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Do not show this to the #ME4ICC lot, they will lose their shit.

Maybe worth a letter of support for a move to a new group, just to nudge them on their way....

This is a great piece and we should be greatful that Joseph has told his story. Note for those who can't access the story, this article was published in a similar form on Medium several months ago.

Yeah I agree. Perhaps her post raises some good points. But it was the tone of the post and some of the comments, and the constant effort by some in the community to shit on the work of leading researchers, charities, advocacy groups etc.

There's a post going round on Facebook from a Maryann Spurgin basically ripping into this work, and in her post she seems to claim that Ron may have got the idea for this study from her blog in the 80s! (Though I do know this is not a new idea). Her post is being shared by some of those that...

It's nice to see an article in a top-tier journal. I'm not a journal snob, but I'm not a fan of the amount of ME/CFS papers in the 'Frontiers' journals...

I feel we must take some action on this now, or at least when the final panel is released. This has made me really pissed off. My view is that a co-signed letter would be the best action, led by someone with authority. I don't know if anyone has plans for this.... I have just seen the letter...

https://www.sciencemag.org/news/2018/09/your-gut-directly-connected-your-brain-newly-discovered-neuron-circuit The human gut is lined with more than 100 million nerve cells—it’s practically a brain unto itself. And indeed, the gut actually talks to the brain, releasing hormones into the...

I really wish Raymond Perrin would stop with the bombastic claims, because I actually think his theory holds some weight. I am convinved the lymphatic system plays a big role in this illness. I'm glad he worked together with researchers and NHS clinicians to write the paper in BMJ, and I do...