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  1. NelliePledge

    A new support pack for anyone with ME/CFS going to hospital (MEA)

    I couldn’t see any reference to nutrition in the CDC page. Other than that It shows something succinct can be produced though.
  2. NelliePledge

    What do people want me to ask Sonya Chowdhury on Friday

    Anything about current clinics/community based services only picks up a minority of the picture. The ICBs who do nothing should be engaged to ask how they consider the needs of people with ME/cFS are currently being addressed.
  3. NelliePledge

    Which solution to functional somatic disorder: The ACSEPT program 2024

    :D Indeed the acronym is unlikely to generate credibility among anglophones
  4. NelliePledge

    Was there a gap between trigger and onset of your ME/CFS?

    Yes. I didn’t vote https://www.s4me.info/threads/was-there-a-gap-between-trigger-and-onset-of-your-me-cfs.40505/page-2#post-557531 but I think comments about how difficult/impossible for some are still relevant
  5. NelliePledge

    Was there a gap between trigger and onset of your ME/CFS?

    True Peter. I had Gastroenteritis and then Chicken pox within a month 15 years before ME/CFS symptoms started. It might have contributed but who knows.
  6. NelliePledge

    Petition: S4ME 2023 - Cochrane: Withdraw the harmful 2019 Exercise therapy for CFS review

    The petition has now reached 12,001 signatures :thumbup:
  7. NelliePledge

    Was there a gap between trigger and onset of your ME/CFS?

    If I got ME/CFS from a virus it was a normal level cold/flu/laryngitis or gastro. I have no idea. From early 40s my health gradually got worse with regular episodes of such illnesses but also ok spells. Then at some point in early 50s I was either poorly enough to be off work or felt like I was...
  8. NelliePledge

    NHS England - E-learning Modules on ME/CFS

    tradition being cosy for BACME of course pretty uncosy for us
  9. NelliePledge

    News from Germany

    Kassenarztliche vereiningung = health insurers
  10. NelliePledge

    News from Austria and Switzerland

    Did they not have any patient input into the study design?
  11. NelliePledge

    Eight-Week Supplementation With Bifidobacterium lactis HN019 and Functional Constipation, 2024, Jing Cheng et al

    Functional constipation https://en.wikipedia.org/wiki/Functional_constipation
  12. NelliePledge

    UK:Letter to all clinicians and services from the CPCS Professional Society

    CPCS prof society = BACME wannabe for LC
  13. NelliePledge

    Needing to lie flat

    When I moved 5 years ago I went to a local furniture manufacturer’s factory shop to buy a sofa. I insisted on lying down to make sure it was long enough to stretch out
  14. NelliePledge

    News from the USA, United States of America

    No nobody whatsoever even imagined that viruses cause ongoing illness - completely new phenomenon :whistle:
  15. NelliePledge

    Post COVID-19 syndrome among 5248 healthcare workers in England: longitudinal findings from NHS CHECK, 2024, Dempsey et al

    Madan et al MECFS guidelines for occupational health 2006 https://www.s4me.info/threads/occupational-aspects-of-the-management-of-chronic-fatigue-syndrome-a-national-guideline-2006.2604/
  16. NelliePledge

    Post COVID-19 syndrome among 5248 healthcare workers in England: longitudinal findings from NHS CHECK, 2024, Dempsey et al

    From 2021 on long covid https://www.s4me.info/threads/supporting-patients-with-long-covid-return-to-work-2021-madan-briggs-and-chew-graham.23059/
  17. NelliePledge

    Trial Report Development of an ME/CFS Online Screener, 2024, Cathey & Jason

    I wondered what an online screener was it doesn’t give any indication what the severity levels represent
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