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  1. Hoopoe

    UK Planned study: Feasibility of investigating VO2, HR, BP, lactic acid and activity of pwME during normal daily activity, 2020/21, Clague-Baker et al

    I can do the math but the hard part is remembering what 30*b was after calculating 4*x+40. Math ability is OK, but I risk immediately forgetting the numbers I'm supposed to remember.
  2. Hoopoe

    Webcast: (Medically Unexplained) Physical Symptoms: A Scientist Practitioner Approach June 8 Trudie Chalder

    I'm curious to see how the CBT/GET ideological brigade will react to covid-19. Is their faith in CBT/GET shaken and will they try to do things differently? Or will there still be no insight, no humility, no desire to do things better and this new patient population will get the same old CBT/GET?
  3. Hoopoe

    Lightning Process - discussion thread

    I'm conflicted about this thread. It feels wrong to take LP too seriously. We might as well discuss how credible the emails from a certain nigerian prince are.
  4. Hoopoe

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    It's also impressive how well the people with long term covid-19 are dealing with this. They have already organized themselves in groups. The internet makes that possible. This will help them, and perhaps us as well.
  5. Hoopoe

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    I view this is an opportunity to build coalitions to help solve ME/CFS. The coronavirus pandemic makes it even more clear that medical research has neglected an important health problem, that of long term symptoms after an infection. If long term covid-19 isn't exactly the same as ME/CFS, does...
  6. Hoopoe

    Lightning Process study in Norway - Given Ethics Approval February 2022

    In my opinion the potential for harm to patients is large. Patients are typically financially dependent and often rely on family members. This relationship relies on trust because it's not possible to prove that someone is as disabled as they say they are. It is very toxic to suggest that...
  7. Hoopoe

    Lightning Process study in Norway - Given Ethics Approval February 2022

    They fit into the model as people who didn't do it right.
  8. Hoopoe

    Lightning Process study in Norway - Given Ethics Approval February 2022

    This is beginning to look like PACE. Deluded but well connected reseachers that find it easy to prevail over patients that are desperately trying to warn there are problems with what is being planned. A media campaign that misrepresents the treatment by carefully avoiding all the problematic...
  9. Hoopoe

    Lightning Process study in Norway - Given Ethics Approval February 2022

    @Jonathan Edwards could you write a letter to this newspaper? I think the article is rather biased. I think it means that as I predicted, it will be a wait list control group which is totally inadequate. This means that either the people behind this are naive amateurs or there is no intention...
  10. Hoopoe

    Lightning Process study in Norway - Given Ethics Approval February 2022

    I think LP will be shown to have no effect on the underlying illness (if it is ever tested rigorously), although it could be quite good at putting some people into highly optimistic state of mind where they are convinced they can control the illness and live again. They will then attempt to...
  11. Hoopoe

    UK Planned study: Feasibility of investigating VO2, HR, BP, lactic acid and activity of pwME during normal daily activity, 2020/21, Clague-Baker et al

    I noticed that when I'm mentally exhausted due to mental activity, my gait changes and I walk like an old man. It seems to be the mental exhaustion at least (maybe it's also orthostatic intolerance and sitting). Another great way to produce abnormal changes visible to observers: reaching down...
  12. Hoopoe

    UK Planned study: Feasibility of investigating VO2, HR, BP, lactic acid and activity of pwME during normal daily activity, 2020/21, Clague-Baker et al

    I have done cognitive testing and it was within the norm but I'm 100% sure my performance has suffered. That means I think that the test I did is not suitable for identifying the problems I have. I suspect the problem could be reduced blood flow to the brain. Are there cognitive tests suitable...
  13. Hoopoe

    Lightning Process study in Norway - Given Ethics Approval February 2022

    I don't think I can handle this level of absurdity. Reality feels rather surreal at the moment.
  14. Hoopoe

    Lightning Process study in Norway - Given Ethics Approval February 2022

    Yes, reports of harms can be used to argue against a treatment. Does she think this is unfair? My eyes are rolling so hard right now. :rolleyes: Speaking of struggling against something... it looks a lot like proponents of LP and CBT and similar approaches are struggling with the reality that...
  15. Hoopoe

    My comments to the Cochrane review

    Well done. This is good. This should be A NIH working group. Could this expanded a little bit? I think it would be justified to say that this is reveals a dismissive attitude towards patients reporting harm and gives the impression that there is no justification for such reports. PS: you...
  16. Hoopoe

    Simon Wessely on Covid-19

    I believe that articles that try to expand mental health problems to broad sections of the population are damaging for patients with serious mental health problems. If a person with ordinary levels of worry is told that worrying is a mental health problem, that person might conclude that mental...
  17. Hoopoe

    Simon Wessely on Covid-19

    What about people who aren't psychologically disturbed (fearful compliers) or troublemakers (active resisters)? Do they exist?
  18. Hoopoe

    Lightning Process study in Norway - Given Ethics Approval February 2022

    Also, NAFKAM director Miek Jong could be a valuable ally.
  19. Hoopoe

    Lightning Process study in Norway - Given Ethics Approval February 2022

    Didn't Flottorp have some role in the Cochrane review of exercise therapy for CFS? I know I've seen her name before and it was associated with bad science.
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