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  1. Wonko

    If there is a factor in the serum, why is plasma exchange not working?

    My understanding seems opposed to what has so far been posted. If there is something in the blood then it must have got there somehow. The something in the blood seems to be what is causing a problem in pwME cells - so in order to function 'normally' then that something in the blood needs to...
  2. Wonko

    Covid-19 - Psychological research and treatment

    Haven't they already decided upon the conclusion that everyone, and their pets, is so traumatised by lockdown, and the total certainty of dying if they so much as look out of the window, that they must all be suffering from profitable mental health issues? So now what they seem to be doing is...
  3. Wonko

    UK - Resources for help getting food during quarantine and other supermarket related problems

    No, just surgical, cosmetic, below dental grade. Even with that I went for ones over double the price of the cheap ones as the cheap ones have a reputation for traveling around faces as they feel like. FFP2 equivalent seem, and don't rely on this as it's not what I was looking for, and I just...
  4. Wonko

    UK - Resources for help getting food during quarantine and other supermarket related problems

    Tonight i first found masks, the same ones as were 20 quid or more for ten, for 4 quid for 20. So I then went looking for hand sanitizer, and found that it is broadly speaking, available. A lot is useless, being below 70 percent alcohol, but some is both useful and available. So I have a...
  5. Wonko

    UK - Resources for help getting food during quarantine and other supermarket related problems

    Split from the Worldwide Spread thread To those relying on priority supermarket delivery slots hand sanitizer is completely unavailable. It seems whatever is available, if any, is being cleared as soon as it hits the shelves by people who are able to get to shops. I have been trying for over...
  6. Wonko

    Coronavirus - worldwide spread and control

    I assume that every single one of those people will be fined for breach of social distancing, and arrested and charged, for behaviour likely to cause a breach of the peace (dunno about anyone else but I'd like to slap 'em - which would be a breach of the peace), affray etc.
  7. Wonko

    Covid19 - Shielding and self-isolating for vulnerable people - policies and issues

    erm...isn't this precisely what we already had, pre-covid-19? Care homes and cul de sacs for the elderly - with mainly one morning a week when they all hit town. The disabled and the vulnerable, many simply can't get out very much, nowhere much as 'healthies' anyway - who tend to have jobs...
  8. Wonko

    UK - Resources for help getting food during quarantine and other supermarket related problems

    I received my first Tesco delivery on Saturday night. They managed to deliver more of what I ordered than any of the others - only missing baking powder and hand sanitizer (which they subbed for hand wash for some bizarre reason). The driver even brought it up the stairs to my front door (in...
  9. Wonko

    UK Planned study: Feasibility of investigating VO2, HR, BP, lactic acid and activity of pwME during normal daily activity, 2020/21, Clague-Baker et al

    It took me many, many years to be able to remember my internet bank sign in details. I kept them on pieces of paper on notice boards, the original letter, and more recently in a text file in a secure partition on my NAS. Unless I have something to read in front of me then picking out digit x...
  10. Wonko

    Coronavirus - worldwide spread and control

    I thought this was 'settled' weeks ago by a statement made by WHO. That the reason for positive results weeks after people had apparently recovered was down to the body clearing inert pieces of viral RNA from the lungs, big enough pieces of viral RNA to give a positive result on a swab test but...
  11. Wonko

    UK Planned study: Feasibility of investigating VO2, HR, BP, lactic acid and activity of pwME during normal daily activity, 2020/21, Clague-Baker et al

    Sometimes I can do the math, but my working memory is shot, so I forget pretty much instantly anything which isn't right in front of me. Often in the process of working something out. Makes the descending 7s test virtually impossible (as in order to be successful at least 4 things need to be...
  12. Wonko

    UK - Resources for help getting food during quarantine and other supermarket related problems

    Many mills appear to be operating 'normally' or close to now. The only exception I am aware of is shipton mill, who still have a wait and click (if lucky) system to be able to submit an email, for an 'invitation to shop' to be sent, in order to get a slot to use their online shop. None, apart...
  13. Wonko

    Resources for help getting food during quarantine and safe handling of food

    I have no idea if this belongs here, or in the kitchen thread, or the how pwME are handling covid-19 thread, or even in a green fingers thread. For many years I have occasionally bought potted herbs for use in cooking, as garnishes, etc., but over the last few years I've got sick of the little...
  14. Wonko

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    Not noticeably no. It's more like enough blood doesn't get through my shoulders, leading to low pressure in my arms - buzzing, a type of pins and needles I suppose, initially just in my palms and fingertips. constriction around the top of my biceps, altered sensation from there upwards to my...
  15. Wonko

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    I get this on a lot of nights when I go to bed, it feels as if the blood pressure in my arms is markedly different from that in the rest of me. It can become very intense if ignored. It does happen at other times but when in bed, trying to get to sleep, it's much more difficult to deal with...
  16. Wonko

    Coronavirus - worldwide spread and control

    On worldometer, the UK, on deaths per million of population, is on track for a bronze medal in the 'how to handle a pandemic as badly as possible' olympics. https://www.worldometers.info/coronavirus/?utm_campaign=homeAdUOA?Si Only Spain and Italy are above us, on official figures (and there is...
  17. Wonko

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    The idea that people can have longer term issues after an illness is not new. We have a word for it - convalescence. That word has been around a while. It was not a revolutionary idea when I was growing up. As far as I am aware it's only become a thing that people are ill, and then, after an...
  18. Wonko

    Advice on mask-wearing to protect against Covid-19

    Why has no one warned us that rodents can transmit covid-19? We're surrounded by rodents. I seem to misremember that no one in the UK is more than 2 meters from a rodent at all times, on average.
  19. Wonko

    UK Planned study: Feasibility of investigating VO2, HR, BP, lactic acid and activity of pwME during normal daily activity, 2020/21, Clague-Baker et al

    I did one in a hospital (memory clinic) about 8-9 years ago. The only reasons I wasn't diagnosed with dementia, according to the consultant were, my age, the fact that my problems were not constantly above the required severity, and 'high executive function'. No one disputed the level of...
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