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Thread for previous study by the author: Cutaneous α-Synuclein Signatures in Patients With Multiple System Atrophy and Parkinson Disease, 2023, Gibbons et al Thread for study of α-synuclein in POTS: Cutaneous alpha-synuclein deposition in postural tachycardia patients, 2021, Levine et al

"Follow up studies are in the works. Both NIH RECOVER and CND Life Sciences will be investigating the prevalence of the #Parkinsons biomarker in #LongCovid via skin biopsy." "This will be an excellent complement to the post-COVID RT-QuIC (another PD biomarker) study coming out of Innsbruck."...

Skin Biopsy Detection of Phosphorylated α-Synuclein in Patients With Synucleinopathies Authors Abstract Importance Finding a reliable diagnostic biomarker for the disorders collectively known as synucleinopathies (Parkinson disease [PD], dementia with Lewy bodies [DLB], multiple system...

She's almost certainly not writing any of this herself. Almost all her tweets are written by her husband. I'd assume he would be pretty familiar with terminology by now, but maybe it's someone else from her team that did this one.

Dianna Cowern aka Physics Girl's Instagram "In one week Dianna is live-streaming a full day of her life to share what the experience is like for someone suffering from chronic fatigue. Dianna and Kyle are raising money to support research and clinical trials for long COVID. The live stream...

Here are the references from that test page: Thread on the last reference: Immune-Based Prediction of COVID-19 Severity and Chronicity Decoded Using Machine Learning Weird that they just have two references and make it seem like four. One is just plain duplicated, the other they cited both...

It looks like this test might now be available to the public: "Our partnership with IncellDx, a leader in cellular diagnostics has led to the launch of the IncellKINE test, a cutting-edge chronic inflammation test capable of determining Long-COVID, Lyme Disease or ME-CFS, now available in the...

GeNeuro Announces Results of the GNC-501 Study in Post-Covid-19 Syndrome "The GNC-501 clinical trial is a Phase 2 study in patients suffering from post-COVID-19 neuropsychiatric syndromes, testing temelimab against placebo. The study enrolled over 200 patients in Switzerland, Spain and Italy...

As $20 per month is kind of significant for me, and it doesn't seem like this is being used a lot, and I don't need ChatGPT Premium for anything else, I'll be canceling my subscription. ME/GPT will continue to be available until July 1st. If anyone else has a premium subscription and wants to...

I just can't think of anything else. Maybe because it's gotten slower, but it didn't get much slower on the 18th and beyond as far as I know. I wouldn't think it'd be a constant 10k though, since it probably grew in views over time and wouldn't have 10k/day immediately.

I thought maybe it would line up with searches on Google for ME/CFS, but it seems to be pretty consistent over the past 90 days. My guess would still be the Twitter campaign made it popular temporarily.

Hypocortisolemic ASIA: A vaccine-and chronic infection-induced syndrome behind the origin of long COVID and myalgic encephalomyelitis (Provisionally accepted) Manuel Ruiz-Pablos 1, Aintzane Zabaleta 2, Bruno Paiva 2 1 Complutense University of Madrid, Madrid, Madrid, Spain 2 Center of Applied...

From ME/GPT AI: Multiple Sclerosis (MS) Systemic Lupus Erythematosus (SLE or Lupus) Celiac Disease Hashimoto’s Thyroiditis Endometriosis Migraine Honorable mentions because they satisfy all but female preponderance criteria (before treatments and tests were developed)...

I put "unaffiliated" under institution and gave a brief description of what I'd hope to use the data for when I applied a couple months ago, and my account was approved. I can't remember how long it took to be approved. Edit: I remembered I can check my emails for dates. It took four days to be...

The Press: "Young father with chronic fatigue desperate to get well for his family" "Tyrone Hauraki’s limbs feel like they have ropes tied around them. He’s exhausted every day. He has brain fog, and a tickle in his throat that does not go away. Bright lights hurt his eyes, conversations are...

Subjective brain fog: a four-dimensional characterization in 25,796 participants Ali Alim-Marvasti, Matteo Ciocca, Narayan Kuleindiren, Aaron Lin, Hamzah Selim, Mohammad Mahmud Abstract Importance: Brain fog is associated with significant morbidity and reduced productivity and gained...

I can't figure out how to eloquently say this, but I'll add that something like fundraising feels much harder than browsing the research landscape. The willpower itself to do something that feels less interesting takes energy, even if it seems to require the same amount of energy typing on here...

Test a large number of people for as many common toxins as possible, including things like DDT, Dieldrin, HCBs, PCBs, Mirex, Lindane, Mevin-phos, p-dichlorobenzene, Pentachlorophenol, Carbaryl, Toxaphene, and look for any correlations with symptoms. Not necessarily limited to ME symptoms, it can...

Faecal microbiota transplantation for sleep disturbance in post-acute COVID-19 syndrome Raphaela I. Lau, Qi Su, Jessica Y.L. Ching, Rashid N. Lui, Ting Ting Chan, Marc T.L. Wong, Louis H.S. Lau, Yun Kwok Wing, Rachel N.Y. Chan, Hanson Y.H. Kwok, Agnes H.Y. Ho, Yee Kit Tse, Chun Pan Cheung, Moses...