https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5743676/
Abstract
Musculoskeletal pain due to ischemia is present in a variety of clinical conditions including peripheral vascular disease (PVD), sickle cell disease (SCD), complex regional pain syndrome (CRPS), and even fibromyalgia (FM). The...
https://www.phcc.org.nz/briefing/long-covid-aotearoa-nz-risk-assessment-and-preventive-action-urgently-needed
On the Public Health Communication Centre Aotearoa
Amanda Kvalsvig, Anna E. S. Brooks, John D. Potter, Mona Jeffreys, Julie Bennett, David Davies-Payne, Jonathan Kennedy, Dianne...
There was an interview with epidemiologist Michael Baker on First Up on Radio NZ this morning. Michael Baker has been a reliably good commentator throughout the pandemic. He and a number of others have authored an article on the impact of Long Covid that will be available today - it sounds to...
I see from SNT's bolding that he has also noted the fact that this author, even after going through this awful process of having significant pain dismissed as a psychological reaction, and even after being motivated enough to write up her experience in a paper and reflecting on the issue, still...
I think it's worth acknowledging the particular issues many of us face that can make decision-making more difficult, regardless of any intrinsic specific executive dysfunction.
It can be hard to know how we will be functioning in the future, and so we may feel rather ambivalent about committing...
(Perth, Australia) Investigation of motoneurone firing behaviour and associations with symptom severity in ME/CFS.
Interesting sounding research project looking for participants in Perth, Western Australia
Fereshteh Jahanbani1*, Justin C. Sing2, Rajan D. Maynard1, Shaghayegh Jahanbani3, Janet Dafoe4, Whitney Dafoe4, Nathan Jones1, Kelvin J. Wallace1, Azuravesta Rastan1, Hannes Rost2, Holden Maecker5, Michael P. Snyder6, Ronald W. Davis4
Presumably Whitney Dafoe is the patient. A few red flags...
Cognitive tests
Spinal fluid
Neuroimaging
some overlap but interesting
underwhelming result, given these three regions were the most different out of 39 regions.
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5393352/
Abstract
The purpose of this study was to investigate whether CFS patients without comorbid psychiatric diagnoses differ from CFS patients with comorbid psychiatric diagnoses and healthy control subjects in neuropsychological performance...
There's a brief mention in this post. NICE Guideline review: Call for evidence on myalgic encephalomyelitis (or encephalopathy)/chronic fatigue syndrome, deadline 16th Oct 2019
The study pre-dates the establishment of this forum. For studies from 2017 or before that aren't here, threads on the...
Just to be clear, again, the words in that post aren't my words. They are Jeannette Burmeister's.
I imagine that some people find maligning and gaslighting patients both fulfilling and rewarding; the likes of Walitt don't make me wonder much about that.
That study was hopelessly flawed in its cohort matching. The HV had a big percentage of people over 50; the ME/CFS cohort had a big percentage of people between 18 and 30. And even with that age skew, there was no difference in Beighton scores.
The following diagram is from a nice 2017...
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