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  1. rvallee

    USA: NIH National Institutes of Health news - latest ME/CFS webinar 14 Jan 2025

    I really like Nath. I think he's the right person in the right place. I'd really like to know why he's blocked from actually doing anything about it. What the hell is happening behind the scenes to create this impossible gridlock?
  2. rvallee

    The biology of coronavirus COVID-19 - including research and treatments

    Well this isn't true. Most didn't expect it, even though they clearly should have, making this a clear failure of expertise. Some did, mostly based on other coronaviruses, as this seems to be a feature of the family. But especially so, the strategy of maximum infections is guaranteed to lead to...
  3. rvallee

    Parkinson's actometers again

    Well that's awkward given another paper discussed today about somatic symptoms disorder where they explicitly claim that this kind of fluctuation is a clear positive sign of somatization, even when there is an identifiable cause. Well, it would be awkward if people cared about consistency. The...
  4. rvallee

    CBT repackaged or a novel treatment? The Lightning Process compared with UK specialist medical care for paediatric [CFS], 2021, Anderson, Parker et al

    When a known mafioso sits at a table and everyone greets them warmly, it may not be a group of mafiosos, but it's definitely a group that is comfortable with mafiosos. I'm definitely not comparing the researchers to mafiosos, but when scientists choose to work in cooperation with people who...
  5. rvallee

    Body Reprogramming: Reframing the Fibromyalgia narrative and providing an integrative therapeutic model, 2022, Fitzdonald Davies et al

    Oh there's going to be a few of those in the future, for all the "patient-hating charlatans" out there. They will end just the same.
  6. rvallee

    Supervised, individualised exercise reduces fatigue and improves strength and quality of life more than unsupervised home exercise.., 2022, Shah et al

    Effect appears trivial and confidence intervals make the claim very suspect, especially by getting worse at the 2nd end point. There are thousands of unaccountable factors with this much fuzziness. Academia seriously needs to crack down on what is an unmistakable pattern of wildly inflating the...
  7. rvallee

    Combined triple treatment of fibrin amyloid microclots and platelet pathology in individuals with Long COVID/ PACS..., 2021, Pretorius et al

    Moved post Interesting thread on thrombosis, how platelets working with neutrophils make an important part of the innate immune system, how more likely it is that there is a source for those microthromboses and microclots, which would make treatment like IVIG and apheresis unlikely to succeed...
  8. rvallee

    England footballer forced to take break because of fatigue

    There's starting to be quite a bit of evidence that myocarditis and/or pericarditis may be a factor here, perhaps impairing the damage repair progress with exertion leads to small weaknesses?
  9. rvallee

    Long Covid in the media and social media 2022

    (Buzzfeed news is separate from Buzzfeed, and sometimes produces quality journalism)
  10. rvallee

    Long Covid in the media and social media 2022

    Apparently, the CDC has closed up shop when it comes to answering questions from journalists. There was also a mention from a prominent LC advocate saying that the CDC is keeping quiet about LC because it's politically inconvenient to admit that the pandemic isn't over. This is blatant political...
  11. rvallee

    Requests for information/papers/sources/documentation

    Already many good answers but I think there are still some missing resources. Always good to expose this to newcomers, this stuff doesn't get a lot of visibility unless people seek it out.
  12. rvallee

    Functional neurological disorder: new subtypes and shared mechanisms, 2022, Hallett, Dworetzky, Stone et al

    My understanding of this word salad is that it is the patients who are developing a model of predictive coding about symptoms and blah blah blah. I don't think they're claiming they have a model, rather they have a claiming that building this (cognitive) model is part of somatization, it changes...
  13. rvallee

    Functional neurological disorder: new subtypes and shared mechanisms, 2022, Hallett, Dworetzky, Stone et al

    Notably absent: immunology. Those are all widely reported in LC. Literally all of those I see commonly reported: non-epileptic seizures, limb weakness and difficulty controlling movements, POTS obviously and of course brain fog. And I have no idea how they can seriously argue for "new subtypes"...
  14. rvallee

    Mental health specialist video consultations for patients with somatic symptom disorder in primary care: protocol for a.., 2022, Haun et al

    It should, according to the wild promises. If CBT worked, it would be massively useful to quit smoking and other habits like adhering to diets. It could also be very useful at disciplined behavior, for things like athletes and highly skilled professions. No one uses it for any of the intended...
  15. rvallee

    Prevalence and characteristics of somatic symptom disorder in the elderly in a community-based population:.., 2022, Wu et al

    This is the stuff that really should give people pause about the validity of this construct. It shows the utter silliness of the ideology. Sadly, it won't. This is an idea that should be rare, in the 1 in thousands. And they find it makes up a supermajority exactly in the population where a...
  16. rvallee

    Silent/soundproof living: tips and guides to achieve living in silence

    It's a luxury not everyone can enjoy but one of the fortunate finds I have made is a (hopefully) silent (enough) coffee grinder. I have been searching for this and they are typically very loud, some as high as 85dB, so basically out of the question. I was about to give this up and found one that...
  17. rvallee

    Silent/soundproof living: tips and guides to achieve living in silence

    I am always looking for silent/quiet versions of products and ways to reduce noise at home, and came upon this website dedicated to all sorts of tips, DIY guides and product recommendations for soundproof living. Since this is a common problem, I figured it could be a good starting point for a...
  18. rvallee

    The underlying sex differences in neuroendocrine adaptations relevant to Myalgic Encephalomyelitis Chronic Fatigue Syndrome, 2022, Thomas et al

    This is a good research avenue but it's not unique to ME and should be studied within the broader context of why chronic immune diseases affect women more (but not exclusively) than men, especially autoimmune diseases. Of course that requires accepting that the whole nonsense about dismissing...
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