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I'll copy what I wrote on Phoenix Rising a while ago about creating an animal model of ME: Although, I'm not completely sure of my position. If it takes giving a mouse mild ME to cure a person's severe ME, then maybe it's acceptable. But even then, the ME isn't the only factor in the animal's...

Okay, this is really cool. Instead of downloading all of MEpedia, which would have its advantages, but would be pretty difficult, I wouldn't get updates, and I'm not sure I'm allowed, I instead made the GPT able to access the live MEpedia API. So basically it can browse the wiki to answer...

FYI, started a thread over here: https://www.s4me.info/threads/gpt-for-me-cfs-questions.38766/ Moderation note: posts relevant to GPT have been moved to the new thread

Though it's free for others to use, I had to make a Plus account for $20 per month to create it. I'm not a big fan of paying OpenAI, and I would prefer to do this with Anthropic Claude, as they seem to care more about AI safety, but as yet, Claude doesn't have anything similar to custom GPTs...

(note - earlier posts in this thread have been moved from the linked thread) Continuing on with the conversation from another thread, I set up a custom GPT, named MEGPT for now, to be able to give it some default relevant documents so that it can answer questions about ME/CFS effectively...

Initial posts have been moved from another thread. I just noticed that now GPT-models pre trained on data are available for free users too. Is someone up to the task of training one on Me-pedia, trial by error, and science for ME (if members consent). It would be so much more useful for us...

That is a really good idea. I didn't know it was free now, but if so I'll see what I can do later.

By pre-trained, do you mean fine tuned, or are you talking about the custom GPTs, which is basically just giving it default prompts and attachments. The former would be ideal as you can give it unlimited data, and I've thought a lot about that possibility, but it's still very expensive, as far...

I can't seem to find an actual source (where I can understand the technical language) about whether mercaptan, the smelly chemical added to natural gas, works primarily through olfactory or trigeminal, but the AI Claude seems sure it's olfactory, though of course it could be wrong:

On Facebook, to illustrate the difference, I posted the timelapse of her doing nothing in the dark all day as the after, and for before, this video of her doing experiments and backflips on a zero-G flight, obviously barely able to contain her energy and love for life...

Patients with COVID-19-associated olfactory impairment also show impaired trigeminal function One interesting thing I've learned is that there are two main "smell" systems: olfactory and trigeminal. Olfactory are more typical smells, like foods. Trigeminal sensations are caused by irritating...

Oh that's unfortunate, I guess my memory about this was wrong. But there are some for whom it goes away pretty quickly, right? If so, it's conceivable that using anosmia as a fast marker of LC might work in at least some people. It'd be great to find data on the timelines of people who had...

Hypothesis: Since loss of smell comes on so quickly in people who get the COVID infection, and goes away as soon as the infection is gone, and can persist in Long COVID, maybe this points to the virus directly causing anosmia and continuing to stick around to cause it in LC. Viral persistence...

Olfactory bulb involvement in neurodegenerative diseases, Johannes Attems et al, 2014 Apr

Thread about loss of smell on Phoenix Rising where a couple people say their anosmia started around the same time as ME.

Oh Todd Davenport actually chimed in for #JohnVsJonVsME:

That's really great that they shared that. Todd Davenport said it really well on Twitter: ME inherently makes it hard for the world to know what it is like for a person experiencing it, because it makes the person hide from the world. But thanks to internet and smartphones becoming so...

https://x.com/i/spaces/1yNGaZWVbOVJj A recording of a one hour Twitter live voice session from the organizers of this. They discuss this campaign as well as the historical medical scandal surrounding ME/CFS.

Like and repost tweets here: #JohnVsJonVsME

12pm eastern, so in 4.5 hours.