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  1. Hoopoe

    Patterns of daytime physical activity in patients with chronic fatigue syndrome, 2020, Chalder, Sharpe, White et al

    They measure steps per day for "up to 7 days" and talk about activity patterns. This is far too short.
  2. Hoopoe

    Lightning Process study in Norway - Given Ethics Approval February 2022

    Some time ago I read a comment that claimed Sharpe(?) once admitted that MUS was a way to save liason psychiatry from irrelevance or something to that extent. I'm sorry I cannot be more specific and am passing on unreliable hearsay. Maybe you can find out something about this.
  3. Hoopoe

    Lightning Process study in Norway - Given Ethics Approval February 2022

    I think they write this in response to patients not believing that thoughts have the awesome power to cause such a severe illness as ME/CFS often is. Maybe they do in some instances but there's nothing wrong with patients saying they do not recognize themselves in the model proposed by the BPS...
  4. Hoopoe

    News from Scandinavia

    I heard yesterday from a family member that works in the healthcare sector about a case where a man developed symptoms that were initially interpreted as likely to be multiple sclerosis. It turned out to be a reaction to chemicals in the beauty salon he worked. How many people have such a...
  5. Hoopoe

    News from Scandinavia

    The patients with a broadly defined CFS diagnosis who are less affected are sometimes considered by other patients to be the target population of therapies like CBT and LP. The thinking is that these therapies were created for them, not for people like me. I suspect that patients who are less...
  6. Hoopoe

    News from Scandinavia

    I have interacted with BPS people before and they immediately began to interpret symptoms as having a psychosocial cause without actually knowing anything about my psychosocial situation. To them the lack of medical explanation is in practice evidence that they cause must be psychosocial. The...
  7. Hoopoe

    News from Scandinavia

    To clarify, PACE (according to the original protocol) does show results that are a little worse than those found to be produced by sham therapy in a previous review by none other than Wessely. Some CBT proponents might also say that it's OK that CBT is just a placebo because for this particular...
  8. Hoopoe

    News from Scandinavia

    I agree there is a problem of misdiagnosis and diagnostic uncertainty but that doesn't mean the other patients necessarily have a stress and anxiety related illness. I'm also not convinced that rigid application of narrow diagnostic criteria is good. It's unclear if doing this is beneficial and...
  9. Hoopoe

    CBT combined with music therapy for chronic fatigue following Epstein-Barr virus infection in adolescents: a feasibility study, 2020, Wyller et al

    In my experience positive mood can counteract fatigue but the problem is not initiating activities but the crash afterwards and sustaining them over a longer time. The people promoting psychological solutions seem to be unable to understand that the usual psychological factors they cite aren't...
  10. Hoopoe

    Cognitive behavioural therapy for adults with dissociative seizures (CODES): a ... multicentre, randomised controlled trial (2020) Goldstein, Chalder

    These were all subjective outcomes, while the primary outcome (how many seizures patients had) is a lot less subjective. The secondary outcomes:
  11. Hoopoe

    Psychiatric characteristics of older persons with Medically Unexplained Symptoms, 2020, Hanssen et al

    Remember that somatoform disorder requires that the person is excessively preoccupied with symptoms. That means someone else decides whether a person is worried the right amount or too much. I don't know why someone would believe that they can tell whether a person is excessively preoccupied...
  12. Hoopoe

    Blog: A totally useless therapy for benign and malign conditions – where is the difference? - Edzard Ernst

    Without reading the blog, my first thought is that there would not be much opposition.
  13. Hoopoe

    Patient's experiences and effects of non-pharmacological treatment for ME/CFS - a scoping mixed method review - 2020 - Mengshoel et al

    What a disappointment. If EUROMENE doesn't address the causes of such a poor review I don't see much future for it to be honest. It seems to be used by CBT and LP enthusiasts to uncritically spread misleading and dubious claims.
  14. Hoopoe

    News from Scandinavia

    I liked her previous article but this one not so much. The narrative that there are two groups of people, one helped by cognitive approaches and the other not, seems to be an illusion created by flawed research practices. Even if there were such two groups, it would still be scandalous to...
  15. Hoopoe

    Lightning Process study in Norway - Given Ethics Approval February 2022

    The reason opposition to these studies doesn't work well is because we haven't been able to make the public understand just how fraudulent the whole research scene in this area is. It's the norm for researchers to spin their results so that they show the opposite of what they actually show...
  16. Hoopoe

    Etiology: graphic representations

    If the goal is to show an audience that there is a biological basis to the illness, then the epidemiology and selected findings like the responses to a 2-day CPET could be good.
  17. Hoopoe

    UK: ME/CFS CPD module from Study PRN and supporting podcasts

    Merged thread This was authored by Nina Muirhead. You can try it out for free. I scored 90%. https://www.studyprn.com/p/chronic-fatigue-syndrome
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