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A further mention in a new blog post by HB, "When an Old Weak Theory Leads a Field Astray": https://hildabastian.wordpress.com/2025/08/06/when-an-old-weak-theory-leads-a-field-astray/

Interesting that, now, two countries are discontinuing such an arrangement. This is what the Swiss Academy for Medical Sciences webpage says: Presumably that means that it will be left to the individual institutions (universities, hospitals, health agencies) to subscribe to Cochrane content...

The "national licence" that the British Government pays for (for everyone in UK IP ranges to be able to freely access Cochrane's content) is clearly the largest source of its income. At present the universities and NHS bodies don't need to pay for access to the Cochrane Library - as they pay...

Finally, some coverage in an actual medical journal, with brief comments from Sonya C & Charles S. Not sure why CS is complaining about the closure of the LC clinics - good riddance, I'd say, they were all behavioural, physiotherapy-based or promoting quack treatments. If RCP do try to get their...

BACME has a small group of their own patient representatives, including a former secondary school teacher, a former life coach, and the father of a young woman with ME/CFS. Their "PPI lead" is a former speech & language therapist; some of their PPI group are also BACME board members. Barton has...

Well, at least he is honest as to how "dissatisfied and disenfranchised" patients are, how little the clinics actually provide patients, and why GPs "oversell" them to their patients nonetheless. If only there was a UK ME/CFS charity or major national organisation campaigning for an entirely...

"Long Covid and the body: can we move beyond judgements?" - an article in BJGP by a GP with Long COVID: https://bjgplife.com/long-covid-and-the-body-can-we-move-beyond-judgements/

"Trial By Error: BMJ’s “Commissioned” Propaganda Piece Hijacked Death of Maeve Boothby O’Neill; Boothby O’Neill’s Mum Responds": https://virology.ws/2025/07/23/trial-by-error-bmjs-commissioned-propaganda-piece-hijacked-death-of-maeve-boothby-oneill-boothby-oneills-mum-responds/

"Expanding the rheumatology lens: should we embrace POTS and post-infectious syndromes?" Written by a rheumatologist at Johns Hopkins. https://www.sciencedirect.com/science/article/pii/S2665991325001900 (Lancet Rheumatology, July 2025)

The generally muted response to this has been surprising. No comment at all from the actual health secretary (Streeting). No comment from any medical quarter except for some brief coverage on the online GP magazine PulseToday - not even a BMJ news article as there was for NICE, Maeve's inquest...

A subtle shift in position? Not sure if this implies that RCN & others have refused, or that DHSC just hasn't approached them. Restricting access and keeping the module's contents from (most) patients will only inspire further mistrust. Not sure why they're doing this.

'Trial By Error: After ME-Related Suicide, Second Coroner in England Issues “Report to Prevent Future Deaths”': [url unfurl=false]https://virology.ws/2025/07/21/trial-by-error-after-me-related-suicide-second-coroner-in-england-issues-report-to-prevent-future-deaths/[/url]

"Boost in support for patients with chronic fatigue syndrome or ME" (Gov.uk): Link "Doctors to be trained on ME in NHS plan to transform care" (The Times) Link | Archive.ph | Txtify | PrintFriendly "My daughter died from ME. This new plan fails her and others like her" (Sean O'Neill, The...

"Boost in support for patients with chronic fatigue syndrome or ME" (Gov.uk): Link "Doctors to be trained on ME in NHS plan to transform care" (The Times) Link | Archive.ph | Txtify | PrintFriendly "My daughter died from ME. This new plan fails her and others like her" (Sean O'Neill, The...

The DWP is already so very difficult to deal with, on every level. There are patients who live in fear of the infamous "brown envelope" (now a white envelope) dropping on their doormat. The information supplied by BACME will only serve to make assessments far more difficult & gruelling -...

Been doing a little background reading. Sivan leads the BSPRM (British Society of Physical and Rehabilitation Medicine) and is also involved with the "Clinical Post-COVID Society", an initiative between NHS England and the BSPRM that seems to have a rehabilitationist bent. He wrote a BMJ piece...

According to the article, Nath is still in favour of the hypothesis that a persistent antigen, and "immune exhaustion", is at the root of LC & ME/CFS. His work on the HERVs sounds very interesting, though.

Apparently, MEA and AfME have jointly agreed to use the 0.6% prevalence statistic (I don't remember seeing this discussed on S4ME). In my opinion this is a serious mistake. [url...

The other element I'd disagree with is the decision to alter the commonly used prevalence estimate: I'd strongly disagree with the idea that this one study alone, based on a review of coded G93.3 diagnoses in secondary care in NHS HES statistics, constitutes sufficient evidence to increase the...

AfME are now offering a free advocacy service for (adult) pwME: Our Free Adults Advocacy Service for people with ME (15 July 2025) Our Free Support Services: Adults Advocacy