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Should you maybe respect her wish to not publicize the presenter? If you're trying to keep a productive dialogue with her, it won't help if you ignore that request. Maybe I'm misunderstanding something since you censored the other name. Edit: This came across pretty accusatory, sorry about that.

If it turns out risk of ME or some other chronic illness is increased by chemicals which circulate in the blood, then maybe some modern day bloodletting is in order: Effect of Plasma and Blood Donations on Levels of Perfluoroalkyl and Polyfluoroalkyl Substances in Firefighters in Australia: A...

I decided to switch to essential oils as the odor, so that it can actually dissolve evenly in the solvent. And for the solvent, I used some fractionated coconut oil from Walmart (totally odorless to my nose). I tried getting a rough idea of the concentration that I can smell, but I feel like I...

Yeah, looking at the actual study, I think this is the extent of testing performed one or more days post-CPET: And no meaningful differences from the above: Cortisol was only tested one hour later.

Did they completely ignore PEM? From what I recall of the symposium - though I don't have the energy to seek out where in the video they said it - they used a 1-day CPET then tested biomarkers to see what abnormalities arose the next day.

MIT Maestro Study, currently recruiting "We intend to probe the phenomenon of incomplete recovery by conducting observational, prospective research on 300 participants in 5 groups with 60 participants in each group. These include: Healthy Volunteers, Acute Lyme (< 4 wks), Chronic Lyme (> 1 yr)...

Merged thread PR Newswire: MIT Selects Movano Health for Groundbreaking Study on Long COVID and Chronic Lyme Disease MIT Selects Movano Health for Groundbreaking Study on Long COVID and Chronic Lyme Disease Movano Press Release, 10 June 2024

https://www.meresearch.org.uk/project-update-from-dr-proal/ "Dr Amy Proal from PolyBio Research Foundation recently updated us on the progress of her project searching for viruses in tissue and nerve samples from people with ME/CFS. This project was funded by ME Research UK with the financial...

Sorry @mango for taking your video posting job this week! AI generated summary: "The video discusses the lab's top 8 research priorities for the second half of 2024: 1. Botanical trial for Gulf War Illness: - Remote trial looking at curcumin, stinging nettle, and R-lipoic acid - Open...

From Jarred Younger's weekly YouTube update, concerning pollution:

It doesn't ignore it - it says if animal suffering is worse than the human suffering it would alleviate, it doesn't make logical or moral sense. As I said earlier, and in the vein of the benefit-harm question, if it would take giving a mouse mild Long COVID to cure a human's severe LC, I...

King-Devick Rapid Reading Test, from Post-Concussion Assessment as a diagnostic and mechanistic framework for treating patients with Long COVID, 2022 Example card

"Uncomfortable paths" is doing a lot of heavy lifting here. The less politically correct terminology would probably be "torture". It's easy to look at animals as an outgroup to justify pursuing all available avenues of investigation. Similarly, when it was easier to view ethnically different...

So it seems the test will be based on this paper: Elevated vascular transformation blood biomarkers in Long-COVID indicate angiogenesis as a key pathophysiological mechanism 2022, Patel et al

All sides except the people still left out if the term is strict - left to get bulldozed by BPS theories.

That's not the impression I get from IOM criteria. It seems that at a minimum it only requires increase of fatigue, unrefreshing sleep (which is barely a separate thing, as @Hutan said elsewhere, something like "if my arm is still broken after sleep, does that mean I have sleep issues"), and...

That makes sense, to be as sure as possible everyone's similar, but for clinical, and maybe even for research, purposes, I'm not sure the criteria should even be more than just: "ME/CFS is the symptom of exertion intolerance without a known cause." I don't think they've shown that exertion...

Yeah, I know, I wasn't speaking about her case there. But if someone presented with simply fatigue that appeared two days after exertion but no other symptoms, I'd think that should still be PEM, as I don't know of any other delayed fatigue conditions. These criteria mostly feel very arbitrary...

Quick view of the wide variety of criteria:

I guess maybe. Gastrointestinal, probably, because food feels very heavy and takes a long time to digest. "Intolerance of extremes of temperature" maybe? When I'm really tired I'll shiver when it's not that cold. And unless unrefreshing sleep counts as "sleep disturbance", then I'm one of the...