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Yeah, that's a good thought. I'd feel a lot better about such a study if they put activity trackers on everyone for maybe a week to make sure the activity levels are at or below pwME, and didn't just use questionnaires.

I thought David Putrino's talk was interesting, so I had Claude.ai make a summary to share here: Context Long COVID and other complex chronic illnesses present over 200 symptoms affecting multiple organ systems Traditional large-scale monotherapeutic trials are often ineffective due to the...

Multikingdom and functional gut microbiota markers for autism spectrum disorder Published: 8 July 2024 Qi Su, Oscar W. H. Wong, Wenqi Lu, Yating Wan, Lin Zhang, Wenye Xu, Moses K. T. Li, Chengyu Liu, Chun Pan Cheung, Jessica Y. L. Ching, Pui Kuan Cheong, Ting Fan Leung, Sandra Chan, Patrick...

This seems unlikely now since there has been no similar rise on the day of or after Dianna's live stream which was probably much more popular: This is weird. Looking at the most viewed pages over the past week, almost all of them start with "A". Is someone reading every page in alphabetical...

Just had my appointment with the DO. It went well. I had been mentally preparing for worst case scenarios of the doctor trying to convince me I just have depression and me trying to convince her it's not. But she sees and understands my viewpoint. That I'm not expecting any treatments to do...

CentralMaine.com: "Gripped by a mysterious illness, a Mainer finds an unexpected kindred soul" By Frank O Smith "'American Breakdown' is the true story of Mainer Jennifer Lunden’s quest to get medical help for a mysterious, debilitating illness. It is more than just a dark, absorbing 27-year...

I think we agree, but the paper seems to equate them: Todd said: And I don't know why he's sure that's the case, but it seems like a distinct possibility since VO2 isn't precisely tied to fitness.

I'm not really following what he's saying either. But in terms of matching, shouldn't it be established that VO2 level basically equals fitness level and no other disease processes influence the correlation? Otherwise, they're not really matched for fitness level, right? Has that been established?

It's not on her channel page, but the video is still accessible by link or by searching Youtube for "physics girl live". Interview starts at 1:50:17.

If I were getting paid (I don't know if they are, but probably?), were helping people with the condition, had very mild fatigue, and didn't know that two days after the CPET I would feel worse because of the CPET, I might. I was doing lots of exertion for no reason before I realized I was paying...

Well many people are mild and aren't PEMing themselves into very severe ME. They reach some kind of stable ME level. This stable level might have that distribution. I thought I'd seen some epidemiology about mild vs. moderate vs. severe vs. very severe that showed it going down with severity. I...

To be clear, even if a few people with sub-clinical ME got into the control group, I don't think that would make it useless. There should still be something like a "dose-response curve" where the people who were severe enough to be diagnosed should show greater reductions than the control group...

I'm just basing it on what would logically make the most sense. The more extreme a pathology, the less likely someone would be to experience it, as it would take more things going wrong to a greater degree, which is less likely. It could be that's not how ME works. I don't have the energy to dig...

I assume they initially recruit people who say they are healthy, then they make sure they don't have ME/CFS. I'd like to know what that "making sure" part is like. Whether they question them in detail to determine if they might have PEM that they haven't recognized themselves. Not really...

I don't mean remove CCC from the inclusion criteria for the ME group. I mean add "not fulfilling CCC, IOM, NICE, Fukuda, or having any evidence of PEM" to the inclusion criteria for the control group. Maybe not, or maybe "healthy" to them might just mean no other diagnoses, and they didn't ask...

They didn't give any specifics about how they determined ME/CFS status apart from what I quoted about being diagnosed and fulfilling CCC. "Had a chat with Dr. Chia" doesn't tell us they used anything more than that. I don't mean they take people that signed up to be ME/CFS participants and if...

Where does that page talk about the screening phases? In the study itself, concerning ME status in recruitment, I just see this: "endorsement of ME/CFS symptoms and compliance with Canadian Consensus Criteria" As I understand it, CCC is strict so that false positives are minimized in research...

I'm not sure I understand either. He quotes a previous tweet of his about the Cook CPET study: One concern I have, is maybe some of these people have undiagnosed or very mild ME/CFS, being the cause of their deconditioning/sedentary-ness, which would make the comparison less useful. A...

Some people are trying to get the attention of news stations in her area:

$121,983 Open Medicine Foundation Canada: "In the coming weeks, we'll be sharing how your amazing support will be put into action. Stay tuned to see how we leverage this incredible day of giving to accelerate our research efforts."