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  1. rvallee

    “Dr. Ken Friedman and Dr. David Maughan – ME/CFS and Long Haul Covid Similarities and Ramifications” podcast

    One of the earliest arguments from our BPS overlords is precisely that they can't tell the difference, which to them means there isn't any. They seem to think it's a convincing argument, when actually it shows they clearly understand neither, and probably not much else. Ideology overrules both...
  2. rvallee

    Exercise Training in Post-COVID-19 Patients: The Need for a Multifactorial Protocol for a Multifactorial Pathophysiology, 2022, Cattadori et al

    Imagine literally not talking with or reading from or listening to a single person with LC. Because that's the only possible way to somehow be completely oblivious to how absurdly incompetent it is to propose the same thing that has failed from the start. They seem to take a completely naïve...
  3. rvallee

    Isoforms of soluble vascular endothelial growth factor in stress-related mental disorders, 2021, Wallensten et al

    By "stress-related mental disorders" they mean... essentially the ME criteria, framed slightly differently, with the modifier of a "identifiable stressor", except way more vague. So basically it means any illness not explained by a recognized diagnosis. I genuinely have no idea how research...
  4. rvallee

    Cochrane review: Non-pharmacological interventions for somatoform disorders and medically unexplained physical symptoms (MUPS) in adults. 2014

    If you de-medicalize harms, no medical harms occurred. 100% success if you define success as not finding failure, by not allowing it to be found. It's infallible!
  5. rvallee

    Most healthcare interventions tested in Cochrane Reviews are not effective according to high quality evidence: a systematic re..., 2022, Schmidt et al

    Probably needs a mountain of salt, as this review includes John Ioannidis, who has been critical of Cochrane for all the wrong reasons. Although none of this is a surprise to us, the few Cochrane reviews published on subject matters that are known to this forum all fail to meet minimal...
  6. rvallee

    Most healthcare interventions tested in Cochrane Reviews are not effective according to high quality evidence: a systematic re..., 2022, Schmidt et al

    Full title: Most healthcare interventions tested in Cochrane Reviews are not effective according to high quality evidence: a systematic review and meta-analysis https://www.sciencedirect.com/science/article/abs/pii/S0895435622001007 Highlights • In this large sample of 1567 interventions...
  7. rvallee

    Long Covid in the media and social media 2022

    I see sporadic discussion of this. One particular way is from LC deniers who want to attribute everything to psychology and so focus obsessively on previous "mental health" worsening, but since it applies to known physical disabilities, and how so much of "mental health" labels are actually...
  8. rvallee

    Diagnosis of Functional Weakness and Functional Gait Disorders in Children and Adolescents, 2022, West and Shah

    This obsession with linearity is weird. The idea that a disease should follow a linear script and never deviate from it has no basis in reality, that every step should either be predictable, or assumed to be a positive feature of some imagined principle is completely irrational. Medicine is...
  9. rvallee

    Functional Neurological Disorders in Children – A Historical Perspective, 2022, Freedman

    It's boom time in the industry, they're selling the hottest (fashionable) cakes.
  10. rvallee

    Reduced Cell Surface Levels of C-C Chemokine Receptor 5 and Immunosuppression in Long Coronavirus Disease 2019 Syndrome, 2022, Yang et al

    To clarify: the interest I see is mostly about the immune downregulation it implies and the CCR5 receptor, rather than the drug. But this is above my tiny understanding of biology.
  11. rvallee

    News from The Netherlands

    Probably. But you probably have to be sick for that, not "sick". If it's rejected as a disease, by definition it can't be an occupational disease.
  12. rvallee

    News from The Netherlands

    This seems excessive even in the worst case. If true, this is incredible, and unsustainable. OK this is clarified in a response: it's 40% of healthcare professionals who developed Long Covid. So 40% of healthcare workers who got LC from the first wave have been fired.
  13. rvallee

    Reduced Cell Surface Levels of C-C Chemokine Receptor 5 and Immunosuppression in Long Coronavirus Disease 2019 Syndrome, 2022, Yang et al

    In an exploratory trial treating “long COVID” with the CCR5-binding antibody leronlimab, we observed significantly increased blood cell surface CCR5 in treated symptomatic responders but not in nonresponders or placebo-treated participants. These findings suggest an unexpected mechanism of...
  14. rvallee

    Hidden Within Us - A Radical New Understanding of the Mind-Body Connection (Book by Dr Samuel Mann)

    The problem with that is: what's stress? A quick look at various definitions and it's something like "the body's response to threats". It's one of the most vague concepts that's ever been put to such widespread use. It basically means anything and everything, especially as it's so commonly...
  15. rvallee

    Patient-led Research Collaborative and Fund for Long COVID

    Moved post. This thread collects together several threads on the same topic. Cryptocurrency investors (well, in this case inventor) are contributing more to researching a major health crisis than all medical institutions combined. The UK's NIHR funding was mostly wasted on pet projects and the...
  16. rvallee

    Long Covid in the media and social media 2022

    Oh, no "almost" there. It is as clear and blatant dereliction of duty as it gets, entirely debunked and continuing only by coercive statutory force fueled by ideology. The consequences are the same as recommending that we should end everything about Parkinson's disease and re-classify it as a...
  17. rvallee

    Long COVID Shared Medical Appointments: Lifestyle and Mind-Body Medicine With Peer Support, 2022,

    The most annoying thing about this is that this is all stuff the patient community figured out and essentially taught to medical professionals. All this stuff was discussed in patient forums within the first months, mostly because of fellow chronically ill folks jumping in to help. All this is...
  18. rvallee

    The Relationship between Physical Activity and Long COVID: A Cross-Sectional Study, 2022, Wright et al

    Ideology sure is a powerful drug. How does that even follow? Make any sense at all? Do they think trying twice as hard will do it? Just keep trying the same key for the wrong lock, maybe one day the lock will just give up, have pity and open up anyway. This is an infinite loop of failure. The...
  19. rvallee

    UK House of Lords/ House of Commons - relevant people and questions

    How often does a response over NICE guidelines includes this line? Because it's always there for the ME guidelines, obviously admitting they are not enforcing anything. And since enforcement is 99% of any system of rules... Maybe the questions need to include the fact that the services are...
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