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"First they came for the socialists, and I did not speak out – because I was not a socialist. Then they came for the trade unionists, and I did not speak out – because I was not a trade unionist. Then they came for the Jews, and I did not speak out – because I was not a Jew. Then they came...

I don't think Hilda Bastian is the problem at Cochrane.

Well it would be, if you could get them on prescription. But doctors here are very reluctant to hand them out, and usually only do so on an occasional short-term basis. They get the health bureaucracy on their back otherwise. Add in the whole problem with how ME/CFS is perceived, and you can...

My understanding is that problem can be largely avoided by taking them with food. Is that correct?

But only 8mg with 500mg of paracetemol. Even that is prescription only in Australia now.

To date, there is no single treatment that can cure every patient with ME/CFS, To date, there is no specific treatment for ME/CFS.

It is almost like they are rubbing it in our faces and daring to us to do anything about it. 'Look at what we can get away with. Again. Ha ha ha. Suckers.'

Plain Stevia is my other sweetener. I use it in my breakfast (either porridge or steamed brown rice, with banana).

Gradually increasing physical activity or "pacing" as tolerated, The deliberate dishonest conflation of GET and pacing continues on unabated.

Practitioners were encouraged to monitor the progress of participants during and after exercise sessions in order to ensure that exercise intensity and volume were within individuals’ capabilities and did not cause undue persistent fatigue or other problems. Encouraged? Hmm. :grumpy: How...

A sugar replacement called erythritol – used to add bulk or sweeten stevia,... – has been linked to blood clotting, stroke, heart attack and death, according to a new study. Argh. That mix is one of the two sweeteners I use. Is there any sweetener that won't kill us?

It is. It is also for unethical people to wilfully misinterpret one's reactions, no matter what they are. +1 They think it is all the same underlying process and effect. Which is why they are so comfortable changing labels and the sales pitch so often. That it is just a matter of figuring out...

And sometimes a lot worse than that. Also, while that statement sounds good at first glance, we know from long and bitter experience how that all too often is a softening up to plea for more BPS (i.e. more psycho-social).

Exactly. The BPS stalwarts have not exactly been restrained in their use of inflammatory provocative language against us. Deliberately so, on many occasions, IMHO, and from day one. They know what they are doing. They bear the vast bulk of responsibility for the fractious nature of the...

@hibiscuswahine It is only the first paragraph you want quoted?

Reminds of how one patient characterised it: ME took my health away, but the medical profession took my life away.

Which is where the adequate control of variables thing comes in. That is how we distinguish causal relations from mere correlations. You know, actual science.

Yep. They still don't have clear definitions for depression and anxiety. How they can be considered stable safe diagnoses escapes me.

For all we know they don't even exist. I would not put it past some people to completely fabricate the whole thing.

Less than 24 hours later.