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World leading? Expert in ethics on pediatric research? Hahaha... hahaha.

To me, they seem to make a fairly clear reference to mass hysteria. As far as I understand, conceptually the difference between heightened anxiety and mass hysteria that one is just people worrying more, having heightened awareness and being more likely to seek out tests etc. The other is...

I had it twice in recent years, both involved the gut and nausea and diarrhea.

No, it was spot on.

Yes, and how much could we learn from these observations in n=1 studies? I'm not the only person who has reported feeling better than before after a mild infection. Once I also had really high zonulin when by sheer luck it was measured during a flare of GI symptoms. If we had a research team...

One can sort of feel sorry for these people who so badly need to devalue and discredit patients just for having inconvenient health problems.

Something interesting happened. I had awful nausea and diarrhea for a day. I hardly ate anything for 2 days and rested a lot more than usual. I tolerated the fasting without problems and on the third day even felt better than normal. I wish my normal state was a bit closer to this one, where I...

Yes it's in mice but it would be great if they could make some progress on the biology of depression and anxiety.

NIH blog Psychological stress damages brain’s blood vessels by Brandon Levy https://irp.nih.gov/blog/post/2020/07/psychological-stress-damages-brain-s-blood-vessels

Strange how the BPS approach dominated treatment of ME/CFS for decades and yet these patients are exactly "identifying themselves as misunderstood and not taken seriously". It's sad how the authors are completely blind to the obvious. You've got to be pretty dumb to believe that making up a...

Reference 13 is a paper by Wessely. How not to handle a pandemic: tell people they are hysterical unless they really have covid 19. People should wait to tighten social distancing, seek testing and medical help until they're really sure they're not hysterical. Because making sure the hysterics...

Is Wessely involved in this centre by any chance? It's really poor taste to talk about mass hysteria during a poorly controlled pandemic.

McGregor also have reported hypermetabolism in patients during the PEM. https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6787670/

This idea of excessive stimulation also aligns with sleep disruption and the symptom of unrefreshing sleep. My observation is that disrupted sleep precedes next-day PEM.

Thanks for adding this perspective. I wrote this from the point of view of someone who can still fulfill his basic needs without crashing. Another thing I suspect that changes with increasing illness severity is the propensity for the more stimulated state to feel unpleasant and like...

We patients seem to agree that the problem is usually avoiding doing too much, rather than too little. Even knowing this very well helps us little. The problem is not one of knowledge. Some have proposed that we patients have the personality traits of being motivated and driven and that we have...

There is no more information behind the link so I gathered some. NIH staff talked about their plans for an interagency ME/CFS working group and there is a transcript here https://www.nih.gov/research-training/medical-research-initiatives/mecfs/nih-me/cfs-advocacy-call-october-17-2019 It's...

Whatever one's interpretation, these outbreaks are given too much importance. While it's useful to know that outbreaks can produce a lot of ME/CFS cases, the number of patients that became ill during outbreaks is insignificantly small compared to the number of patients that did not. The Tahoe...

Toxic poisoning can happen much more easily than one would expect. All that needs to happen is a farmer being distracted for a moment or choosing the wrong product. We all have made errors like these. Another way for it is to grains being affected by fungal toxins while in storage. And probably...

I had this a lot in the first few years. I just couldn't make any sense of it. I often felt fine after resting, but resuming my usual daily activities always led to a relapse. It was very demoralizing. I don't normally have extreme and constant fatigue. It's mostly mild, but will quickly worsen...