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  1. Wonko

    Open NIH: Proof of concept trial on the effect of Ketamine on Fatigue Study

    Ketamine, whilst probably not entirely legal, was pretty freely available in the UK 10-15 years ago, and used for pain relief for those involved in certain 'sports'. It could be freely bought online from many 'sports' sites (weightlifting in particular, but also sites selling MMR gear etc.)...
  2. Wonko

    Cognitive Behavioral Therapy Improves Physical Function & Fatigue in Mild & Moderate CFS: A Consecutive RCT, 2021, Gotaas et al

    It may have changed (although having read both this and the earlier version I am not sure how) but it is still a blatant marketing piece for CBT, using the updated NICE GL as a bad guy to make a point. As such I personally see it as a deliberate attack upon both those with ME and any 'support'...
  3. Wonko

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    erm....award for the most pointless use of trillions of dollars of technology goes to.....
  4. Wonko

    Open NIH: Proof of concept trial on the effect of Ketamine on Fatigue Study

    All of my arms are not in my veins, therefore this procedure would not work on I.
  5. Wonko

    New NICE guideline on chronic fatigue syndrome: more ideology than science? 2022, Flottorp et al

    What has happened in the UK is down to some people losing unearned and unquestioned eminence because their prescribed, and legally enforced (in some cases, particularly where children are concerned, people have been 'removed' from home and family if treatment is refused, or if treatment doesn't...
  6. Wonko

    New NICE guideline on chronic fatigue syndrome: more ideology than science? 2022, Flottorp et al

    The situation is fairly simple. Effectively they stole some land and put up a new sign to identify it. Whenever anyone says you stole that, give it back, they point to a deed they wrote and say 'look at the sign, look at the deed, it's ours'. Up until recently the authorities when complaints...
  7. Wonko

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    Based on that thing on Medscape it doesn't sound like any leads to crack long covid have been discovered, let alone promising ones. It, to my uniformed eye, simply reads as rehashing old theories that didn't pan out for a condition with similar symptoms, ME. How many times were the viral...
  8. Wonko

    Coining a term for being limited in your interrelated energy and time.

    Not helpful, being probably less scientific than spoons, but I use the word oomph to describe what you're describing.
  9. Wonko

    Protocol ReCOVer: A RCT testing the efficacy of CBT for preventing chronic post-infectious fatigue among patients diagnosed with COVID-19.

    How do those unfortunate people who can't teleport even do a 5 minute walk with the suggested level of accuracy? How do they get home, without more walking? It's all very well saying walk 5 minutes and stop, but that would leave me outside, until my next scheduled 5 minute walking session...
  10. Wonko

    At the intersection of anger, chronic pain, and the brain: A mini-review, 2022, Yarns et al

    I can only assume a 'believer' had 10 minutes spare and was bored so came up with this. In my experience anger has the opposite effect on pain to that suggested. Maybe they have only seen those in pain who come to them for help and get angry when they get no help and hear irrelevant and...
  11. Wonko

    Explain Pain - David Butler and Lorimer Moseley

    Does it tho? It remembers that there was pain, that it didn't like it, how bad it was etc. But that isn't the same as remembering the pain, itself. I can remember that in 1982 I was forced to see Star Trek The motion picture, but not remember much about it, let alone be able to experience it...
  12. Wonko

    BPS attempts at psychologizing Long Covid

    Of course it occurs to nobody that a reason many people presenting may have prior psych diagnoses is because this is what doctors tend to give out when they don't know what's wrong, and in most medical systems I am aware of most people will go via a GP to get to a 'leading doctor for long covid'...
  13. Wonko

    Closed A Non-Interventional Pilot Study to Explore the Role of Gut Flora in ME/CFS, 2020 -

    erm...my understanding is that the gut biome is largely determined by what people eat, so isn't this just a fancy way of saying that they plan on studying, indirectly, at great cost, the effect of diet on ME? Presumably coz just asking or monitoring what people eat doesn't cost enough, and also...
  14. Wonko

    Does Covid-19 vaccination reduce the risk of Long Covid?

    But surely that flies in the face of all the research and expert opinion that says that both covid and long covid are entirely caused by people knowing about them? Coz, presumably, people who have been double-vaccinated must have heard of covid and must therefore, according to the research, and...
  15. Wonko

    Decreased NO production in endothelial cells exposed to plasma from ME/CFS patients, Bertinat et al (2022)

    When I was taking L arginine I was taking it at a much higher dose with other things. Around 7 to 10g a day I think. As a power mixed with a whey drink with the other stuff i was taking the whole lot with the aim of helping the endothelial lining of the circulation system. It did do...
  16. Wonko

    Gluten-free diet

    I agree about the extra bits in a lot if commercial bread. When I eat it for very long it makes me worse, where eating my own homemade bread does not. One of the primary reasons why, when able, I make and consume my own bread, with flours from Mills rather than the stuff supermarkets sell. As...
  17. Wonko

    Toronto scientists are trying to crack one of COVID’s biggest mysteries: Its impact on the brain

    Odd - it seems; is an exclusion criteria - i.e. if someone isn't currently on antidepressants then they are excluded.
  18. Wonko

    Toronto scientists are trying to crack one of COVID’s biggest mysteries: Its impact on the brain

    It doesn't say that; what is says is; so, even when deliberately excluding people with the same symptoms, and likely the same condition as they are 'studying', they feel the need to make up yet another name. CFS/EM. It's almost as if they hated and despised us/me and part of that is refusing...
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