Maybe it is just me, but I have never found a "baseline". I don't think it exists, it is just too variable, and any approach based on it is not going to work.
Learning to generally reduce PEM (symptom exacerbation) is not the same as finding and working with a reliable predictable baseline. The...
it is the first time a randomised trial – the best medical evidence
What about the critical controlled bit? You know, as in randomised controlled trial? Randomisation is just one of the elements of adequate control, it is not sufficient on its own.
Kind of important. Control of the relevant...
Main ones are a 1 litre Pyrex jug with a plate on it, or a ceramic pot with a lid. The key to steaming rice is in the details. The water rice ratio, the type of rice, how tight fitting the lid is, the heat source. Basically just fine tuning your particular set up.
+1
Laundry detergent is...
[rant on]
We are criticising the FND concept and the people who impose it, not those who have foisted upon them.
I have every sympathy for those patients. Nobody is saying they are not having serious and very real health problems. I dare I suggest that we in the ME world are among the very few...
I have been steaming rice manually since I was a kid. Now a master at doing it in the microwave.
I don't find rice cookers have much advantage for personal use. Probably of value for large families or restaurants. To me it is just another thing to buy and store.
Cleaning the pot is dead easy...
Wessely will never retire. He will go his grave defending and expanding his empire, denying any serious wrong doing, and smearing his critics, especially if they are patients who are correct.
Jeebus, that is brutal. But not surprising.
The biopsychosocial school have serious blood on their hands, and it is about to get a lot worse, if this stuff gets through.
While imputing it to the thinking of others, criticising others' models on that basis, and describing their own approach as integrative, going beyond the 'mind-body dualism'.
If the software-hardware analogy is not the epitome of dualistic thinking, I don't know what is.
+1
My guess they are being allowed in, even invited in, as just variations on the placebo effect, which is "one of the most powerful interventions we have", according to Sir Simon and others.
If so, then clearly they think that all that matters is finding a form of placebo that is acceptable...
"In general terms, FND is a disorder where the primary problem appears to be one of accessing or controlling the body normally, despite normal motivation and normal basic function of the nervous system."
So where is the Functional Disorder bit?
Not to mention the lack of that critical...
I think OI (or unstable hemodynamics generally) is a major issue in ME. I would call it a core feature of my experience with it, that has been continuously present and important from day one.
Also not sure that 'symptom' is the right word for PEM. It is more a feature than a symptom, or maybe a...
@bobbler
Psychosomatics is clearly the hill that the psych world has decided to sacrifice its reputation on. Not to mention its patients.
Eventually the PACE authors were reduced to describing the statistically and/or clinically insignificant results as showing that the trial participants...
Indeed.
It is clear that one of their current strategies is to try rewriting history to make out that the BPS view is the underdog and a 'new BPS approach' is needed after the 'long dominant biomedical approach' has failed.
There was another one of these pieces of nonsense late last year...
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