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  1. Hoopoe

    Coronavirus - worldwide spread and control

    It's not, but for us patients it could be a good year.
  2. Hoopoe

    Graded exercise therapy doesn’t restore the ability to work in ME/CFS. Rethinking of a Cochrane review, 2020, Vink & Vink-Niese

    Interesting that the comment by Winarick suggests CFS may not really exist. By suggesting that it's not a valid construct he means that it could be a social construct rather than a description of a thing that really exists in nature. What does it say that this comment is made in response to an...
  3. Hoopoe

    Medically Unexplained Symptoms and PEM (Paediatric Emergency Medicine) presentations - Dr Armstrong - 11 Jun 2020

    I also thought it was about postexertional malaise and that it was nice that hospitalists are becoming aware of this. But the cases didn't fit ME/CFS and then he presented his psychosomatic belief system.
  4. Hoopoe

    General thread on functional disorders in Denmark

    The way this seems to work is this: These companies need to back up their discriminatory policies with research. People like Fink and White produce this research and get rewarded for it. Reality doesn't matter, it just has to look credible enough to broader society to make it difficult for...
  5. Hoopoe

    UK: Priority Setting Partnership: Medically Not Yet Explained Symptoms - 10 top priorities published July 2022

    I took the survey and asked some difficult questions they won't like. Not sure about the usefulness of working on broad categories like "pain" and "fatigue", as if all pain and all fatigue was the same.
  6. Hoopoe

    Intelligence is negatively associated with the number of functional somatic symptoms, 2009, Kingma et al

    Not sure I understand the thinking but the assumed mechanism could be that low intelligence makes it harder for people who are in distress to resolve that distress, and unresolved emotional conflicts, as they believe, can be converted into bodily symptoms. The patients are of course too stupid...
  7. Hoopoe

    Intelligence is negatively associated with the number of functional somatic symptoms, 2009, Kingma et al

    The term epistemiological violence seems relevant https://onlinelibrary.wiley.com/doi/10.1111/j.1751-9004.2010.00265.x
  8. Hoopoe

    Intelligence is negatively associated with the number of functional somatic symptoms, 2009, Kingma et al

    How would the authors feel if there was a constant stream of shoddy research that asked questions such as: Do researchers in the field of psychosomatic medicine have low IQ? Do researchers in the field of psychosomatic medicine habitually use cocaine? Do researchers in the field of...
  9. Hoopoe

    Intelligence is negatively associated with the number of functional somatic symptoms, 2009, Kingma et al

    Thanks for the peer review Woolie. I think they were hoping to find this
  10. Hoopoe

    Alterations in Brain Function After Cognitive Behavioral Therapy for Migraine in Children and Adolescents, 2020, Nahman-Averbuch et al

    Why is it that these CBT studies never have adequate controls? It's because otherwise they can't show the desired effects!
  11. Hoopoe

    Chronic Fatigue Syndrome (CFS): An Imprecisely Defined Infectious Disease Caused by Stealth Adapted Viruses, 2020, Martin, KELEA activated water

    If the viruses are so stealthy, how does he know they are there? If he knows a method to reveal these stealthy viruses, can he publish to allow others to test this idea? Or is this all pseudoscientific marketing for an expensive private clinic that loots desperate patients?
  12. Hoopoe

    Open The impact of food on cognition: Potential implications for brain fog in ME;24 June 2020 online

    The idea is to do a cognitive test before the evening meal and afterwards. The no food group will wait 30 minutes instead of eating and then redo the test.
  13. Hoopoe

    Open The impact of food on cognition: Potential implications for brain fog in ME;24 June 2020 online

    A simple but potentially interesting experiment. You can participate online. Unfortunately I don't qualify because they only want what they call mildly ill patients.
  14. Hoopoe

    Inclusion of family members without ME/CFS in research studies promotes discovery of biomarkers specific for ME/CFS, 2020, Tokunaga et al

    For those interested in biomarker discovery and quality control, this seems interesting. Maybe also of interest to @Jonathan Edwards. I'm trying to summarize: They were 55% higher. Non-classical monocytes are described as anti-inflammatory and being involved in maintenance of vascular...
  15. Hoopoe

    DecodeME - UK ME/CFS DNA study underway

    In my view PEM, at least at my level of severity, is something that is often the result of the cumulative doses of exertion, rather than single large doses of exertion. That means it matters how close to my tolerated level of exertion I was during the preceding days. I've also often seen PEM...
  16. Hoopoe

    Research underway related to Long Covid

    Hopefully the doctors involved in this will recognize ME/CFS when they see it. Yes, and how much of this pattern is patients feeling better, trying to increase activity and then relapsing soon after?
  17. Hoopoe

    Independent advisory group for the full update of the Cochrane review on exercise therapy and ME/CFS (2020), led by Hilda Bastian

    What Philip Stark, a stats professor at Berkeley thinks about the CODES trial's design: “The trial did not support the primary clinical outcome, only secondary outcomes that involve subjective ratings by the subjects and their physicians, who knew their treatment status. This is a situation in...
  18. Hoopoe

    RCGP Online Zoom Call - Covid-19: A lifestyle disease

    I think it's meant for prevention not as treatment.
  19. Hoopoe

    DecodeME - UK ME/CFS DNA study underway

    The reason may be that most patients were not given the diagnosis based on CCC and IOM critera but on Fukuda or NICE. Therefore you would have to do a retrospective diagnosis with the CCC and IOM which has the usual problems with recall. Edit: and I suspect a lot of doctors don't follow...
  20. Hoopoe

    Intelligence is negatively associated with the number of functional somatic symptoms, 2009, Kingma et al

    I also have the suspicion there is a dynamic where teachers tell their students a lot of made up bullshit about the wonders of psychosomatic illness. The students then grow into academics themselves and find that fraud is rampant, and to have a career, they have to make up bullshit about...
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