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  1. Hoopoe

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    If fatigue is the decrease in physical and/or mental performance, then fatigue can be treated by improving physical and/or mental performance. For example with exercise.
  2. Hoopoe

    Research news from Bhupesh Prusty

    I'm not sure if this is the right place but it's related.
  3. Hoopoe

    BMJ editorial: Updated NICE Guideline on chronic fatigue syndrome, 2020, Stokes and Wade

    Funny and spot-on article by Brian Hughes, as usual.
  4. Hoopoe

    Psychosomatic medicine and the psychologising of physical diseases

    SolveCFS appears to be misunderstanding what others have said. If I remember correctly, Nancy Klimas has said that MS was frequently misdiagnosed as psychiatric before MRIs.
  5. Hoopoe

    Psychosomatic medicine and the psychologising of physical diseases

    Yes, I think there has been a misunderstanding. It's correct that MS is not viewed that way and I wrote my first post on this erroneously believing that SolveCFS had argued that before MRI, MS was often misdiagnosed as psychiatric illness (what they actually said was different). I doubt that my...
  6. Hoopoe

    Psychosomatic medicine and the psychologising of physical diseases

    I suppose it's possible they were admitted for dementia rather than misdiagnosed conversion disorder which was really MS, but am not convinced. The patients my doctor mentioned must have survived a long time if they developed MS before the advent of MRIs. These patients were still alive at the...
  7. Hoopoe

    Psychosomatic medicine and the psychologising of physical diseases

    My neurologist said he has older MS patients who were put into psychiatric wards, so it's definitely true. The exact misdiagnosis given to these patients probably varied. The point is that it was in practice often treated as psychiatric disorder, and I assume, seen as something arising from...
  8. Hoopoe

    UK - NICE guideline on Long Covid

    The biopsychosocial model of illness means that you can make up a psychosomatic cause of symptoms on the spot, whenever you want. He seems to be saying that they need this freedom, presumably because they aren't able communicate normally with patients and simply say that they don't understand...
  9. Hoopoe

    UK - NICE guideline on Long Covid

    Yes it's fair. Ideally it would list the comorbidities and better explain what pacing is.
  10. Hoopoe

    BPS attempts at psychologizing Long Covid

    I had a story to tell today at dinner with the family, about penis thefts. We all laughed. At least these stories are good for something. Maybe entertainment is why they're popular.
  11. Hoopoe

    BPS attempts at psychologizing Long Covid

    To illustrate his idea, he chose an example where (allegedly) a group of men in Africa started believing that someone had stolen their penises. In this story, the patients are portrayed as utterly dumb. Presumably he also thinks patients with long covid are utterly dumb - for failing to see the...
  12. Hoopoe

    UK - NICE guideline on Long Covid

    Ironically the decision to distance themselves from ME/CFS could quickly turn out be disastrous. The BPS brigades are waiting with open arms to welcome long covid patients for holistic multidisciplinary biopsychosocial flexible rehabilitation. Meanwhile ME/CFS patients are slowly making progress...
  13. Hoopoe

    UK - NICE guideline on Long Covid

    I suspect the long covid community is in a way, making the bet that they'll be able to figure out the disease quicker without the taint of ME/CFS. The similarities are obvious and undeniable. Clearly at some level the long covid community is making a deliberate choice to keep some distance from...
  14. Hoopoe

    BMJ editorial: Updated NICE Guideline on chronic fatigue syndrome, 2020, Stokes and Wade

    The strong beliefs in the treatment exhibited by CBT/GET proponents do not show that we can do without controlled clinical trials but that bias-proof clinical trials are especially important. Strong beliefs could be a result of the treatment being very effective, but they could also be what...
  15. Hoopoe

    BMJ editorial: Updated NICE Guideline on chronic fatigue syndrome, 2020, Stokes and Wade

    That's a good letter, as always. I would like if something about the historical context was added. Something about CBT and GET and the standards of evidence being a paradigm that failed, and how this has probably contributed to there being a lack of progress in ME/CFS. Without a way to discard...
  16. Hoopoe

    BMJ editorial: Updated NICE Guideline on chronic fatigue syndrome, 2020, Stokes and Wade

    Thanks to Anil sharing a copy, I have been able to read more than the initial part that's visible on the BMJ website. I couldn't quite muster the energy to write out a detailed critique but will just say: it is nothing more than a protest against the loss of undeserved privilege. She doesn't...
  17. Hoopoe

    BMJ editorial: Updated NICE Guideline on chronic fatigue syndrome, 2020, Stokes and Wade

    It appears that most people will get better regardless of what they do or don't do. A controlled study is needed to distinguish the effect of treatment from the effect of time passing.
  18. Hoopoe

    Managing functional disorders: opportunities and threats, Liira, 2020 (Editorial)

    Hey at least we're a threat now. That's better than being irrelevant and ignored. I hope I live long enough to see the functional disorder paradigm discredited entirely and exposed as mass delusion.
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