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That's it for the stream. Near the end, Kyle said there's a possibility for another fundraiser in the future. He said he has other organizations and researchers in mind, and some researchers have reached out to them to say they'd be interested in doing an interview. Over $109,000 right now, but...

...and post was removed from r/videos by the subreddit's moderators. No reason given as far as I can tell. Edit: Back up! I messaged the moderators to ask about it, and they said: "troll reports - reapproved sorry!"

Oh yeah definitely, every dollar helps. I was just curious about how much they were already getting.

To put it in perspective, in 2023, OMF received $2.9 million in donations, $5 million in grants, plus some smaller amounts from other sources, for a total revenue of $8.3 million. OMF financial statement

The reach this is getting is very heartening. It's the top post on r/videos, which has 27M subscribers and is the 15th largest subreddit. Over 1,000 comments, with lots of people curious about what LC and ME/CFS are, asking for information and educational resources. One person just commented...

Same author, and also has 26 ME/CFS and 26 controls, all female: An Explainable Artificial Intelligence Model Proposed for the Prediction of Myalgic Encephalomyelitis/Chronic Fatigue Syndrome and the Identification of Distinctive Metabolites, 2023, Yagin et al (Thread) Source given in that...

At about 43:40, her eyes go wide then she starts crying when he tells her:

Live stream is live now:

Maybe relevant: my dad and my dad's mom both had Parkinson's. I'm pretty sure I remember that my dad (not sure about my grandma) had loss of smell. I have ME (not caused by COVID) and loss of smell.

α-synuclein Seeding Activity in the Olfactory Mucosa in COVID-19 Medical University of Innsbruck Innsbruck, Austria Estimated study completion: 2023-12-31 Brief Summary Loss of the sense of smell is a characteristic feature of COVID-19 and likely related to viral invasion of the olfactory...

Ah ok, I'm still not quite fully versed in how VAT is calculated, but if this is true, I'm less worried.

She also claims to make £50,000 per month from admiring fans even though she no longer works. I'm sure that helps with the "incredible lifestyle". Maybe I'm in the wrong line of work.

This feels kind of weird to me: "ME/CFS participants who met maximum effort criteria during test 1 but did not meet criteria during test 2 due to failure to achieve heart rate and/or RER criteria were not excluded from analysis. ME/CFS who did not meet heart rate or RER criteria during test 2...

Not sure how "famous" she is but: Mirror.co.uk: Model and mum battles condition it took seven years to diagnose "Char Borley, who has appeared on the covers of Playboy and FHM, has been privately contending with a serious health struggle. The 41-year-old Suffolk native has now been diagnosed...

Science Norway: Victoria Augustine falls ill from everyday activities like taking a shower or family visits: “I end up bedridden with a feverish feeling and body aches" By Ingrid Spilde "Victoria Augustine Trulsen, 25, can remember the first time she thought: This can't be normal. She had been...

Just want to note this: "Competing interests BK, CR, JS, and SS conduct 2-day cardiopulmonary exercise testing on a fee for service basis."

Nice! Added. This looks like a pretty good comparison if their claim is true that performance on CPET-1 is a good indicator of activity level. See Figure 5B below for an impressive looking result. "Figures 5A–C illustrate the similarity between phenotypes in impairment status at baseline...

Now published, see post #8 ------------------------------------------- Circulating microclots are structurally associated with Neutrophil Extracellular Traps and their amounts are strongly elevated in long COVID patients Etheresia Pretorius¹, Alain THIERRY², Cynthia Sanchez³, Tram Ha⁴, Brice...

ScienceAlert: COVID's Hidden Toll: Full-Body Scans Reveal Long-Term Immune Effects By Carly Cassella "When 24 patients who had recovered from COVID-19 had their whole bodies scanned by a PET (positron emission tomography) imaging test, their insides lit up like Christmas trees. A radioactive...