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  1. forestglip

    What research do you want to see? (study ideas)

    I'm not sure if this has been attempted, but if not, I'd like to see someone try to make an in vitro 2-day CPET. It might be possible to extract a few muscle cells from people with ME, stimulate them with electricity to simulate exercise, and see if their responses on day two differ from non-ME.
  2. forestglip

    Modern environmental factors

    I found a couple journals that are dedicated to environmental toxicity and related topics. Journal of Exposure Science and Environmental Epidemiology "JESEE publishes novel results and significant advances in exposure science, exposure analysis, and environmental epidemiology to understand...
  3. forestglip

    News from Australia

    @DMissa was interviewed on the Triple R radio station, 14 July 2024. Audio link AI summary of interview: Interviewee: Dr. Daniel Missailidis, research officer in molecular cell biology at La Trobe University Topic: Infection-associated chronic diseases, including long COVID and chronic...
  4. forestglip

    Blood transcriptomics reveal persistent SARS-CoV-2 RNA and candidate biomarkers in Long COVID patients, 2024, Menezes et al.

    GoFundMe: Your Support is Needed to Validate Long Covid Biomarkers "Long COVID Foundation is organizing this fundraiser. LCAP and Long COVID Foundation are excited to announce a chance for the community to fundraise and help validate a non-invasive Long Covid Biomarkers* test capable of FDA...
  5. forestglip

    CAR-T therapy

    Is this potentially huge for MS? Protocol: A Study of Anti-CD19 Chimeric Antigen Receptor T-Cell ( CAR-T) Therapy in Subjects With Non-relapsing and Progressive Forms of Multiple Sclerosis Paywalled article in Nature: CAR-T therapy for multiple sclerosis enters US trials for first time
  6. forestglip

    The sunday Times (London): This town had a healthy population. Then the bitcoin mine started humming, 2024, Samuel Lovett

    Long-term residential road traffic noise and mortality in a Danish cohort, 2020, Thacher et al - "this study adds to the body of evidence linking exposure to road traffic noise with higher risk of mortality" Transportation noise exposure and cardiovascular mortality: 15-years of follow-up in a...
  7. forestglip

    Modern environmental factors

    The more I learn, the more mad I get. The world is being drenched in thousands of newly created chemicals and every day more are being created. For some reason, the standard operating precedure is to release new chemicals after cursory safety studies, then decades later when people start...
  8. forestglip

    Modern environmental factors

    American Scientist: The Rise of Parkinson's Disease Published 2020 By E. Ray Dorsey, Todd Sherer, Michael S. Okun, Bastiaan R. Bloem "Neither our increased awareness of the disease nor our lengthening life spans can fully account for the upsurge in diagnoses that we now face. Our knowledge of...
  9. forestglip

    Review The efficacy of antivirals, corticosteroids, and mAbs as acute COVID treatments in reducing the incidence of long COVID, 2024, Gangqiang +

    The efficacy of antivirals, corticosteroids, and mAbs as acute COVID treatments in reducing the incidence of long COVID: a Systematic Review and meta-analysis Gangqiang Sun, Ke Lin, Jingwen Ai, Wenhong Zhang Abstract Background: Whether treatment during acute COVID results in protective...
  10. forestglip

    Novel characterization of endogenous transient receptor potential melastatin 3 ion channels from Gulf War Illness participants 2024 Marshall-Gradisnik

    ABC (Australia): Griffith University researchers believe cellular door dysfunction is the cause of long-misunderstood Gulf War Illness By Janelle Miles and Emma Pollard "In a world first, Australian researchers have identified a significant defect in the cells of Gulf War participants they...
  11. forestglip

    News from the USA, United States of America

    Wow, pretty much all of the replies are mocking her, saying stuff about LC is not real, it's all long vax...that's disturbing.
  12. forestglip

    Cardiopulmonary and metabolic responses during a 2-day CPET in [ME/CFS]: translating reduced oxygen consumption [...], Keller et al, 2024

    I think the inclusion criteria line of thought was mostly just speculation by me. I wouldn't put too much stock in it. But yes, it was an attempt to explain why the differences seem smaller with deconditioned controls. Although, even though they are smaller, this is yet another study showing...
  13. forestglip

    A Possible Reversible Cause of Cognitive Impairment: Undiagnosed Cirrhosis and Potential Hepatic Encephalopathy in [...] Dementia, 2024, Silvey et al

    A Possible Reversible Cause of Cognitive Impairment: Undiagnosed Cirrhosis and Potential Hepatic Encephalopathy in Patients with Dementia Scott Silvey, Richard Sterling, Evan French, Michael Godschalk, Angela Gentili, Nilang Patel, Jasmohan Bajaj Background Dementia and hepatic encephalopathy...
  14. forestglip

    Avoiding crashes as a treatment

    What is ART?
  15. forestglip

    Avoiding crashes as a treatment

    I think this might be more intense than pacing, as it's difficult to be cognizant of one's exact limits, and crashes still happen. I assume this would be doing far less than one feels they can handle so that there is zero chance of a crash.
  16. forestglip

    Avoiding crashes as a treatment

    Not sure if there are many other examples, but Ron Davis mentions one potentially successful case (or could be spontaneous remission) of someone recovering after avoiding crashes for a year: "One researcher had ME and she didn't have a crash and after a year she got better."
  17. forestglip

    Works of fiction where characters have ME/CFS

    Merged thread I started rewatching one of my favorite shows, House M.D., and saw this lovely scene in the first episode (starts at 1:23):
  18. forestglip

    Long Covid drug BC-007 research news

    Estimated study completion date moved up from 2025-05-31 to 2024-11-30. Follow-up period reduced from one year to 90 days. Added this to inclusion criteria: ClinicalTrials.gov
  19. forestglip

    Dianna Cowern, Physics Girl, fundraiser 2024 and other news

    Email from OMF: "We are overflowing with gratitude and hope following the incredible live-streaming event hosted by Dianna Cowern (Physics Girl) and her outstanding team. Your engagement and generosity have shattered our expectations. What started as a goal to raise $10,000 turned into a...
  20. forestglip

    Recovery from Exercise in Persons with Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) 2023, Moore, Hanson et al

    "On social media, some patients have posted that they experienced a very prolonged recovery from the 2-day CPET. Given the potential for prolonged and potentially severe disability in ME/CFS, these anecdotes have prompted hesitancy to undergo a 2-day CPET. As a response to such patient advocacy...
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