Search results

  1. Sean

    UK:ME Association funds research for a new clinical assessment toolkit in NHS ME/CFS specialist services, 2023

    Maybe it is just me, but I have never found a "baseline". I don't think it exists, it is just too variable, and any approach based on it is not going to work. Learning to generally reduce PEM (symptom exacerbation) is not the same as finding and working with a reliable predictable baseline. The...
  2. Sean

    Rice cookers?

    By volume (for dry rice): White Basmati rice - 1 part rice, 1.5 parts water. Brown Basmati rice - 1 part rice, 2 parts water. Cold water.
  3. Sean

    Petition: S4ME 2023 - Cochrane: Withdraw the harmful 2019 Exercise therapy for CFS review

    Particularly in light of the fact that they don't really seem to be grasping the core problem of methodology, or even want to.
  4. Sean

    Clinical effectiveness of an online group physical & mental health rehab programme for post-covid-19 condition REGAIN study, 2024, McGregor+

    it is the first time a randomised trial – the best medical evidence What about the critical controlled bit? You know, as in randomised controlled trial? Randomisation is just one of the elements of adequate control, it is not sufficient on its own. Kind of important. Control of the relevant...
  5. Sean

    Rice cookers?

    Main ones are a 1 litre Pyrex jug with a plate on it, or a ceramic pot with a lid. The key to steaming rice is in the details. The water rice ratio, the type of rice, how tight fitting the lid is, the heat source. Basically just fine tuning your particular set up. +1 Laundry detergent is...
  6. Sean

    From Software to Hardware: A Case Series of Functional Neurological Symptoms and Cerebrovascular Disease 2024 Coebergh, Edwards et al

    [rant on] We are criticising the FND concept and the people who impose it, not those who have foisted upon them. I have every sympathy for those patients. Nobody is saying they are not having serious and very real health problems. I dare I suggest that we in the ME world are among the very few...
  7. Sean

    Rice cookers?

    I have been steaming rice manually since I was a kid. Now a master at doing it in the microwave. I don't find rice cookers have much advantage for personal use. Probably of value for large families or restaurants. To me it is just another thing to buy and store. Cleaning the pot is dead easy...
  8. Sean

    Trial Report Can a consensus occur on a research case definition for ME/CFS?, 2024, Jason

    I think we are at a point where we don't have enough empirical data to make much progress on the definition, for now.
  9. Sean

    Opinion Inheriting discriminatory socio-political landscapes as ‘undeserving’ disabled people: legacy of common health problems & future for LC, 2024, Hunt

    It is the UK version of the repressive Chinese social credit policy. So much for the British sense of fair play.
  10. Sean

    Who is Simon Wessely?

    Wessely will never retire. He will go his grave defending and expanding his empire, denying any serious wrong doing, and smearing his critics, especially if they are patients who are correct.
  11. Sean

    Opinion Inheriting discriminatory socio-political landscapes as ‘undeserving’ disabled people: legacy of common health problems & future for LC, 2024, Hunt

    Jeebus, that is brutal. But not surprising. The biopsychosocial school have serious blood on their hands, and it is about to get a lot worse, if this stuff gets through.
  12. Sean

    Royal College of Anaesthetists and ME Association: leaflet on ME/CFS Implications for Anaesthesia

    Adverse consequences from anaesthesia gone wrong are usually immediate and definite. There is a clear causal and dose-response relationship.
  13. Sean

    Review Aetiological Understanding of Fibromyalgia, IBS, CFS and Classificatory Analogues: A Systematic Umbrella Review, 2023, Rosmalen et al

    While imputing it to the thinking of others, criticising others' models on that basis, and describing their own approach as integrative, going beyond the 'mind-body dualism'. If the software-hardware analogy is not the epitome of dualistic thinking, I don't know what is.
  14. Sean

    The Chrysalis Effect

    +1 My guess they are being allowed in, even invited in, as just variations on the placebo effect, which is "one of the most powerful interventions we have", according to Sir Simon and others. If so, then clearly they think that all that matters is finding a form of placebo that is acceptable...
  15. Sean

    Clinical neurophysiology of functional motor disorders: IFCN Handbook Chapter 2024 Edwards et al

    "In general terms, FND is a disorder where the primary problem appears to be one of accessing or controlling the body normally, despite normal motivation and normal basic function of the nervous system." So where is the Functional Disorder bit? Not to mention the lack of that critical...
  16. Sean

    Trial Report Can a consensus occur on a research case definition for ME/CFS?, 2024, Jason

    I think OI (or unstable hemodynamics generally) is a major issue in ME. I would call it a core feature of my experience with it, that has been continuously present and important from day one. Also not sure that 'symptom' is the right word for PEM. It is more a feature than a symptom, or maybe a...
  17. Sean

    Harnessing Placebo Effects for the Treatment of Functional Cognitive Disorder: A Feasibility Pilot Study 2024 Burke, Perez et al

    @bobbler Psychosomatics is clearly the hill that the psych world has decided to sacrifice its reputation on. Not to mention its patients. Eventually the PACE authors were reduced to describing the statistically and/or clinically insignificant results as showing that the trial participants...
  18. Sean

    Cytokines IL1β, IL6, TNFα & serum cortisol may not constitute reliable biomarkers to identify [PASC], 2024, Fleischer, Kleinschnitz et al.

    Indeed. It is clear that one of their current strategies is to try rewriting history to make out that the BPS view is the underdog and a 'new BPS approach' is needed after the 'long dominant biomedical approach' has failed. There was another one of these pieces of nonsense late last year...
Back
Top Bottom