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My best guess is that to them "all in the head" means imaginary, whereas curing illness by changing one's attitude to the symptoms doesn't mean imaginary, but rather changing physiology through the power of the mind. To those who don't believe that the mind has the power to change physiology...

Merged thread The article argues that there is now too much circumstantial evidence pointing to a lab leak to ignore. https://www.newsweek.com/exclusive-how-amateur-sleuths-broke-wuhan-lab-story-embarrassed-media-1596958

When patients are studied as group, do any autoimmune diseases exist which involve only autoantibodies from long lived plasma cells? Or is there a mix of short and long lived one? I was wondering about this because the null response to Rituximab appears to leave only two possibilities: either...

That's not a bias in the CGI scale. That's how the authors chose to define evidence of harm, most likely because that allowed them to find no evidence of harm.

4974 responses is starting to look like useful numbers.

Abstract Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) is a complex, multi-system disease whose etiological basis has not been established. Enteroviruses (EVs) as a cause of ME/CFS have sometimes been proposed, as they are known agents of acute respiratory and gastrointestinal...

The only iconoclasts in this story have so far been patients and a few professionals who dared to point out that CBT/GET research is junk science and not of any proven value.

So many problems in a few sentences. First PEM is described as something that can happen, not something that is guaranteed to happen with sufficient exertion. Then after finding that patients aren't much different from controls in terms of activity levels, they still propose "debilitation" and...

Can you elaborate on this?

It sounds as if we need a good study that will look at the tissues of deceased patients. This will be difficult because we don't know what virus we're even looking for and where to look for it, or if it's even a virus.

Another way to think about this is that essentially the money that was meant to help patients has been diverted into subsidies for researchers and therapists with treatments that haven't been shown to be better than a placebo. It's a form of exploitation and we must finally break free of this...

But the researchers are so eminent and free of selfishness or bias. Their work has been peer-reviewed. Are you not impressed?

With the assumption that the authors of these studies are totally trustworthy and not hiding the harms in creative ways that cannot be discovered from the published information. Getting worse from overexertion is obvious that it's really a mystery how the studies are achieving such low rates of...

Something I wanted to say: I don't think that exercise has any special role to play in treating ME/CFS. Looking beyond my n=1 experience, there doesn't seem to be any data unambiguously showing improvement with exercise. Most of the work in this area has been done by people who were looking for...

I don't mind if there are people from outside the community that opposes GET, as long as they do not have conflicts of interest. They should be easy to convince with the information that is available and their presence makes the review more credible.

It's so painful to see society wanting children's illness to be psychosocial because of its own inability to bear the thought of children actually having a chronic illness.

But that would be exactly what perpetuates the difficulty medicine has with medically unexplained symptoms. The difficulty medicine has with medically unexplained symptoms is precisely that they're convinced that the solution lies somewhere in the domain of mental and behavioural health and...

Yes, but what does this mean exactly? The authors presumably want to express that the treatment works in the real world too. However the clinical trial has not actually shown that the treatment works because it failed to control for nonspecific effects, and the real world data is even less...

I don't mind if it said that patients are biased, if there is also a recognition that doctors and the medical system and research and politics are also biased. Assuming that only patients are biased is, ironically, the very problem that is being pointed at.