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Ooh, I hadn't heard about this new institute. I'm wondering how much of the campus they have left to build on now - hopefully quite a bit still. I see they are into FMT as well ...

Hmm, yes, I recognise several of these from the days when I was having to empty a commode for my caree. However, from the little that's been said I also recognise some of them as things I've probably suffered from myself, and I don't have ME. So to what extent they are actually ME-related I...

Yes. A while ago, I was looking for a card for someone who was seriously ill. How insensitive would it be to send them a "Get well soon" card if you knew they were terminally ill?

My caree has had several this year.

Exactly. Just when I'd written to mine about my caree's PIP appeal, too. Boris' timing sucks. Mind you, the MEA mentions writing to candidates, not MPs. Another aspect people might like to tackle is the current disability benefits system in relation to longstanding and variable illnesses...

Quite. I approached my caree's MP in relation to her PIP appeal shortly before the general election was called. It is a bit of a quandary.

Have you read the "thou shalt nots" for Vit D pills? I think they probably vary a bit from manufacturer to manufacturer, but they do my caree's head in!

I suspect. I find this too (without having ME), but the response time is far too quick for it to be real. Eating something sweet in my case can ward off a migraine-like headache, feeling sick, and various other things.

If you're overthinking, then so's my caree :( If I don't post here soon, chase me up and I'll ask her what she's worked out.

I've posted about a petition to change the assessors and assessment process for PIP and ESA here: https://www.s4me.info/threads/uk-petition-change-the-dwp-benefits-assessments-system.12009/

Petition to stop contracting out DWP health-related benefits assessments and make the system fairer: https://petition.parliament.uk/petitions/274312/signatures/new UK citizens only.

And gee, look at what one of the most recent posts is: That is why we've been battling for over a year now to get PIP for my caree!

Thanks, Simbindi. But it doesn't go as far as appeals, by the look of things :(

Lucky her ...

Does it really do that, sb4? I can't see increased adrenaline levels being compatible with restful sleep. Now I come to think of it, my caree has been complaining about feeling as though she's got more adrenaline/cortisol or something in her system since she went on to the increased dose of...

I had mine operated on when I was a child. I wonder if that's something they still do? You do have my sympathies.

I don't think they're comparable, are they? Anyway, the tribunal has asked for the paperwork for her ESA application from the DWP, so presumably they'll be able to compare.

I don't think we saw the report, just got the letter, went "thank goodness" and forgot all about it. Wish I could do the same with the PIP application :(

Well, I put it in my notes on my caree's most recent two ESA applications, and she got Support Group. I suppose it might be debatable whether the two are linked, though.

If it's the UK we're talking about, GPs tend to be under so much pressure that I don't think many of them have time for, independent thinking, shall we call it?