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  1. Kalliope

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    The Icelandic newspaper Visir had an article yesterday about post covid-19 and possible connection to ME: "This is a multifaceted disease whose common symptom is excessive fatigue, but there are a number of other symptoms that appear. I do not think I trust myself to discuss the connection with...
  2. Kalliope

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    Paul Garner at approx. 16 min: The links to ME/CFS for MY condition are clear, and everybody sort of pussyfoots around this ... And I also think we need to be realistic about the time needed for convalescence
  3. Kalliope

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    From 3. Sept. BMJ Living with covid-19 by Fiona Godlee While most people recover quickly and completely from the virus, stories of persistent and troubling symptoms have now moved from anecdote to the evidence of crowd sourced cohorts. Reports suggest that one in three people have not fully...
  4. Kalliope

    UK: Physios for ME

    I don't believe this has been shared at the forum yet?
  5. Kalliope

    Low-dose Naltrexone articles and experiences

    That's brilliant. Thank you @hinterland !
  6. Kalliope

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    Discussion of BMJ articles from Paul Garner on this thread https://www.s4me.info/threads/paul-garner-covid-19-bmj-articles.15629/ Another excellent article from prof. Paul Garner. BMJ Paul Garner on long haul covid 19 - Don't try to dominate this virus, accommodate it I was desperate...
  7. Kalliope

    Paul Garner on Long Covid and ME/CFS - BMJ articles and other media.

    Another excellent article from prof. Paul Garner. Might deserve its own thread, but I was unsure where to put it. BMJ Paul Garner on long haul covid 19 - Don't try to dominate this virus, accommodate it I was desperate, tired, grumpy. I wanted someone to help me pace and thought occupational...
  8. Kalliope

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    Do others have problems playing this too? Does anyone have another link to this segment? I couldn't find anything myself.
  9. Kalliope

    Low-dose Naltrexone articles and experiences

    Thanks, @hinterland - I was not aware of that. Do you know of a source for this?
  10. Kalliope

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    NIH - Director's Blog - by Francis Collins Citizen Scientists Take on the Challenge of Long-Haul COVID-19 More information is now emerging from the first detailed patient survey of post-COVID syndrome, also known as Long COVID [1]. What’s unique about the survey is that it has been issued by a...
  11. Kalliope

    Low-dose Naltrexone articles and experiences

    Ah, yes, I understand your hesitance with trying out new drugs when you are very sensitive to them. I tried to do some research too before making a decision of trying LDN, but it seems experiences are quite divided, so it's hard to know what to do, isn't it? I do hope there will be some proper...
  12. Kalliope

    Low-dose Naltrexone articles and experiences

    Sure you can. Are you thinking about trying it too? Am still on 2.75 mg and think I will increase soon to 3 mg and see how that goes. I was hoping it might help primarily with cognitive issues and there are some small signs of improvement. Am not able to delve into novels, but I have figured...
  13. Kalliope

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    A rather good article in the Norwegian newspaper VG today about ME as a possible consequence of Covid-19 (apart from the title where ME is called 'chronic tiredness'). It mentions a research project where the national patient register will follow hospitalised Covid-19 patients over two years...
  14. Kalliope

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    Without more data, both doctors and patients are left with few resources in the middle of a fast-moving pandemic. “We’re going to need to develop a training manual to help professionals deal with this crisis,” said Leonard Jason, director of the DePaul Center for Community Research. After being...
  15. Kalliope

    BPS attempts at psychologizing Long Covid

    Henrik Vogt and another doctor has written an opinion piece about scare mongering creating long covid. It is important to emphasize that covid-19 can of course be a great strain and require time before one recovers. But at the same time, we must know that the same symptoms that are first...
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