exist should keep working for a while, at least as long as no one expects anything out of this specialty. How could we possibly pass on the opportunity of using "have you tried not thinking...

That horse has stormed out of the barn a loooooong time ago. It's weird that people speak of things that have been happening for years as if they could be avoided in the future. Jaime Seltzer put it marvelously today, something like you can't predict the future if you're still negotiating with...

There is a US senate hearing today where Fauci was asked questions about LC, some mentions of how the $1.15B NIH program is going (not at all encouraging, they appear to be wasting the whole thing by relying on health records):

Wow, even by the usual standards, this is awful. Zero clue. I got curious WTH could this CSBS be and wow is this just terrible: The most urgent and immediate focus has been placed on identifying and developing effective therapeutic interventions during the acute phase of the illness; however...

Every time I see comments like this I see a setup for failure. A problem does not have to be come catastrophically unmanageable to be a problem. This is exactly like people saying healthcare services will be swamped from each wave, and they are, but since people aren't dying on the street in...

Bit more analysis on that: And unfortunately, some reporters have gotten the framing of "do not want job because of long-term sickness" and retained only the "do not want jobs" part:

In hindsight, building academia on the need to publish as many papers as possible, regardless of quality, may not have been the smartest of ideas.

What this shows, bizarrely, is that these healthcare professionals are completely baffled by the concept of illness, and genuinely cannot understand that asking sick people how they're doing will yield the expected response of: not great. As in literally the entire idea that being ill is a bad...

They won't admit they were wrong. At this point it must have to do with liability, as long as they don't admit they were wrong, ME can continue to be suppressed. There is precedent for class-action lawsuits about medical advice that continued after it was known to be wrong. Until it's admitted...

This is ominous. For years UK physicians said the guidelines bound them about ME. Turns out it's basically arbitrary and services just do whatever they feel like doing. It's frankly hard to find areas of healthcare that aren't massively broken. In Canada we don't really have national...

The asymmetry of bullshit in action. Once something wrong has gotten its legs on, it takes disproportionate efforts to slow it down before it can be replaced. It's sad that not only does it also apply in medicine, it seems to be especially strong because of the rigid hierarchical nature of...

LOL. "I'm going to continue blocking". Later on write tweet saying "Don't just block people". Amazing.

Says everything. Little chance this produces anything useful, or that they understand the basics of what's going on. It's not a freaking treatment anymore than avoiding smoke is a treatment for asthma. This whole paradigm of pragmatic trials is a useless mess, too many factors to take into...

GLOMAR. Figures. Would be useful to revisit this, in light of the official line having been (possibly) debunked. What matters anyway is that it was just an official lie.