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  1. Sean

    Online Health Communities in Controversy over ME/CFS and Long Covid, 2023, Jackson

    "and deinstitutionalisation of a position requires very convincing argumentation.” Such as it is wrong and doing harm?
  2. Sean

    Clinical Effectiveness and Cost-Effectiveness of Supported Mindfulness-Based Cognitive Therapy Self-help Compared With Supported CBT.. 2023 Strauss

    The pile of cute acronyms just keeps on growing. This branch of the profession clearly has a very serious and treatment resistant case of Acronym Proliferation Disorder. *sigh*
  3. Sean

    High Perceived Stress and Low Self-Efficacy are Associated with Functional Somatic Disorders: The DanFunD Study, 2023, Fink et al

    So all those claims about central role of psychological factors, and indeed that the 'disorder' is psychosomatic, that you have been making up to now have been based on...? When are these guys going to do some research on their 'faulty perceptions'?
  4. Sean

    Who is Simon Wessely?

    Said before, saying it again: I think it is clear now that Wessely has a profoundly need to deny the organic morbidity and mortality of human existence, presumably including his own. I like the author's style. :D
  5. Sean

    FNDs after COVID-19 and SARS-CoV-2 vaccines: a national multicentre observational study 2023 Alonso-Canovas et al

    As long as it is useful to disease deniers*. Then, when it has been exposed and discredited, they will just invent a new label, with a new sales pitch, and new faces promoting it, and off we go again. (*Maybe a useful term to throw back at them when they accuse us of being mental illness...
  6. Sean

    Finland: 2023 Helsinki University Long Covid conference

    One possible good out of this conference is that it might indicate how the BPS club is becoming more insular and isolated from mainstream medicine, and irrelevant. Having them corralled off to the side like that would help make them readily identifiable to the rest of the world so it can keep a...
  7. Sean

    Traumatic brain injury - similarities with and differences to ME/CFS, including PEM

    I used to eat a lot of fruit but have a lot less now, after learning about the issues with fructose. Try to stick to the recommended 1-2 pieces a day, and shift the balance towards more vegetables. Not always easy with lots of delicious tropical fruits available here, and often quite cheap...
  8. Sean

    Functional Neurological Disorder is a Feminist Issue 2023, McLoughlin, Chalder et al

    "I sit on a man's back, choking him, and making him carry me, and yet assure myself and others that I am very sorry for him and wish to ease his lot by any means possible, except getting off his back." Leo Tolstoy, Writings on Civil Disobedience and Nonviolence
  9. Sean

    Finland: 2023 Helsinki University Long Covid conference

    NICE didn't do that, you guys did it to yourselves with the "methods and procedures that [you] have developed over 30 years". NICE, and patients, simply pointed that out. Guilty as charged, m'lord. And proud of it. I give them credit for taking ownership of those methods and procedures.
  10. Sean

    Functional Neurological Disorder is a Feminist Issue 2023, McLoughlin, Chalder et al

    Because they don't care. And why would they, given they just keep getting away with, and indeed rewarded for it. How many of their senior ranks have lost their clinical, academic, or advisory jobs, or even had a demotion, over any of this? Their behaviour post-NICE, including with Long Covid...
  11. Sean

    Functional Neurological Disorder is a Feminist Issue 2023, McLoughlin, Chalder et al

    Thanks for that, @bobbler From the link [bolding mine]:
  12. Sean

    Ordeals and the Empathy Gap

    I have had a few full assessments, but nothing at all for a bit over a decade (touch wood). Given my age and that it is only about 7-8 years until I hit the normal retirement pension age, the length of time I have been sick and on the disability pension, and the realistic prospects of any...
  13. Sean

    Functional Neurological Disorder is a Feminist Issue 2023, McLoughlin, Chalder et al

    IIRC, Atwood has said that she derived The Handmaiden's Tale from history. Not in the more direct and only somewhat fictionalised sense. But rather in the more general sense that none of what she was warning about was historically unprecedented or fictional, that this kind of stuff had happened...
  14. Sean

    Functional Neurological Disorder is a Feminist Issue 2023, McLoughlin, Chalder et al

    Including on the health and stamina front. Which is a bitter irony.
  15. Sean

    Long Covid in the media and social media 2023

    For those using Firefox browser... I just discovered this extension that automates it for you, and it is also fully open source. https://addons.mozilla.org/en-US/firefox/addon/old-reddit-redirect/
  16. Sean

    Reflections on Patient Engagement by Patient Partners: How it can go Wrong 2023 Richards, Poirier et al

    Authority rarely, if ever, willingly hands over power. Mostly it has to be taken from them. Especially when their hold on it is not legitimate in the first place.
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