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My understanding based purely on something I heard somewhere from a researcher who sounded knowledgeable is that the label of 'autism' actually covers a whole lot of conditions. So, the idea of a single 'cure' almost certainly isn't realistic, or even needed for some. I think it's possible...

Thanks @Hoopoe, I had assumed the 'autism cure' was a lot more than behavioural therapy and a whole food diet. You are right, it certainly does all sound very similar:

New Zealand has Pharmac, which buys drugs for the public health system. This page tells you about the process...

:rofl: wouldn't surprise me at all

There's also this paper: Serum of Post-COVID-19 Syndrome Patients with or without ME/CFS Differentially Affects Endothelial Cell Function In Vitro, 2022, Flaskamp et al that deserves a detailed look.

It's not open access. The Castro-Marrera in the author list is the same one who has been involved in some less than good papers, although there are other authors. It's a good sized study and the measures are interesting. I think a week of actigraphy is not long enough to minimise the bias...

I don't think it is open access?

They can still argue that it is something about a patient's thoughts and/or the behaviour that flows from that faulty thinking that is causing both the symptoms and the differences in brain structure that they believe they have found. I think it was found that London taxi drivers have a...

From the article: I know it's not good to make comments on a brief excerpt of what someone said, but I think that reported testimony sums up a lot of what is wrong with doctors' approach to ME/CFS. First, thinking that specialist knowledge of ME/CFS was needed to make a difference. As...

So many options for correlations, and even then, there wasn't that much of note. I'm pretty sure that if you applied normal distribution probabilities for 134 features to 180 individuals randomly put into 3 groups, most of the time you would find some combination of some features that separated...

Not to mention the nearly 100 posts on this thread, many about the links drawn between the fanciful EEfRT finding and various other things: Grip test results and brain imaging in the NIH study: Deep phenotyping of PI-ME/CFS, 2024, Walitt et al

:laugh:, at least all the right letters are there.

A discussion on this topic has been moved to Personality as a risk factor for ME/CFS and similar diseases

That sounds encouraging Midnattsol. Members may be interested in this thread about Grete: Clinical psychologist Grete Lilledalen about ME and CBT/GET.

That's bizarre. Yes, sadly, I don't think these papers are worth much.

Table 2: Only around 15% of the PASC people reported fatigue and lack of energy as a reason for attending the clinic. Around 20% of the PASC people reported dyspnea and respiratory issues as a reason for attending the clinic. Quite a lot of co-morbidities too. CpGs = groups of consecutive...

A Lancet paper - New York authors The authors don't seem to be understanding that PASC is a collection of different things. It's not looking good for a homogenous sample. Nope.

I don't know of course, but this study seems really underpowered, given the numbers, especially of the post-Covid-19 controls, and the variable percentages of males in the groups. I would have thought that epigenetics would have a huge amount of noise, with sex right up there as a source of...