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  1. Sean

    Paul Garner on Long Covid and ME/CFS - BMJ articles and other media.

    Cancelled people don't get access to the media. This is why we must demand a proper inquiry into this endless flow of vile smears against us. I knew there would be a backlash against NICE, but I really did not think it was going to be so dirty and vicious. Is there nobody in the UK parliament...
  2. Sean

    News from Aotearoa/New Zealand and the Pacific Islands

    What fresh hell is this? How many heads does this hydra have?
  3. Sean

    News from Aotearoa/New Zealand and the Pacific Islands

    Endless, brazen repetition of a lie unjustified claim is a cornerstone of propaganda. Unfortunately it really does work. Preferably before we are all dead would be nice too.
  4. Sean

    Long Covid in the media and social media 2023

    :speechless:
  5. Sean

    News from Germany

    Yes, the poor darlings are being so cancelled that one of their most senior fellow travelers is now a commissioner for the NHS. So cancelled that they continue to occupy influential senior positions on the boards of peer-review journals, in medical education, clinical guidelines, and public and...
  6. Sean

    Finland: 2023 Helsinki University Long Covid conference

    Never underestimate the power of a seductive fairy tale, especially when it offers it's adherents much power, glory, and income.
  7. Sean

    Prevalence of autistic traits in functional neurological disorder and relationship to alexithymia and psychiatric comorbidity 2023 Cole et al

    I often notice small sounds when others do not (noise intolerance will check that) As will somebody being merely more observant than average. Or more musical. Sound is very important to me. I listen very carefully to the world around me. Always have. I am usually the first person to hear a...
  8. Sean

    Sweden: termination of the contract for specialist medical care for ME in Stockholm, including the Bragée ME Center, 2023

    Psychiatry will be strengthened to deal with patients in need of specialist care. Not learning much, are they.
  9. Sean

    Australia: 2022 Parliamentary inquiry into Long Covid and repeated covid infections - report issued April 2023

    The bitter irony being that this approach can only end up far more costly on every possible measure than if they had simply said we got nothing to offer. At least then we could have a realistic place from which to start a genuinely productive research program. But then that is an admission that...
  10. Sean

    Australia: 2022 Parliamentary inquiry into Long Covid and repeated covid infections - report issued April 2023

    not just from a GP but also a team of specialists – including physiotherapists and psychologists. Interesting how no other specialty is ever named but physiotherapists and psychologists. I wonder why that is.
  11. Sean

    Dynamic modeling of experience sampling methodology data reveals large heterogeneity in [BPS] factors associated w/persistent fatigue... 2023 Nijhof

    Conclusions The heterogeneity found in biopsychosocial factors associated with fatigue underlines that persistent fatigue stems from a complex interplay between biopsychosocial factors. It does no such thing. The present findings support the need for personalized treatment of persistent...
  12. Sean

    Article: We Might Have Long Covid All Wrong (covers FND,ME/CFS,includes Sharpe,Garner, Carson and more).

    And terrified of the consequences of trying to discuss it with doctors.
  13. Sean

    The pain psychologist Rachel Zoffness expains why pain is a “biopsychosocial phenomenon“…. Ezra Klein, New York Times columnist

    I treat a lot of chronic fatigue syndrome and resting is an important part of recovery, and also getting back to life is an important part of recovery, depending on people’s motivations. And there it is, the perfect get out of jail free card. How can a patient prove they are sufficiently...
  14. Sean

    Australia: 2022 Parliamentary inquiry into Long Covid and repeated covid infections - report issued April 2023

    At a federal parliamentary inquiry into long COVID on Monday, experts said patients with the disease often had a wide range of symptoms that needed complex, careful management, not just from a GP but also a team of specialists – including physiotherapists and psychologists. And the evidence for...
  15. Sean

    Australia: 2022 Parliamentary inquiry into Long Covid and repeated covid infections - report issued April 2023

    And other relevant departments/services, such as Centrelink (for ME).
  16. Sean

    Australia: 2022 Parliamentary inquiry into Long Covid and repeated covid infections - report issued April 2023

    Worth keeping in mind that this is a parliamentary inquiry, not government policy. It is supposed to inform policy, but is not policy itself. Government is under no obligation to accept all or any of an inquiry's recommendations. They usually do not accept all of them. What comes out of the...
  17. Sean

    Survey analysis of 27 people who recovered from COVID vaccine injury and Long COVID

    Not much joy for acute Covid either in this large study, fresh off the press: "These findings do not support the use of ivermectin in patients with mild to moderate COVID-19." Effect of Higher-Dose Ivermectin for 6 Days vs Placebo on Time to Sustained Recovery in Outpatients With COVID-19: A...
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