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It's not yet clear that protracted covid-19 is the same as ME/CFS or at least close enough that they are not easily distinguishable.

In Lombardy the cases are increasing again. The restrictions were eased some time ago.

A comment by an expert in clinical trial design could be useful to give to the journalist.

The description of how LP supposedly works is scientifically implausible. https://www.researchgate.net/publication/326176969_Understanding_the_Lightning_Process_Approach_to_CFSME_a_Review_of_the_Disease_Process_and_the_Approach I mean for fucks sake, they think they can cure a disabling...

Who knows. Maybe they'll do something useful for covid 19 patients that have lasting symptoms, like telling them they are not going crazy and helping them deal with work absence.

I find it strange that there is a press release saying there will be a study but there's no details about the study.

Exactly. Trying to resist the illness, ignoring it, and doubting it is normal and everyone does it at some point. If that was all it took to get better most people would recover on their own in little time. The BPS people, thinking themselves smart and patients very unintelligent, say "have you...

Not sure where else to put this. This got me thinking about diagnostic criteria. Does anyone else think that a mismatch between expected ability to do things, and actual ability might be an important feature of ME/CFS? Where patients start things, thinking they'll be able to finish but then...

That description of symptoms could have written by patients on ME/CFS social media channels. https://www.nytimes.com/2020/05/10/world/europe/coronavirus-italy-recovery.html It's a bit sad that people don't always realize that the persistent symptoms part could very well be the same illness as...

I thought this was an interesting article but it seems a little hard to believe as well in some places. Better understanding of the relevant biology could do a lot to advance care for patients. One notes a certain similarity to the diagnostic criteria problem in ME/CFS. They struggle with the...

Mikovits must be getting some very effective and thus not inexpensive help to boost her social media presence and produce a professional documentary. She has 126000 followers on Twitter despite joining in April of this year, no way this is legitimate.

I don't think they see many patients or are able to see the actual person behind their own biases that make patients look like they describe in their theories.

More dubious insights from the correlation is causation crew.

If two things correlate, one can definitely and always assume that one causes the other. That's how these people think :rofl:. Satire: I've discovered that people that enter the hospital can be divided into low and high worry groups, and that the high worry group is much more likely to die in...

In some way, seeing all the chaos, confusion, scandals and weird ideas about the coronavirus makes me feel a little better because for once it's not happening in the field of ME/CFS. It shows I think that this is typical for situations where there is a lot of uncertainty.

Yes. However I suspect if the sample size was larger there might have been statistically significant and dose-dependent changes. Whether these reflect an effect on the illness would have been unclear. With side effects so prominent it could also be difficult to blind patients.

My summary of the results: A small improvement on self-reported outcomes with the lower doses, no improvement or small worsening with the larger doses. This patter is seen in all outcomes. Sample sizes are very small. Under serious adverse events, one occurrence of tachycardia and...

If only arriving at the truth was as simple as just listening to authorities. Or as simple as listening to anti-authoritarian figures likes Mikovits.

Re. easing lockdowns, in Italy I suspect it could be a disaster. People have had enough of being isolated and are out and socializing to make up for it.

Merged post An article In English on what went wrong in Italy It's also interesting to see the differences in how the Lombardy and Veneto regions reacted and the different outcomes they had. https://www.ilpost.it/2020/05/07/two-months-that-shook-lombardy-to-the-core-coronavirus/