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  1. Sean

    Long Covid in the media and social media 2023

    Yep, it isn't patients who are out of touch with reality.
  2. Sean

    Chronic Fatigue Syndrome/Myalgic Encephalomyelitis: A philosophical investigation, 2021, Byrne (thesis)

    If my brief experience with a philosophy department at a major Australian uni in the late 80s (during the heyday of post-modernism) is anything to go by, they have always been this way.
  3. Sean

    UK clinic: Harley Therapy

    The NHS estimates that 45% of all GP appointments in the UK qualify as for ‘medically unexplained symptoms’ (MUS). Bullshit. Straight power grab on the basis of nothing at all. Since 2018, the NHS has updated ME’s classification from a ‘multi system disorder’ to a medical disorder of the...
  4. Sean

    Functional somatic disorders, their subtypes, and their association with self-rated health in the German general population 2023 Sattel et al

    Functional somatic disorders (FSD) Another cheesy acronym to add to the already large pile of games with words. Do they really think that if they just get the right label it will all click into place? Or is this just trying to continue the cover up of their utter failure to deliver anything of...
  5. Sean

    A general thread on the PACE trial!

    A possible reason is that the 'definitive' study testing one's pet theory did not deliver as one would have wished and one would wish to put some distance between it and oneself.
  6. Sean

    GDF15 linked to maternal risk of nausea and vomiting during pregnancy 2023 Fejzo et al (hyperemesis gravidarum - morning sickness in pregnancy)

    I can't get this out of my head. It is horrifying. If you wanted to make an already very bad, indeed potentially fatal, situation a lot worse this is how to do it. Even if it doesn't kill the patient it is going to do horrendous and probably long-term harm to both her physical and (ironically)...
  7. Sean

    GDF15 linked to maternal risk of nausea and vomiting during pregnancy 2023 Fejzo et al (hyperemesis gravidarum - morning sickness in pregnancy)

    Gosh, aren't women in the 21st century so lucky that kind of attitude no longer exists, and that being female is no longer seen as predisposing to hysterical conversion. Oh wait, it does... :mad:
  8. Sean

    Post-exertional malaise among people with long COVID compared to myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS), 2023, Bateman et al

    This may be due to the newness of Long COVID, not knowing what exertional intolerance is or how to manage it. Almost certainly.
  9. Sean

    UK: Disability benefits (UC, ESA and PIP) - news and updates 2023 (including government plans to scrap the work capability assessment)

    Mr Hunt’s move to scrap the Work Capability Assessment, touted as “the biggest reform to the welfare system in a decade”, is intended to allow disabled people to work without losing their benefits. On the face of it that is a good idea. One of the big issues the disabled face is how punitive...
  10. Sean

    Independent advisory group for the full update of the Cochrane review on exercise therapy and ME/CFS (2020), led by Hilda Bastian

    Yep, the stench from this rotting carcass is now overwhelming and undeniable. Dig a deep trench and bury it. The Cochrane model has clearly failed at its claimed purpose – to provide unbiased, high quality technical assessments in medicine.
  11. Sean

    Central sensitisation theory - discussion thread

    Asking the right question is where good science starts.
  12. Sean

    A Package Of Smartphone & Sensor-Based Objective Measurement Tools For Physical and Social Exertional...for Illness-limiting Capacities, 2023, Mahmood

    I hope they are factoring in the critical variable of footwear type and design. In particular a raised heel, so common in footwear (i.e. zero life v. non-zero lift). Not to mention a proper fit, in particular the length-width ratio of the foot, what we used to call fractional fittings. My feet...
  13. Sean

    Canada: Long Covid Web

    Post-COVID Condition (PPC) Coz there just isn't enough new names and acronyms in play already. :facepalm: Slick website. ––––––––––– Difficult to see how things are going to improve, especially in clinical care, until methodological standards are lifted to a satisfactory minimum, meaning...
  14. Sean

    Towards a Better Understanding of the Complexities of Myalgic Encephalomyelitis/Chronic Fatigue Syndrome and Long COVID 2023,Tate et al

    Even if the underlying pathology was exactly the same in all patients, there would still be at least some differentiation in symptom presentation just on the basis of normal non-pathological variation in how individuals generally experience, interpret, and describe the world.
  15. Sean

    Who is Simon Wessely?

    I hope that is true.
  16. Sean

    An airway-to-brain sensory pathway mediates influenza-induced sickness 2023 Bin et al

    Technically a (variable threshold) noise gate. It is a potentially useful analogy, I think. If so, then the question is whether the noise gate mechanism itself is defective, or is it working properly but the signal it has to deal with has become too strong and/or distorted, and is now outside...
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