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  1. rvallee

    Non-improvement in chronic fatigue syndrome: relation to activity patterns, uplifts and hassles, and autonomic dysfunction, 2022, Friedberg et al

    Google returns nothing for behavioral uplift, seems to be something they made up. Making stuff up is a very lousy alternative to science. Not that they can actually take any of those into account, all of this is still just doing fuzzy maths on loose guesstimates with a pre-approved conclusion...
  2. rvallee

    Long Covid in the media and social media 2022

    It's good that they're sounding the alarm about the horse possibly bolting out of the stable. But the horse has already smashed a hospital, taken a school hostage and is doing more mayhem that's all over social media already. But it's nice that they're sounding the alarm, having dismissed...
  3. rvallee

    A better but persistently low health status in women with fibromyalgia during the COVID-19 pandemic: a repeated ..., 2022, Koppert et al

    Well, yeah, it was loudly argued by the disabled community how the pandemic had made some things more accessible. It's actually remarkable that they'd miss this entirely, I'm sure this information was volunteered by the people they talked to. You scream at a wall and the wall responds "uh?"...
  4. rvallee

    Somatization in Adolescents With Persistent Symptoms After Concussion: A Retrospective Chart Review, 2022, Green et al

    That's not even a thing. It's explicitly a physician's judgment based on lack of information that has no validity beyond being someone's opinion about things they can't possibly know, it's as valid as a psychic "identifying" your karma, or spirit energy, or whatever. Being a physician does not...
  5. rvallee

    Mental health specialist video consultations for patients with somatic symptom disorder in primary care: protocol for a.., 2022, Haun et al

    Let's be honest, the fact that most patients object to this ideology has been discussed in the literature for many decades, over a century in fact. It was never a credible lie, it's basically an obsession and makes up two of the most common recipes in the genre: why don't patients accept our...
  6. rvallee

    Postexertional Malaise Syndrome?

    My vote is still on Catch22-Murphy syndrome: everything you do will punish you and everything that can punish you will, everything will be done wrong and go wrong. Still 100x a better than name than freaking chronic fatigue syndrome.
  7. rvallee

    Detection of Male Hypogonadism in Patients with Post COVID-19 Condition, 2022, Yamamoto et al

    Evidence mounts for an accumulation of relatively small damage all throughout the body. Injured organs all over, shrinking brain and now gonads. It's generally not huge damage, makes it easy to miss, but starting to think there could be something about what all this damage does, how much it...
  8. rvallee

    Long COVID occurrence in COVID-19 survivors, 2022, Sugiyama et al

    How much more of those are needed before the state of widespread denial finally ends? There's usually an implied follow-up to wait-and-see. Wait-and-not-care-regardless isn't what people expect out of medicine. And given how many observational studies there have been already, how can the NIH...
  9. rvallee

    Netflix "Afflicted" - ME included

    Doubtful it would be that big of a win, but I hope the producers are sued into bankruptcy, so they can never pull off something like this again. They knew what they were doing, they wanted to mock and bully sick people while promising they wouldn't. Promising fair treatment while explicitly...
  10. rvallee

    Psychological Predictors of Fibromyalgia Among High School Students, 2022, Hamdan-Mansour et al

    Using fuzzy maths on unreliable guesstimates of arbitrary concepts. Shmart. Those scores have no accuracy, let alone any specificity. They are as vague as they can be and most people respond to different interpretations of the question since the questions are so vague they can basically have all...
  11. rvallee

    The Role of Walking in the Relationship between Catastrophizing and Fatigue in Women with Fibromyalgia, 2022, Sanromán et al

    This is complete derp. The idea that you can completely detach the life experience of people, in this case pain and other symptoms, from their mental status and motivation is insane. They have all the answers they need right in their hands and they still produce complete derp. A healthcare...
  12. rvallee

    Molecular Hydrogen as a Medical Gas for the Treatment of Myalgic Encephalomyelitis/CFS: Possible Efficacy Based on a Literature Review, 2022, Hirano

    I'm not giving this many brain cells, seems very fishy, but does breathing H2 actually get through the lungs and diffuse in the blood? How? Then, what, it just acidifies the blood? Doesn't make much sense. OK that's enough brain cells for that.
  13. rvallee

    Long Covid in the media and social media 2022

    This is a bizarre article, very revisionist. It glosses over the fact that Mayo is very committed to all those mistakes and routinely treats chronic illness as psychogenic. It's a large organization so has many opinions but most of the claims in here are aspirational, what could be, but mostly...
  14. rvallee

    Long Covid in the media and social media 2022

    Interesting for the responses. For all the claims that we are a "small vocal minority", we never actually hear from the "large silent majority" that this claim alludes to.
  15. rvallee

    News from The Netherlands

    According to this, there is a motion to call for more awareness and research in Long Covid and the health minister is against it, that enough has been done already. The complete lack of any level of cooperation on this issue, every country for themselves, is absolutely bizarre. Scientific...
  16. rvallee

    MS reversed by transplanted immune cells that fight Epstein-Barr virus

    The article being paywalled, anyone know whether that trial was a lucky stroke that coincided with, or it it happened because of news of EBV being the likely cause of MS? Because that would be lightning speed, as in weeks. Serious trials of Long Covid drugs haven't even begun 2 years in...
  17. rvallee

    Health Sense article: Why deny patients with chronic fatigue syndrome treatments that can help?, 2022, by Peter White

    Sniping from the safety of ivory towers works fine when the crowd is thin and divided. Works very poorly when it masses up all the way to their floor. A low wail for help doesn't carry far, but make it a crowd and it's impossible not to hear. For sure the trope of a "small vocal minority" will...
  18. rvallee

    Bias due to a lack of blinding: a discussion

    I don't think that's fair. Some are demanding no methodology at all, we should just trust them. Many literally submitted that as a legitimate argument about the NICE guidelines, they don't need methodology, they know. There's something like homeopathic thinking behind this, the less methodology...
  19. rvallee

    Osteopathy and physiotherapy compared to physiotherapy alone on fatigue in long COVID: Study protocol for a pragmatic..., 2022, Curi et al

    What if there's a clown present in the room? Maybe it changes the whole psychodynamic of the vibrations of mindful quantum channels, and stuff? I demand this experiment be repeated with and without the presence of a certified clown, otherwise not all psychosocial confounding factors will have...
  20. rvallee

    Stuart Ritchie, science journalist, articles on science fraud and open science

    I don't know about that. Maybe just address the current policy of maximum quantity with zero consideration for quality? It's working exactly as designed: a tool for academic promotion that has almost nothing to do with scientific progress. Or, sure, go radical but changing an explicit standard...
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