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Just to say that I'm not at all well enough today to write the kind of updates that I did yesterday, but I've listened to the entire morning session and Dr Roy's testimony was very illuminating, to say the least. There was no mention of RCP guidelines being a limiting factor; the emphasis re...

Here's the citation. Not sure if this is the guidance mentioned but it's the closest thing I've found so far: Royal College of Physicians. Supporting people who have eating and drinking difficulties. A guide to practical care and clinical assistance, particularly towards the end of life. Report...

I've been trying to find the source of this claim. There's an RCP publication called "Supporting people who have eating and drinking difficulties" and even in the "Nina" example "functional GI disorder" case (s6.5, p70 2021 edition), which is very different to that of a pwME, the mention of...

Excellent article in the Telegraph: https://www.telegraph.co.uk/news/2024/07/24/maeve-boothby-oneill-nhs-staff-treated-blame-condition-uk/

https://archive.is/20240723181038/https://www.thetimes.com/uk/healthcare/article/me-sufferer-placed-on-eating-disorder-ward-against-expert-advice-before-she-died-986td9d3h

The final witness was also from DCC, Ben Fairs (sp?), social worker. Did not meet Maeve in person. Talking about the attempt to conduct a joint visit with GP & describes the council's concerns at the time. In particular he seemed surprised at being turned away when there was an attempted visit...

Testimony of the council worker so far (apologies, these notes are quite fragmented yet again, will try to edit for clarity): ~1420 A discussion of the procedures and policies around safeguarding and assessments and what is required. ~1422 Lack of agreement from Maeve to be admitted leads to...

Yes, Dr W mentioned his involvement with writing that report and that severe needs re. nutrition were known and included in that report even back then.

RD&E trust questioner opens by asking Dr Weir about his expertise and background. Dr W discusses his time in the NHS at the Royal Free, seeing patients with infections where the majority would recover but that, interestingly, a small minority would not and would develop ME/CFS. Most cases that...

Questions from Maeve's parents to Dr W. First question: that the risks of feeding Maeve were considered but that the risks of not feeding her were not considered? A very powerful point. Second question is that if there had been such intervention, if her life could have been saved: another very...

Post with some updates. Coroner references Strain's testimony that there are likely a range of causes as to why people develop ME. Weir mentions various viral triggers & other triggers including malaria & vaccinations & suggests that abnormal immune response to stimuli underpins ME and also...

Dr Weir's testimony has begun. (If there is interest I'd be happy to post a few updates; I can manage that today, I think.)

There are some errors I spotted on a very quick skim. It was called "epidemic neuromyasthenia" not "epidemic neurasthenis". It's "Epstein-Barr" not "Eppstein-Barr". Also the author says that "coxsackie normally causes a fever which passes after a few days": Coxsackie refers not to a single virus...

Another quick check suggests that there are going to be stories about the 2nd day of the inquest in some of today's print newspapers. For instance, here's the Telegraph (click each image to expand): And the Mail:

Another article in the Daily Mail - "Doctors treating woman who died from debilitating ME 'did not believe it was a medical problem', inquest hears" https://www.dailymail.co.uk/news/article-13664439/Doctors-treating-woman-died-debilitating-did-not-believe-medical-problem-inquest-hears.html...

Telegraph article - "No NHS wards equipped to deal with severe ME, inquest hears": https://www.telegraph.co.uk/news/2024/07/23/no-nhs-ward-equipped-severe-me-inquest-maeve-boothby-oneill/ Some of the measures Strain's hospital has introduced are mentioned:

PA article about today's inquest via the Belfast Telegraph. Includes some details of David Strain's testimony: https://www.belfasttelegraph.co.uk/news/northern-ireland/inquest-into-death-of-ni-reporters-daughter-told-of-severe-shortage-of-specialist-beds-for-patients/a901025462.html Some good...

It seems there will be considerable coverage in today's printed newspapers. The Guardian: The Telegraph: The Daily Mail: The Daily Express:

It doesn't matter how they make the placebos if everyone who is told to take two capsules a day will know they are taking maraviroc...

Channel 4 News segment: