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  1. Wonko

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    The naivete shown in the assumption that GPs would like to support 'us' - when 30 years of evidence strongly suggests that they have absolutely no interest in doing so, in any way, medically or otherwise, is 'delightful' in it's lack of appreciation of the scope of the problem..
  2. Wonko

    Covid19 - Shielding and self-isolating for vulnerable people - policies and issues

    Tescos was the last, by several weeks, to put me on their priority list. I have only had, I think, 2 deliveries from them, the last of which was last Friday, so based on that it would seem that they are likely to have put me on their list 5 weeks ago - so mid May? Two months after lockdown...
  3. Wonko

    UK - Resources for help getting food during quarantine and other supermarket related problems

    I received another phone call from the shielding people the day after the ones mentioned above. It was much longer, and I had a chance to explain the unsuitability of the standard box for a diabetic. He decided that I would receive food boxes (he didn't ask, he just announced that I would...
  4. Wonko

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    They probably meant 32 billion euros - but i'd agree, no idea how they arrive at such a figure
  5. Wonko

    Trial By Error: Trio of Trials Shows Limits of CBT for Medically Unexplained Symptoms

    Human sacrifice, a few minutes of 'discomfort' - less if your local officiant is competent. Current medical practice - a lifetime of suffering, mistreatment and loss.
  6. Wonko

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    An obvious question. If they have no antibodies then what caused them to recover.
  7. Wonko

    Covid19 - Shielding and self-isolating for vulnerable people - policies and issues

    Yes, that was sainsburys - I'd shopped there for over 17 years but have now stopped, even if they have now got stock levels on most things back up they just leave my shopping in the street which is of no use to me. It's actually 'harmful' to me as I am not up to hauling it up the stairs before...
  8. Wonko

    Covid19 - Shielding and self-isolating for vulnerable people - policies and issues

    It can be 'annoying'. I've done similar shopping orders, of a similar size, selecting entire categories and allowing subs, and had 70% of the order not arrive, with the delivery not having anything in the one or two categories I placed the order specifically to get. Can't say I've had a...
  9. Wonko

    Coronavirus - worldwide spread and control

    They do appear to be under the impression that they can conduct a genocide (of the virus) without killing anyone. I await the omelette recipe where they manage to cook one without breaking any eggs. Of course, to people who believe they can both have their cake, and eat it, this should be...
  10. Wonko

    UK - Resources for help getting food during quarantine and other supermarket related problems

    It seems, despite all evidence being to the contrary, that I am still on the shielding list. I just had 2 phone calls from the shielding service, who asked if I was happy with the food boxes, and seemed very surprised when I told them that they had just stopped a few weeks ago, with no notice...
  11. Wonko

    Cerebral Blood Flow Is Reduced in Severe ME/CFS Patients During Mild Orthostatic Stress Testing. van Campen et al. 2020

    Where did all the blood go (-33% and -25%), if it wasn't in your brain or your body?
  12. Wonko

    Covid-19 - Psychological research and treatment

    The world, and indeed reality, is not beautiful. It only appears to be because finding some things beautiful, desirable, etc. is hardwired into us by evolution. Reality itself is a cruel and evil construct, probably constructed by the sort of mind that likes pulling wings and legs off of...
  13. Wonko

    UK Planned study: Feasibility of investigating VO2, HR, BP, lactic acid and activity of pwME during normal daily activity, 2020/21, Clague-Baker et al

    Doesn't work for me either. (in either chrome, firefox, tor or an untouched copy of IE)
  14. Wonko

    Review: Chronic Fatigue Syndrome, 2020, Sapra

    Wow. How can they start listing so many 'things' that have been found 'different', and then not wonder how on earth CBT and GET could possibly positively affect them. What thought processes lead to the conclusion that CBT and GET could possibly do anything useful, and why. It's got to be the...
  15. Wonko

    UK - Resources for help getting food during quarantine and other supermarket related problems

    Now try and figure out how to make a weeks worth of healthy meals from just what you see in the picture ;) These food parcels are after all intended for people with health issues, significant health issues. Intended for people who should eat healthily. I couldn't. Then try and figure out how...
  16. Wonko

    UK - Resources for help getting food during quarantine and other supermarket related problems

    Mine appear to have stopped - no idea why, I've had nothing to say they would be stopping, or any other communication with them - last Fridays just didn't turn up. Given the extremely low quality of the contents, and their unsuitability as a diet for a diabetic, I'm not currently inclined to...
  17. Wonko

    UK - Resources for help getting food during quarantine and other supermarket related problems

    No idea. I was called from a private mobile registered to a defunct company offering non specific services, based in essex that went out of business 3 years ago. He did however seem reasonably legit, in the few minutes I was speaking to him, said he didn't need my email address when I said this...
  18. Wonko

    UK - Resources for help getting food during quarantine and other supermarket related problems

    My local council has a covid support hub to coordinate both their services and that of volunteers. It used to be the case that they prefered people to be referred to them for help. I suspect that is still what goes on behind the website where you can, in theory, now self refer. The only...
  19. Wonko

    UK - Resources for help getting food during quarantine and other supermarket related problems

    Yes to calls from both but I may not be that helpful as in both cases my priority has been to end the call as soon as possible. Shielding people - 'we've noticed you haven't been receiving your food parcels, would you like to?' - no idea what the normal script would be after that as I said if...
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