Search results

  1. Wonko

    UK NICE 2021 ME/CFS Guideline, published 29th October - post-publication discussion

    More, or less, than a diet containing, say, carrots, pomegranates, or some OTC NSAID ?
  2. Wonko

    Covid-19 vaccination experiences

    That may be because the purpose of vaccines isn't to protect individuals, they are to protect populations. The effects on individuals are not seen as problematic, especially if those individuals are seen as not economically productive, as long as the vaccine reduces the impact of what is being...
  3. Wonko

    UK - NHS England online tool and clinics for long Covid.

    Digital breathing would not appear to be covid safe.
  4. Wonko

    Ken Ware - Neurophysics therapy

    First sentence from the above; I don't know what language that is, but it ain't English. It also appears to say absolutely nothing, other than indicate that the person who wrote it......probably isn't a fully paid up, qualified, scientist. In light of this I have not bothered with subsequent...
  5. Wonko

    CHRONIC FATIGUE SYNDROME (CFS) AND FIBROMYALGIA ARE VASCULAR DISEASE, 2021, Chang and Figueredo

    I had/have come to the conclusion that this is an issue with me, of course I would not make the bold assertion that it is what causes ME, I had ME a long time before any vascular issues obviously manifested and they may be nothing to do with ME per say, merely the effects of being chronically...
  6. Wonko

    UK: Work and Pensions Committee inquiry: Health assessments for benefits, 2021

    One of the major problems is about the descriptors, and the scoring system - in that they bare no relationship to reality IMO, so do not result in a 'fair' assessment when applied to me (and probably lots of other people, if not all other people that could possibly exist, ever). This is...
  7. Wonko

    UK: Secretary of State for Health and Social Care met with ME/CFS researchers Nov 2021

    They are quite good at making noises, less good at other things.
  8. Wonko

    Bristol Chronic Fatigue Syndrome/ME Service; Bristol M.E. Service - Peter Gladwell

    My apologies for offending you - as is my normal policy in such cases I have removed the post.
  9. Wonko

    BPS attempts at psychologizing Long Covid

    They may do that on the sly, my medical ones contain references to them doing so stating that I was not depressed according to some assessment they performed, without my knowledge, or consent.
  10. Wonko

    BPS attempts at psychologizing Long Covid

    "identifying a single cause for COVID-19 brain fog “may be a bit of a fool's errand because there could be a lot of pathways by which people with COVID developed cognitive impairment." If a patient is in a hospital in another city does that mean it's pointless trying to see them, as there are...
  11. Wonko

    UK: Government to invest £375 million in neurodegenerative disease research, 2021

    I am surprised to see MCI on the list, I was not aware it was classified as a neurodegenerative disease. I have a diagnosis of MCI, have had for about a decade, the consultant ventured no opinion but I suspect that in my case it's secondary, an effect of, ME. I am not aware of any treatment...
  12. Wonko

    Psychotherapy and Psychosomatics: Psychosocial Factors Predict COVID-19 Vaccine Side Effects,2021, Geers et al

    I expected the Spanish inquisition, coz the man said you should always expect the Spanish inquisition. They appear to be late.
  13. Wonko

    Psychotherapy and Psychosomatics: Psychosocial Factors Predict COVID-19 Vaccine Side Effects,2021, Geers et al

    I heard something about the booster containing a rejuvenant, so I'm expecting to be 35-40 years younger after getting it. (granted my understanding of rejuvenants mainly comes from stuff on the sci-fi channel and the like, but.....surely it's my understanding that counts?) google spell checker...
  14. Wonko

    Psychotherapy and Psychosomatics: Psychosocial Factors Predict COVID-19 Vaccine Side Effects,2021, Geers et al

    I'm getting my booster shot on Tuesday. I fully expect many symptoms, related to PEM, coz the booster is occurring roughly a mile from my home, and getting there involves walking to a bus stop, standing waiting for who knows how long in what weather conditions, catching a bus with who knows...
  15. Wonko

    Psychotherapy and Psychosomatics: Psychosocial Factors Predict COVID-19 Vaccine Side Effects,2021, Geers et al

    So they've done the study, but the data doesn't support his 'theory' or worldview, so the strongest statement he can make is; Way to do science guys :grumpy::banghead::grumpy::grumpy:
  16. Wonko

    Bristol Chronic Fatigue Syndrome/ME Service; Bristol M.E. Service - Peter Gladwell

    20 years was largely before the mass adoption of the BPS instigated policy of ignoring patients when they said that harm was occuring, lie to them, and keep pushing them do hurt themselves more - and don't bother to record their whining. Of course after 2007, the entire system, and not just...
  17. Wonko

    Bristol Chronic Fatigue Syndrome/ME Service; Bristol M.E. Service - Peter Gladwell

    This isn't 'most people in the NHS', whom I agree may not have any interest or knowledge. This is a rebranded ME clinic, who have presumably been working for many years, under the 'old' philosophy that abuse is right and what is best for us. Presumably staff that didn't believe this, seeing the...
  18. Wonko

    Bristol Chronic Fatigue Syndrome/ME Service; Bristol M.E. Service - Peter Gladwell

    Bolding mine. So the banner name has changed but not what they consider the condition to actually be - or has not CFS/ME been 'code' for psychological? and hasn't the aim of these places been to stop people getting carers, or support - because they don't consider us to deserve them, what with...
  19. Wonko

    ME/CFS, FM: Mitochondrial dysfunction ... cellular hypoxia, hypoperfusion, endothelial dysfunction, persistent clots, 2021, Chang, Figueredo

    Associated maybe, but even though I've looked, as I was told 20 years by some bod in addenbrookes (cambridge) that I appeared to be suffering from hypoxia, and investigations were promised, which never materialised, I have brain fog, I have symptoms of endothelial dysfunction, and have had what...
  20. Wonko

    ME/CFS services in the United Kingdom

    It's the sort of thing we used to have, basically from the start of the NHS, before they shut and sold all the local hospitals, in favour of only having one or 2 national centers for a medical speciality - otherwise known as centers of excellence, that even if injured/sick/ill people could get...
Back
Top Bottom