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The authors recognise that the monitoring period was too short. This study was not a terrible start to the use of activity monitoring to better understand ME/CFS. It was a start. What is terrible is that, 25 years later, we really don't have much more of an understanding about what is going...

They are noting that the average activity decreased in the second half of the post-exercise week for the CFS participants. But, that the CFS participants were active for more hours, resulting in similar total daytime activity to that in the first week. And then they conclude that "the delayed...

The bolding in the last quote shows that people did understand the need for objective measures 25 years ago.

Use of technology Impressive to be using an activity monitor as far back as in the 1990s, when there are researchers telling us that even now there is no suitable technology to produce useful objective outcomes. @sarahtyson That quote may be useful sometime e.g. when commenting on the PACE...

Thanks for posting about Grant Illingworth, SNT. Dr Richard Webby was just on Radio New Zealand Sunday Morning The recording isn't up yet, but I will update the post when it is. (Link since updated) https://www.rnz.co.nz/news/covid-19/525469/covid-19-will-be-with-us-forever-flu-expert...

Of course, there's not one single coherent story that is the 'BPS mechanism'. I expect there are some BPS people who have suggested that deconditioning is the cause of symptoms and if you fix the deconditioning, you fix the CFS. I think that idea, much like the idea of causal childhood trauma...

I note that non-return to work could be due to a range of factors, not just personal health status. The health of a family member, changed life priorities/assessment of risk and the ongoing presence of the job could all affect work return rate. Future work could look at the impact of the...

Looks potentially important - the authors have a lot of impressive affiliations e.g. Yale School of Epidemiology. There is a risk that people who were experiencing persisting symptoms in the first weeks might have been more likely to sign up for inclusion in the study - there was that lag...

To be devil's advocate for a moment: Perhaps the BPS view does not require deconditioning to a level that is worse than healthy sedentary people? Perhaps it just requires a relative loss of fitness? So, for example, an elite athlete becomes sick and rests, abandoning training for a few weeks...

Ugh. Seems like they googled 'Long Covid treatments' and wrote about what they found in the mistaken belief that it was "knowledge". This is not science. Pragmatic = 'enables the doctor to sound as if they have something to offer, and keep charging you for the many visits as they work through...

great blog @ME/CFS Skeptic - thanks to you both

On Zepbound:

We've split off the discussion about abdominal vascular compression syndrome and related matters to a new thread: Gut compression syndromes; Nutcracker syndrome; Abdominal Vascular Compression Syndrome

There's some discussion about matters related to Forward-ME here (follow the arrow in the quote header)

An interesting paper from this New Jersey team. They suggest that the problems of less efficient brain function, essentially the brain throwing a whole lot of de-synchronised effort into producing motor outcomes that are similar or worse than normal, that they found during the acute Covid-19...

That youtube video by Eiko Fried linked in the tweet above is great, well worth a listen. I'll put another link here in case something happens to the tweet: In the last section, he comments that the same criticisms have been made about research into other sorts of therapies and mentions CBT...

Thanks SNT, a glossary certainly helps with this one.

I think it's important to call a spade a spade. If we call it a functional digging implement, people will be confused, and think it might be a term that they can accept and even be proud of. 'Functional disorder' and even 'conversion disorder' leave room for a lot of ambiguity for the patient...

:cry: So very sad. Thanks David for posting these testimonies. Edit I've just read Naomi's blog and it is extremely good, well worth reading