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That's him, thanks! "Atul Butte" fits with the blurry name on the card in front of him. I like that he was calling for transparency and pointing out that people have issues with RECOVER. Will be following him.

Anyone know who this is? First name might be "Asul".

Walter Koroshetz: "The patients with ME/CFS are incredibly frustrated by the lack of interest by physicians and taking care of them. So for years, they have been fighting a perception that people don't think they have anything wrong with them, and it's "in their head" quote unquote. So hopefully...

Walter Koroshetz speaking about long COVID in the next few minutes: https://videocast.nih.gov/livew.asp?live=54654 Currently a Q+A about LC clinical trials. Edit: Maybe he already spoke, I'm not sure.

That's a really good idea. I've always hated trying to track my symptoms with just a 1-10 because two months later, I'll almost certainly have no idea what exactly a "7" meant back then, and there will be drift. Using descriptions would really help. I might recommend that patients put as much...

FUNCAP seems like a pretty good way to measure. (S4ME thread about it) Very cool about the Activpal! Too bad it looks like it's not easy to buy for personal use. Which features that you think would be useful are missing in all the available symptom tracking apps, if you can share that?

This is now recruiting, in Hannover, Germany. "Does blood purification help against severe fatigue in post-COVID? Chronic fatigue syndrome (CFS) is a heavy burden. The "EXTINCT post COVID" project is investigating the effectiveness of apheresis therapy and is seeking participants for a study...

Thread on Phoenix Rising about peginterferon lambda.

Early Treatment with Pegylated Interferon Lambda for Covid-19 8 February 2023 Authors: Gilmar Reis, M.D., Ph.D., Eduardo A.S. Moreira Silva, M.D., Ph.D., Daniela C. Medeiros Silva, M.D., Ph.D., Lehana Thabane, Ph.D., Vitoria H.S. Campos, Thiago S. Ferreira, M.D., Castilho V.Q. Santos, Ana M.R...

What metric(s) will you use to track how bad a patient's ME is? Edit: If it's not too expensive, maybe wearables could be incorporated? Tracking things like step count, number of sit-to-stands, time spent laying down.

Psychology Today: Long COVID Looks Like Acute Infection in the Brain 12 June 2024 By Alison Escalante M.D. Link

Clinical and Diagnostic Features of Post-Acute COVID-19 Vaccination Syndrome (PACVS) Anna Katharina Mundorf, Amelie Semmler, Harald Heidecke, Matthias Schott, Falk Steffen, Stefan Bittner, Karl J. Lackner, Karin Schulze-Bosse, Marc Pawlitzki, Sven Guenther Meuth, Frank Klawonn, Jana Ruhrländer...

That's a funny image. A big muscley personal trainer yelling things like "for this set, push yourself to do as few reps as possible! I know it's hard but see if you can barely move at all!"

The comparison is astounding: NIH chart: Chart created from raw data (from blog): And even if counting the little difference in the middle of the real chart as meaningful, the task was not to do as many hard tasks as possible, it was to win as much money as possible, which required...

"Personalised Treatment Trials: Monitoring and Improving the Connection of Treatments to Patients" Description from YouTube: "The Melbourne ME/CFS Collaboration is conducting a study to closely watch how different treatments affect ME/CFS and Long COVID patients, using a very tailored...

Device is Pixel 7, which Wikipedia says is 2400 × 1080.

As one example, here are the Manual Website Citation tools in both MEpedia and Wikipedia: The buttons to save and cancel at the top are hidden behind the toolbar. There's no way to click them unless I change to desktop mode. Also, it looks like "Vector (2022)" is the default Wikipedia skin...

I think you missed one in the sentence beginning "We’re making an exciting new sports series".